You’re Not Alone: Finding Support with Epilepsy (Audio only)

You’re Not Alone: Finding Support with Epilepsy (Audio only)

We talk about what it’s really like to be a young person with epilepsy. We look at why some people feel alone, how to find support, and how building a community can help. We also talk about bullying, mental health, and how to get help when you need it.

In this episode:

  • Feeling Alone: Why so many young people with epilepsy feel isolated, and what can help.
  • Building Community: How making friends and joining groups can make life better.
  • Online Support: How you can get help and join in, wherever you live.
  • Real Stories: Young people share how meeting others changed their lives.
  • Bullying and Ignorance: Why it happens, and what we can do about it.
  • Mental Health: Why it matters, and where to find support.
  • Hope: You’re not alone—there’s always someone who understands.

NOTICE:

Epilepsy is different for everyone. What works for one person might not work for another. The stories and advice in this podcast are not medical advice. Always talk to a doctor or nurse for help that’s right for you.

If you’re feeling sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

Useful Links:

  • Young Epilepsy: https://www.youngepilepsy.org.uk/
  • Youth Support Services: https://www.youngepilepsy.org.uk/what-we-do/support-inclusion/youth-support
  • Info about epilepsy: https://www.youngepilepsy.org.uk/about-epilepsy

Social Media:

  • X: https://x.com/youngepilepsy/
  • Facebook: http://facebook.com/YoungEpilepsy
  • Instagram: https://www.instagram.com/youngepilepsy/
  • YouTube: https://www.youtube.com/user/youngepilepsy
  • LinkedIn: https://www.linkedin.com/company/young-epilepsy/
  • TikTok: https://www.tiktok.com/@youngepilepsy/

Contact: communications@youngepilepsy.org.uk

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(14)

Epilepsy and Us: Sibling Stories

Epilepsy and Us: Sibling Stories

In this episode, Ree is joined by Milla, a young person with epilepsy, and her brother Harry to talk honestly about sibling experiences. They share what it’s like growing up with epilepsy in the famil...

13 Maj 1h 12min

Introduction to: Harder to Manage Epilepsy

Introduction to: Harder to Manage Epilepsy

In this episode, we introduce Harder to Manage Epilepsy, a new podcast series from Young Epilepsy exploring the challenges faced by children, young people and families living with epilepsies that don’...

22 Apr 44min

Can I drive with epilepsy?

Can I drive with epilepsy?

In this episode, we talk about epilepsy and driving, and what it means for young people. Host Ellie is joined by Chris McCarthy and Elina from Young Epilepsy’s Youth Voice Network to explore the reali...

1 Apr 45min

What I wish I knew when I was diagnosed (Audio only)

What I wish I knew when I was diagnosed (Audio only)

We explore what young people wish they’d known when they were first diagnosed with epilepsy. Host Olivia sits down with Jasmine and Renell from the Youth Voice Network to share honest stories about th...

3 Dec 202523min

Diagnosis and Emerging Technologies (Audio only)

Diagnosis and Emerging Technologies (Audio only)

We dive into the emotional journey of getting an epilepsy diagnosis. Host Kirsten McHale chats with Professor Mark Richardson, Dr Colin Dunkley, and Spencer from the Youth Voice Network. They talk abo...

19 Nov 20251h 17min

A parent's journey with childhood epilepsy - Sarah and Lexi (Audio only)

A parent's journey with childhood epilepsy - Sarah and Lexi (Audio only)

This episode explores the emotional journey of getting an epilepsy diagnosis for children and young people. Host Kirsten McHale speaks with Sarah, who shares her personal experience as a parent naviga...

5 Nov 202532min

Hear Her Voice – Exploring the impact of epilepsy on women and girls (Audio only)

Hear Her Voice – Exploring the impact of epilepsy on women and girls (Audio only)

In our first LIVE episode, renowned broadcaster, Edith Bowman hosts a powerful panel discussion with Netflix and Hollyoaks actor Ellie Henry, Fashion PR Hum Fleming, and student Mariam Hussain who sha...

14 Okt 20251h 31min

Joe's seizures (Audio only)

Joe's seizures (Audio only)

In this episode, we break down what seizures are and what they can look like. With help from healthcare professionals and real-life stories, we explain the different types of seizures in a way that’s ...

8 Okt 202544min

Populärt inom För unga lyssnare

rss-fran-blojor-till-brollop
badfluence
magiska-godnattsagor
lojsan-buster
rss-vuxna-pa-latsas
the-power-meeting-podcast
rss-2under2
rss-jossan-nina
dilemma-2
godnattstund
tabberaset
mammasanningar-med-vivi-och-carin
rss-foraldramotet-bring-lagercrantz
fatta-familjen
rss-hastnetpodden
rss-pennys-parenting
rss-skilsmassopodden
rss-angra-inget-3
rss-pa-insidan-med-bjorn-rudman
rss-sagor-med-saga