How Chronic Illness Redefines What Actually Matters, with Tara Rule

How Chronic Illness Redefines What Actually Matters, with Tara Rule

This week on Calling in Sick, I’m joined by actor, content creator, and disability rights advocate Tara Rule for an honest, existential conversation about what happens when you come face-to-face with your own mortality… and decide to stop waiting for permission to live. Tara and I talk about how chronic illness forces so many of us to grow up early, reckon with uncertainty, and hit emotional rock bottom. And that from those experiences and downward spirals, you can come to realize that we have nothing to lose by finally chasing the lives and creative careers we want. From content creation to acting, we explore why so many chronically ill people end up in creative spaces, and how “rock bottom” often becomes a strange kind of launch point. We also unpack the full spectrum of chronic illness content… from crash-out creators to toxic positivity… and why all of it matters. Because the chronic illness journey isn’t linear, and neither is healing, ambition, or success. This episode is about holding gratitude for simply being here today and allowing yourself to want more. xx, Alex 💬 Comment: What’s something you’re no longer waiting for permission to want? Substack EXCLUSIVES! This week, only our Substack subscribers will hear our two cents on what we would have changed in our early diagnosis days, when we knew it was time to quit our 9-5 jobs, and how I’m preparing to make motherhood more sustainable and accessible with chronic illness. Subscribe to our Substack here: https://substack.com/@callinginsickpod TIMESTAMP: Intro: 00:00:00 Welcome back to Calling in Sick! 00:01:01 Alex Catch Up 00:04:17 Episode Sneak Peak Housekeeping, and Substack Info 00:06:17 Alex’s Picks (Sacheu Lip Liner & Thrive Causemetics) Tara Rule is Calling in Sick: 00:08:27 Intro to Tara 00:15:45 Tara’s career shifts (mortuary school, content creating, acting) 00:17:27 How a near death experience changed EVERYTHING 00:32:09 Why it’s important to have different voices that paint the full picture of chronic illness 00:37:45 How Tara handles masking (or not masking) chronic illness for her career 00:42:40 Why is there SUCH a pipeline for chronic illness fighters to the creative space 00: 45:35 The fear of flaring versus the fear of disappointing others 00:47:16 How powerful our brains are 00:50:07 Navigating redefining success with a chronic illness Conclusion: 00:58:13 One Brain Cell Show (Stranger Things (Netflix), Telepathy Tapes (Spotify); Haunted Hotel (Netflix) and Heated Rivalry (Prime)) 01:03:16 Thank you for listening!! ---------------------------------------------------------------- Stay connected and follow us on socials for more! • Instagram - https://www.instagram.com/callinginsickpod/ • TikTok - https://www.tiktok.com/@callinginsickpod • Facebook - https://www.facebook.com/profile.php?id=61558234607568 • Substack - https://substack.com/@callinginsickpod? ---------------------------------------------------------------- Powered by: Just Media House -- https://www.justmediahouse.com/ Produced by: Alexandra Wildeson — https://www.instagram.com/alexandrawildeson/ Alex’s Picks of the Week: My go to passive wellness picks, in food form!! ✨Sacheu Lip Liner — https://go.shopmy.us/p-38126238 —> ALEXANDRA15 for 15% off ✨Thrive Causemetic’s Plumping Lip gloss — https://go.shopmy.us/p-38126276 Connect with Tara Rule • Instagram - https://www.instagram.com/tara_rule_/?hl=en\ • TikTok - https://www.tiktok.com/@tara_rule #ChronicIllness #InvisibleIllness #SpoonieLife #DisabilityAwareness #ChronicPain #RedefiningSuccess #LifeAfterDiagnosis #WorkingWithChronicIllness #CallingInSickPodcast #AlexWildeson #SickGirlSoftLiving #SoftLiving #tararule #neardeathexperience #rockbottom #lifepivots Learn more about your ad choices. Visit megaphone.fm/adchoices

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Avsnitt(141)

Do you have to accept your chronic illness to live your life? (Ft. Cheryl Crow)

Do you have to accept your chronic illness to live your life? (Ft. Cheryl Crow)

This week on Calling in Sick, I'm sitting down with Cheryl Crow — occupational therapist, founder of Arthritis Life, host of the Arthritis Life podcast, creator of the Rheum to THRIVE course, and some...

5 Okt 1h 7min

 Bikini Medicine, Clinical Trial Gaps & Companies Changing the Game  ft. Amanda Berk

Bikini Medicine, Clinical Trial Gaps & Companies Changing the Game ft. Amanda Berk

This Wednesday on Calling in Sick, Amanda Berk is back for and we are getting into the systemic conversation underneath everything we talked about on Monday. Why the healthcare system keeps failing wo...

30 Sep 44min

Patient Advocacy: One Thing Every Chronically Ill Woman Needs (ft. Amanda Berk)

Patient Advocacy: One Thing Every Chronically Ill Woman Needs (ft. Amanda Berk)

This week on Calling in Sick, I'm sitting down with my dear friend Amanda Berk — co-founder and Chief Operating Officer of LIORA Health, dual Master's candidate in Social Work and Public Health at UT ...

28 Sep 58min

Why Hypermobility and hEDS is NOT Just Flexibility: Mythbusting with Dr. Linda Bluestein

Why Hypermobility and hEDS is NOT Just Flexibility: Mythbusting with Dr. Linda Bluestein

This week on Calling in Sick, Dr. Linda Bluestein is mythbusting the biggest hypermobility and hEDS misconceptions circulating online right now!! Some of these are coming from well-meaning patients. S...

23 Sep 30min

The 411 on Hypermobility + why it’s NOT just flexibility (ft. Dr. Linda Bluestein)

The 411 on Hypermobility + why it’s NOT just flexibility (ft. Dr. Linda Bluestein)

This week on Calling in Sick, I'm sitting down with THE Dr. Linda Bluestein (!!!). She’s a board-certified physician, hypermobility specialist, host of the Bendy Bodies podcast, and someone who didn't...

21 Sep 1h 20min

How a #1 NYT-Bestselling Author Manages Chronic Pain, Deadlines & a Hulu Deal (ft. Sheila Masterson)

How a #1 NYT-Bestselling Author Manages Chronic Pain, Deadlines & a Hulu Deal (ft. Sheila Masterson)

This week on Calling in Sick, #1 NYT-Best Selling author, Sheila Masterson (The Poison Daughter), is back to talk about the ONE thing I think every chronically ill person who has ever tried to build a...

16 Sep 50min

Chronic Illness in Media & Entertainment with Author, Sheila Masterson (The Poison Daughter)

Chronic Illness in Media & Entertainment with Author, Sheila Masterson (The Poison Daughter)

This week on Calling in Sick, I'm sitting down with Sheila Masterson — #1 New York Times bestselling author of The Poison Daughter, a fantasy-romance novel that has taken the chronic illness and roman...

14 Sep 1h 14min

Revisit: Motherhood with Chronic Illness (ft. Cortney Gensemer)

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This week on Calling in Sick, we are RE-RELEASING a fan favorite!!! I was joined by Cortney Gensemer, PhD - scientist, chronic illness patient and mom - to talk about the questions so many of us with ...

9 Sep 1h 6min

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