Episode 449: Putting People Affected by MS at the Center of MS Research with Sara Loud, Stephanie Buxhoeveden, and Hollie Schmidt

When you join the iConquer MS community, you're no longer just a patient; you become a research partner. Not just a data point in someone's study. You become the person to suggest the study, to help define the study, and to participate in sharing the outcome of the study.

In this week's episode, I talk with the iConquer MS leadership team about what it means to be part of this people-powered research revolution and how iConquer MS keeps people affected by MS at the center of MS research.

The National Institutes of Health has just published a Strategic Plan for Disability Health Research. We're sharing all the details.

And a research team analyzed data from 20 global studies to determine whether anti-CD20 disease-modifying therapies (Ocrevus, Kesimpta, Briumvi) were cost-effective. We're sharing their somewhat surprising results.

And a research team analyzed data from 20 global studies to determine whether anti-CD20 disease-modifying therapies (Ocrevus, Kesimpta, Briumvi) were cost-effective. We're sharing their somewhat surprising results.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: We're talking about people-powered MS research :22

The NIH has published a Strategic Plan for Disability Health Research 1:15

Researchers determine whether anti-CD20 disease-modifying therapies (Ocrevus, Kesimpta, Briumvi) are cost-effective 6:05

Sara Loud, Stephanie Buxhoeveden, and Hollie Schmidt discuss what it means to put people affected by MS at the center of MS research 12:41

Share this episode 36:26

Next week 36:45

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com

iConquer MS
https://iconquerms.org

National Institutes of Health Strategic Plan for Disability Health Research
https://dpcpsi.nih.gov/disabilityhealthresearch

STUDY: Economic Value of Anti-CD20 Therapies in Multiple Sclerosis: A Systematic Review of Cost-Effectiveness Studies
https://journals.sagepub.com/doi/10.1177/17562864261426816

AbleNOW
https://ablenow.com

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RealTalk MS Episode 449
Guests: Sara Loud, Stephanie Buxoeveden, and Hollie Schmidt

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