Episode 446: MS Advocacy and the National MS Society's Public Policy Conference with Steffany Stern
RealTalk MS16 Mars

Episode 446: MS Advocacy and the National MS Society's Public Policy Conference with Steffany Stern

175 MS activists are heading to Washington, D.C. next week for the National MS Society's Public Policy Conference. Their mission: to bring the concerns of the MS community directly to lawmakers on Capitol Hill.

When it comes to the legislative support for healthcare and medical research, it's no secret that these are unusual times. Joining me to brief us on the National MS Society's ongoing advocacy efforts and give us a sneak peek at the specific legislative issues we'll be taking to Capitol Hill is the National MS Society's Vice President of Advocacy, Steffany Stern.

We'll also share updated results from an important study that show the risk of developing MS if a close relative is living with the disease is significantly higher than researchers originally thought.

And we'll give you all the details of a Phase 1 clinical trial that's focused on a novel approach to CAR-T cell therapy for MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Preparing for the MS Society's Public Policy Conference :22

I'm asking for your support: 1:37

An update to a 2015 study shows close relatives of people living with MS are 100 times more likely than the general population to develop MS 2:15

A novel approach to CAR-T cell therapy for MS is recruiting for a Phase 1 clinical trial 4:26

Steffany Stern, the Vice President of Research at the National MS Society, shares a major advocacy win and previews next week's Public Policy Conference in Washington, D.C. 7:27

Share this episode 33:04

Next week 33:25

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/446

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Support Jon at WALK MS
https://realtalkms.com/walkms

JOIN: Become an MS Activist
https://nationalmssociety.org/advocacy

STUDY: A Prospective Study of Individuals at Risk of Multiple Sclerosis Informs the Design of Primary Prevention Studies
https://onlinelibrary.wiley.com/doi/10.1002/acn3.70340

GEMS Study Recruitment
https:/nationalmssociety.org/news-and-magazine/news/ms-study-alert-gems

RealTalk MS Ep. 439: Preventing MS with Dr. Bruce Bebo
https://realtalkms.com/439

PARTICIPATE: A Study to Assess the Safety and Clinical of Azer-cel in Participants with B-cell Mediated Autoimmune Disorders
https://clinicaltrials.gov/study/NCT06680037/#contacts-and-locations

JOIN: The RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

REVIEW: Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 446
Guests: Steffany Stern

Privacy Policy

Avsnitt(505)

Episode 451: Meet the 2026 Winner of the John Dystel Prize for MS Research with Dr. Ludwig Kappos

Episode 451: Meet the 2026 Winner of the John Dystel Prize for MS Research with Dr. Ludwig Kappos

The annual meeting of the American Academy of Neurology is underway in Chicago this week, and one of the highlights is the presentation of the John Dystel Prize for Research in Multiple Sclerosis, awa...

20 Apr 32min

Episode 450: Exercise is Medicine for People with MS with Dr. Robert Motl

Episode 450: Exercise is Medicine for People with MS with Dr. Robert Motl

An exercise program can be hard to start and even more difficult to stick with. But the evidence-based benefits speak for themselves. For people living with MS, it can mean improving quality of life w...

13 Apr 33min

Episode 449: Putting People Affected by MS at the Center of MS Research with Sara Loud, Stephanie Buxhoeveden, and Hollie Schmidt

Episode 449: Putting People Affected by MS at the Center of MS Research with Sara Loud, Stephanie Buxhoeveden, and Hollie Schmidt

When you join the iConquer MS community, you're no longer just a patient; you become a research partner. Not just a data point in someone's study. You become the person to suggest the study, to help d...

6 Apr 37min

Episode 448: At the National MS Society's Public Policy Conference with David, Cliff, and Michelle

Episode 448: At the National MS Society's Public Policy Conference with David, Cliff, and Michelle

Last week, about 170 MS activists from across the country gathered in Washington, D.C. to participate in the National MS Society's Public Policy Conference. It's hard to come away from this event and ...

30 Mars 31min

Episode 447: Walking with Many Sisters Toward a Cure with Brigitte Delaney

Episode 447: Walking with Many Sisters Toward a Cure with Brigitte Delaney

In 1988, there were just 42 Walk MS events, raising approximately $4 million. In 2025, there were 170 events across the country that raised over $30 million. As the largest private funder of MS resear...

23 Mars 23min

Episode 445: It's MS Awareness Week with Kristine Werner Ozug and Kim, Kim, and Kim

Episode 445: It's MS Awareness Week with Kristine Werner Ozug and Kim, Kim, and Kim

It's MS Awareness Week, and this year we're diving into a theme that hits home for millions: Unseen MS. Multiple sclerosis is a master of disguise; it can be entirely invisible to the naked eye while ...

9 Mars 40min

Episode 444: Treating MS with a GLP-1 with Dr. Ellen Mowry

Episode 444: Treating MS with a GLP-1 with Dr. Ellen Mowry

You know them by their trade names such as Ozempic, Wegovy, Mounjaro, and Zepbound. This class of medications is known as GLP-1 receptor agonists. And while they are best known for managing diabetes a...

2 Mars 31min

Populärt inom Hälsa

somna-med-henrik
rss-bara-en-till-om-missbruk-medberoende-2
rss-jossan-nina
inga-beiga-morsor
angestpodden
alska-oss
not-fanny-anymore
johannes-hansen-podcast
sexnoveller-deluxe
rss-vuxna-pa-latsas
rss-viktmedicinpodden
sa-in-i-sjalen
brottarbroder
sova-med-dan-horning
rss-sjalsligt-avkladd
rss-the-house-podcast-3
tyngre-radio
smartare-fitness-podden
rss-basta-livet
rss-the-house-podcast-4