Untold Stories: Life with a Severe Autoimmune Condition

Untold Stories: Life with a Severe Autoimmune Condition

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

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Episoder(41)

Building Confidence: Understanding Self-Worth with MG

Building Confidence: Understanding Self-Worth with MG

Tasha has always faced life’s challenges head-on. Diagnosed with MG at the young age of 6, she quickly learned the importance of self-confidence. At 29, an MG crisis pushed her to manage her health fr...

7 Aug 202435min

Untold Stories will be right back!

Untold Stories will be right back!

We’re taking a quick break in the season and will be back soon with new episodes! In the meantime, if you haven’t done so already, don’t forget to check out some of the episodes from seasons one and t...

26 Jun 202421s

Finding Resilience: Staying Strong with CIDP

Finding Resilience: Staying Strong with CIDP

Julie is no stranger to adversity. Diagnosed with CIDP at the age of 28, in the midst of motherhood and a full-time job as a special education teacher, Julie quickly found herself balancing it all whi...

12 Jun 202437min

Out of Loneliness: Finding Connection with MG

Out of Loneliness: Finding Connection with MG

Morgan found herself grappling with many feelings of loneliness and self-doubt on top of the overwhelming physical symptoms of her MG. Diagnosed in her mid-twenties, it felt like everything Morgan had...

29 Mai 202438min

Untold Stories is back for Season Three!

Untold Stories is back for Season Three!

Martine Hackett returns with season three of “Untold Stories”! This time, she delves deeper than ever into the heart of what it’s like to live with conditions like myasthenia gravis (MG) and chronic i...

22 Mai 20242min

Finding Your Pace: Building New Boundaries with MG

Finding Your Pace: Building New Boundaries with MG

Raymond, a retired designer, lived with HIV for 40 years before the onset of his myasthenia gravis (MG) symptoms. As a longtime caregiver for his mother, he was no stranger to the hospital visits and ...

14 Feb 202429min

Behind the Seams: Unraveling and Restitching Life with MG

Behind the Seams: Unraveling and Restitching Life with MG

Jacqueline, also known as Jacq, lived in New York City with big dreams of succeeding in the fashion industry. However, her life took a significant turn after she was diagnosed with myasthenia gravis (...

31 Jan 202434min

Understanding and Acceptance: Being an Active Partner in Your CIDP Treatment

Understanding and Acceptance: Being an Active Partner in Your CIDP Treatment

As a successful and resilient attorney, Rorey was blindsided by the onset of debilitating muscle weakness and fatigue. After months of countless tests, he found a sense of relief when doctors diagnose...

17 Jan 202433min

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