Making the Most of Smaller Population Samples: Qualitative Insights in Rare Disease
LifeSci Talks23 Maj 2025

Making the Most of Smaller Population Samples: Qualitative Insights in Rare Disease

In this episode of LifeSci Talks, Mark Wade, Global Practice Leader at TransPerfect Life Sciences, sits down with Dr. Kate Williams, Director of Patient-Centred Outcomes Research at Acaster Lloyd, to explore the nuances of gathering and applying qualitative data in rare disease research. From intaking both the patient and caregiver experience using a narrative approach, to qualitatively describing the experience of living in different disease states, the two focus on the importance of capturing the patient experience beyond the numbers. Tune in and hear about how partnering with patient organizations can help amplify findings across various channels in ways that make sense to every stakeholder, from regulator to clinician to patient. Bonus resource: Check out the paper Dr. Kate Williams references on AADC in the episode here!

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Avsnitt(29)

Why eConsent Still Isn’t Standard in Clinical Trials—and What Could Change That

Why eConsent Still Isn’t Standard in Clinical Trials—and What Could Change That

In this episode of LifeSci Talks, Mark Wade, Global Practice Leader at TransPerfect Life Sciences, sits down with Edwin Cohen, Principal Consultant at C&Flow, to talk about eConsent adoption in clinic...

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Nothing Remains the Same: Why Measures Have to Evolve

Nothing Remains the Same: Why Measures Have to Evolve

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Are We Sacrificing Good for Perfect in Clinical Outcome Assessment?

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In this episode of LifeSci Talks, Mark Wade, Global Practice Leader at TransPerfect Life Sciences, sits down with Stacie Hudgens, Chief Scientific and Strategy Officer at Clinical Outcome Solutions, t...

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More Than an Aspiration: Building a Patient-Centric Evidence Strategy That Lasts

More Than an Aspiration: Building a Patient-Centric Evidence Strategy That Lasts

In this episode of LifeSci Talks, Mark Wade, Global Practice Leader at TransPerfect Life Sciences, sits down with Lina Eliasson PhD CPsycho, Founding Partner at Sprout Health Solutions, to discuss how...

23 Mars 23min

Building Fit-for-Purpose PRO Instruments: Focused Modern Measures Over General Instruments

Building Fit-for-Purpose PRO Instruments: Focused Modern Measures Over General Instruments

In this episode of LifeSci Talks, Mark Wade, Global Practice Leader & COA SME at TransPerfect Life Sciences, is joined by Katja Rudell, VP of Patient-Centered Outcomes at Kielo Research, to take a beh...

10 Feb 20min

Meaningful patient involvement in HTA decision making: where do we go from here?

Meaningful patient involvement in HTA decision making: where do we go from here?

In this episode of LifeSci Talks, Mark Wade, Global Practice Leader at TransPerfect Life Sciences, sits down with Alice Biggane, Outcomes Innovation and Research Lead at Pfizer UK, to discuss how vari...

7 Okt 202519min

Silver Bullet or Useful Repositories: The Reality of Clinical Trial Libraries

Silver Bullet or Useful Repositories: The Reality of Clinical Trial Libraries

In this episode of LifeSci Talks, Mark Wade, Global Practice Leader at TransPerfect Life Sciences, is joined by Jonathan Norman, Director of Translation and Localization at YPrime, for an in-depth dis...

11 Sep 202519min

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