Episode 3 - Advocacy

Episode 3 - Advocacy

In this podcast we explore advocacy for children with special needs. Our special guest, Jane Friou, is on the Board of the Down Syndrome Association of Houston. Jane is the mother of an 18-year-old with Down syndrome and she has become a passionate advocate for individuals with intellectual and developmental disabilities. She shares her personal journey, from navigating early challenges to becoming a force for systemic change in education and healthcare. The discussion highlights the importance of parental advocacy, legal safeguards for special education, medical advocacy, and pushing for stronger individualized education plans (IEPs). The episode provides a wealth of resources and strategies for parents looking to navigate and improve the systems that impact their children’s lives.Links to additional content:

Jane's FB page - https://www.facebook.com/p/Houston-Special-Education-Parent-Association-Houston-SEPA-100069315881357/

The book Jane talked about - https://www.disabilityisnatural.com

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Episode 8: Father's Day - We're going to love him...

Episode 8: Father's Day - We're going to love him...

In this special Father’s Day episode of Down Syndrome: 21st Perspectives, hosts Anne Lewis, and Monique Johnson, and Leigh Frillici welcome a deeply personal guest—Anne’s husband, Jake Lewis—for a raw...

13 Juni 202549min

Episode 7: Batter up! West U. Challenger's Baseball

Episode 7: Batter up! West U. Challenger's Baseball

Batter up! Little League's Challenger Baseball is an adaptive baseball program that opens the world of baseball to children with disabilities. In this episode, cohosts Monique Johnson and Leigh Fril...

4 Juni 202525min

Episode 6: My Little Brother Has Down Syndrome

Episode 6: My Little Brother Has Down Syndrome

Monique Johnson and Anne Lewis' daughters share heartfelt stories about growing up with brothers who have Down syndrome. From tech troubles to spontaneous dance parties, they reflect on how their brot...

10 Maj 202547min

Episode 5 - A New Extraordinary

Episode 5 - A New Extraordinary

In this inspiring episode, Geralyn Spiesz, OT and founder of the Down Syndrome Action Plan, shares her journey from a Down syndrome diagnosis of her child in 2007 to becoming an advocate for brain-bas...

8 Apr 202547min

Episode 4 - Advocacy

Episode 4 - Advocacy

Family to Family Network’s Executive Director, Mary Jane Williams joins us to talk about navigating education and support systems for individuals with disabilities. The discussion includes navigating ...

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Episode 2 - Hope and Resilience

Episode 2 - Hope and Resilience

This episode features a heartfelt discussion about the emotional life of parents of kids with Down Syndrome. Anne and Monique explore their initial fears and anxieties that arose —concerns about their...

20 Mars 202546min

Episode 1 - Hello!

Episode 1 - Hello!

Welcome! In this first episode, we’ll talk about our goals for the podcast and what you can expect. Anne and Monique share their personal stories of learning in the hospital that their baby was born w...

20 Mars 202516min

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