Season 2 | Episode 2: Lydia: "I had no idea getting married and having children was a thing"
CAH PULSE3 Sep 2024

Season 2 | Episode 2: Lydia: "I had no idea getting married and having children was a thing"

In this episode of CAH Pulse, Stephanie and Dina speak with Lydia who was diagnosed with classic CAH at birth and although she received relatively good medical care from the start, she had little understanding about her condition. As a young adult, Lydia reveals that she foolishly decided to test the importance of taking her medication by eliminating it altogether.

She also explains how her world took a positive turn after college when she began speaking with a therapist and ultimately the CARES Foundation. For the first time in her life she was able to regularly meet and open up with women who are living with CAH which gave her a new appreciation, understanding and excitement for her future.

Today, Lydia's story includes a loving husband, a toddler son and a drive to help others with CAH so that they know that they too can live typical, full lives filled with milestones, hope and most of all love.

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Avsnitt(22)

Season 3 | Episode 4: From Patient to Pioneer: Julia Anthony Always Goes Big

Season 3 | Episode 4: From Patient to Pioneer: Julia Anthony Always Goes Big

Born with salt-wasting CAH before newborn screening existed, Julia Anthony spent much of her childhood, high school and even college days in hospitals dealing with adrenal crises; which did not stop h...

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Season 3 | Episode 3: A Mother’s Gut is Never Wrong - Becky’s Unexpected Journey

Season 3 | Episode 3: A Mother’s Gut is Never Wrong - Becky’s Unexpected Journey

In this powerful episode of CAH Pulse, Becky, shares her deeply personal journey navigating her newborn daughter’s unexpected CAH diagnosis. What was planned to be a joyful home birth turned into a wh...

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Season 3 | Episode 2: Lupe and Christina: Raising a CAH Superstar

Season 3 | Episode 2: Lupe and Christina: Raising a CAH Superstar

When Lupe’s daughter Christina was born, everything changed in an instant. After a difficult pregnancy and an unexpected diagnosis of CAH, Lupe found herself navigating a condition she had never heard...

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Season 3 I Episode 1: Karter - "You gotta just do it" - Insights Positivity and Advice from a Seventeen-Year-Old Salt Waster

Season 3 I Episode 1: Karter - "You gotta just do it" - Insights Positivity and Advice from a Seventeen-Year-Old Salt Waster

In this uplifting episode of CAH Pulse, Stephanie and Dina talk with the unflappable 17-year-old Karter, who shares his experiences as a high school student-athlete living with salt-wasting CAH. Karte...

23 Feb 35min

Season 2 I Episode 12: Non-Classical CAH - Fertility Treatment and the Importance of Genetic Testing

Season 2 I Episode 12: Non-Classical CAH - Fertility Treatment and the Importance of Genetic Testing

In this final episode of Season 2 - Stephanie and Dina are joined by leading CAH experts, Drs. Witchel and Auchus. This episode was made to provide a deeper understanding of the differences between sa...

30 Jan 30min

Season 2 l Episode 11: Dimitri: The Long Game of Drug Discovery

Season 2 l Episode 11: Dimitri: The Long Game of Drug Discovery

In this episode of CAH Pulse, host Stephanie Erb and CARES Foundation director Dina Matos sit down with distinguished scholar Dr. Dimitri Grigoriadis of Neurocrine Biosciences for a rare behind-the-sc...

2 Dec 202538min

Season 2 l Episode 10: Brittany: Demanding Change After a Lack of Answers and Getting Nowhere

Season 2 l Episode 10: Brittany: Demanding Change After a Lack of Answers and Getting Nowhere

In this uplifting episode, Stephanie and Dina speak to Brittany, an outspoken 29-year-old living with CAH. A self described "open book", Brittany shares her life's journey from her diagnosis as a todd...

17 Okt 202538min

Season 2 | Episode 9: Kristina: "We're going to call your baby...'Baby'" - Removing the Stigma from CAH

Season 2 | Episode 9: Kristina: "We're going to call your baby...'Baby'" - Removing the Stigma from CAH

In this touching episode, Stephanie and Dina speak to Kristina, a young mom to 2 little girls who's younger daughter lives with salt wasting CAH. Kristina recalls her journey from giving birth to Fran...

3 Sep 202542min

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