The Conversation Chronic Illness Patients Are Terrified to Have With Family (ft. Shamekka Marty)

The Conversation Chronic Illness Patients Are Terrified to Have With Family (ft. Shamekka Marty)

In this Calling in Sick x Ask Alex, I’m joined by Shamekka Marty to discuss the deeply personal and often invisible impact of living with chronic illnesses… how the diagnosis and disease ripples through every aspect of life and relationships. From the way your children see you to the difficult conversations you have with your employer regarding your health. We cover: 💜 Parenting with chronic illness: how to educate your children without passing on trauma or fear 🤝 The "Village" Effect: how the diagnosis hits the patient and the entire support system 👨‍👧 Chronic Illness Guilt: navigating complex family dynamics and the heavy emotional toll on parents of sick children 🛑 Stop the Flake: how to communicate with friends when your body and mind aren't in sync 🏢 Chronic Illness in the Workplace: the urgent need for empathy training and why you shouldn't be afraid to ask for accommodations Living with a chronic illness means balancing the roles of parent, professional, and patient all at once. Whether you're struggling with "the guilt of being sick" or trying to build a workplace that understands your value, this conversation offers the validation and tools you need to lead a "big life" while managing a disease xx, Alex 💬 Comment: What was the hardest "village" conversation you’ve had to have regarding your health? ---------------------------------------------------------------- Stay connected and follow us on socials for more! • Instagram - https://www.instagram.com/callinginsickpod/ • TikTok - https://www.tiktok.com/@callinginsickpod • Facebook - https://www.facebook.com/profile.php?id=61558234607568 • Substack - https://substack.com/@callinginsickpod? Connect with our guest, Shamekka Marty! • Instagram - https://www.instagram.com/prettysicklupuschick/ • Book her for an event - https://www.shamekkamarty.com/ ---------------------------------------------------------------- Powered by: Just Media House -- https://www.justmediahouse.com/ Produced by: Alexandra Wildeson — https://www.instagram.com/alexandrawildeson/ Alex’s Picks of the Week: We talk about some unthinkable medical traumas this week. And TBH, the only thing I’ve found that “helps” is sometimes a GOOD cozy set. Here are some of my FAVES! ✨Mayfair — https://go.shopmy.us/p-21675540 ALEXANDRA15 for 15% off!! ✨Organic Basics — https://go.shopmy.us/p-52216380 ALEXANDRA10 for 10% off! AND! Ever since Coop and I jumped into our TTC era, I’ve been looking to add new tools to my toolbox for managing chronic illness symptoms and chronic pain. After researching what platforms were out there for this, I decided to partner with Healthnix, the only platform that is built BY chronic pain patients, FOR chronic pain patients! If you’d like to join me for the next 12-weeks in dialing in my nutrition in the name of pain relief… be sure to use the below link AND use my $100-off discount code!! ✨Healthnix — https://healthnix.io/ ✨CODE: ALEX100 for $100 off the annual membership (typically $299)… FSA / HSA eligibile #CallingInSickPodcast #AlexWildeson #LupusAwareness #ChronicIllness #AutoimmuneDisease #LupusWarrior #PatientAdvocacy #KidneyTransplant #OrganDonation #MedicalGaslighting #MaternalHealth #HealthcareDisparities #MekkaMarty #shamekkamarty #PrettySickLupusChick #CallingInSickPod #SpoonieCommunity #InvisibleIllness #HealthEquity #EmpoweredPatient #MedicalRecordAudit #ChronicPainWarriors #LupusSupport #SpoonieSupport #racialbias Learn more about your ad choices. Visit megaphone.fm/adchoices

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Avsnitt(140)

 Bikini Medicine, Clinical Trial Gaps & Companies Changing the Game  ft. Amanda Berk

Bikini Medicine, Clinical Trial Gaps & Companies Changing the Game ft. Amanda Berk

This Wednesday on Calling in Sick, Amanda Berk is back for and we are getting into the systemic conversation underneath everything we talked about on Monday. Why the healthcare system keeps failing wo...

30 Sep 44min

Patient Advocacy: One Thing Every Chronically Ill Woman Needs (ft. Amanda Berk)

Patient Advocacy: One Thing Every Chronically Ill Woman Needs (ft. Amanda Berk)

This week on Calling in Sick, I'm sitting down with my dear friend Amanda Berk — co-founder and Chief Operating Officer of LIORA Health, dual Master's candidate in Social Work and Public Health at UT ...

28 Sep 58min

Why Hypermobility and hEDS is NOT Just Flexibility: Mythbusting with Dr. Linda Bluestein

Why Hypermobility and hEDS is NOT Just Flexibility: Mythbusting with Dr. Linda Bluestein

This week on Calling in Sick, Dr. Linda Bluestein is mythbusting the biggest hypermobility and hEDS misconceptions circulating online right now!! Some of these are coming from well-meaning patients. S...

23 Sep 30min

The 411 on Hypermobility + why it’s NOT just flexibility (ft. Dr. Linda Bluestein)

The 411 on Hypermobility + why it’s NOT just flexibility (ft. Dr. Linda Bluestein)

This week on Calling in Sick, I'm sitting down with THE Dr. Linda Bluestein (!!!). She’s a board-certified physician, hypermobility specialist, host of the Bendy Bodies podcast, and someone who didn't...

21 Sep 1h 20min

How a #1 NYT-Bestselling Author Manages Chronic Pain, Deadlines & a Hulu Deal (ft. Sheila Masterson)

How a #1 NYT-Bestselling Author Manages Chronic Pain, Deadlines & a Hulu Deal (ft. Sheila Masterson)

This week on Calling in Sick, #1 NYT-Best Selling author, Sheila Masterson (The Poison Daughter), is back to talk about the ONE thing I think every chronically ill person who has ever tried to build a...

16 Sep 50min

Chronic Illness in Media & Entertainment with Author, Sheila Masterson (The Poison Daughter)

Chronic Illness in Media & Entertainment with Author, Sheila Masterson (The Poison Daughter)

This week on Calling in Sick, I'm sitting down with Sheila Masterson — #1 New York Times bestselling author of The Poison Daughter, a fantasy-romance novel that has taken the chronic illness and roman...

14 Sep 1h 14min

Revisit: Motherhood with Chronic Illness (ft. Cortney Gensemer)

Revisit: Motherhood with Chronic Illness (ft. Cortney Gensemer)

This week on Calling in Sick, we are RE-RELEASING a fan favorite!!! I was joined by Cortney Gensemer, PhD - scientist, chronic illness patient and mom - to talk about the questions so many of us with ...

9 Sep 1h 6min

Revisit: The 411 on Chronic Illness Research (ft. Cortney Gensemer, PhD)

Revisit: The 411 on Chronic Illness Research (ft. Cortney Gensemer, PhD)

This week on Calling in Sick, we are RE-RELEASING a fan favorite!!! I got to sit down with someone who lives this chronic illness life from both sides of the equation… Cortney Gensemer, PhD is a scien...

7 Sep 1h 26min

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