Season 1 | Episode 2: Lesley Part 1 - Feeling Lucky
CAH PULSE8 Dec 2023

Season 1 | Episode 2: Lesley Part 1 - Feeling Lucky

When Lesley's mom was unable to care for her, she was given up to the courts of England. Join Stephanie and Dina as Lesley shares her lowest of lows, love and loss, misinformation and surgeries she was never told why she had. Living most of her life unknowingly with CAH, Lesley’s is a story of survival, victory, resilience, giving back and feeling lucky.

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Avsnitt(23)

Season 3 | Episode 5: Allyson’s Journey: “Different is What Makes You Good”

Season 3 | Episode 5: Allyson’s Journey: “Different is What Makes You Good”

In this encouraging episode of CAH Pulse, Dina and Stephanie talk to Allyson who is gracefully navigating life with CAH. Allyson eagerly shares her journey from being diagnosed at birth to becoming an...

15 Juni 28min

Season 3 | Episode 4: From Patient to Pioneer: Julia Anthony Always Goes Big

Season 3 | Episode 4: From Patient to Pioneer: Julia Anthony Always Goes Big

Born with salt-wasting CAH before newborn screening existed, Julia Anthony spent much of her childhood, high school and even college days in hospitals dealing with adrenal crises; which did not stop h...

20 Maj 33min

Season 3 | Episode 3: A Mother’s Gut is Never Wrong - Becky’s Unexpected Journey

Season 3 | Episode 3: A Mother’s Gut is Never Wrong - Becky’s Unexpected Journey

In this powerful episode of CAH Pulse, Becky, shares her deeply personal journey navigating her newborn daughter’s unexpected CAH diagnosis. What was planned to be a joyful home birth turned into a wh...

7 Apr 34min

Season 3 | Episode 2: Lupe and Christina: Raising a CAH Superstar

Season 3 | Episode 2: Lupe and Christina: Raising a CAH Superstar

When Lupe’s daughter Christina was born, everything changed in an instant. After a difficult pregnancy and an unexpected diagnosis of CAH, Lupe found herself navigating a condition she had never heard...

14 Mars 30min

Season 3 I Episode 1: Karter - "You gotta just do it" - Insights Positivity and Advice from a Seventeen-Year-Old Salt Waster

Season 3 I Episode 1: Karter - "You gotta just do it" - Insights Positivity and Advice from a Seventeen-Year-Old Salt Waster

In this uplifting episode of CAH Pulse, Stephanie and Dina talk with the unflappable 17-year-old Karter, who shares his experiences as a high school student-athlete living with salt-wasting CAH. Karte...

23 Feb 35min

Season 2 I Episode 12: Non-Classical CAH - Fertility Treatment and the Importance of Genetic Testing

Season 2 I Episode 12: Non-Classical CAH - Fertility Treatment and the Importance of Genetic Testing

In this final episode of Season 2 - Stephanie and Dina are joined by leading CAH experts, Drs. Witchel and Auchus. This episode was made to provide a deeper understanding of the differences between sa...

30 Jan 30min

Season 2 l Episode 11: Dimitri: The Long Game of Drug Discovery

Season 2 l Episode 11: Dimitri: The Long Game of Drug Discovery

In this episode of CAH Pulse, host Stephanie Erb and CARES Foundation director Dina Matos sit down with distinguished scholar Dr. Dimitri Grigoriadis of Neurocrine Biosciences for a rare behind-the-sc...

2 Dec 202538min

Season 2 l Episode 10: Brittany: Demanding Change After a Lack of Answers and Getting Nowhere

Season 2 l Episode 10: Brittany: Demanding Change After a Lack of Answers and Getting Nowhere

In this uplifting episode, Stephanie and Dina speak to Brittany, an outspoken 29-year-old living with CAH. A self described "open book", Brittany shares her life's journey from her diagnosis as a todd...

17 Okt 202538min

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