ADHD, AuDHD, and self-diagnosis: Is it valid?

Is ADHD self-diagnosis valid? According to clinical psychologist Dr. Elizabeth Kilmer, that’s the wrong question entirely. When access to diagnosis is limited by cost, insurance, stigma, and identity — and when the people who self-diagnose show higher rates of negative self-image and internalized stigma — the real conversation isn’t about validity. It’s about how we make sure people have access to good information.

Cate and Dr. Kilmer dig into what really happens when people research their own neurodivergence. They discuss research analyzing 452,000 Reddit posts that found self-diagnosed individuals seek more social validation. But they benefit less from it.

They cover what actually happens in a clinical ADHD assessment and how comorbidities like anxiety, depression, and OCD complicate the picture. And they discuss why the question “Is self-diagnosis valid?” misses the point when getting a formal diagnosis is a privilege that many can’t access.

For more on this topic

• Read: Missed, misread, misdiagnosed: Current state of women with ADHD
• Listen: Is ADHD online diagnosis legit?

For a transcript and more resources, visit Sorry, I Missed This on Understood.org. You can also email us at sorryimissedthis@understood.org.

As kids head back to school, it's a good time to remember: not every student experiences the classroom the same way. Through My Eyes, a free interactive experience from Understood, lets you step into a day in the life of a kid with ADHD, dyslexia, or dyscalculia. See their strengths and challenges in a whole new way. Try it out here.

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