POTS, EDS & Hypermobility: What Patients and Parents Need to Know with Dr. Cohen Solomon

POTS, EDS & Hypermobility: What Patients and Parents Need to Know with Dr. Cohen Solomon

What is the connection between POTS, hypermobile Ehlers-Danlos syndrome (hEDS), and hypermobility?

In this episode, I sit down with Dr. Cohen Solomon, board-certified pediatrician, educator, and patient living with hEDS and dysautonomia. We discuss the overlap between POTS, EDS, chronic pain, fatigue, GI symptoms, and why so many patients struggle to find answers.

We also talk about recognizing early signs of hypermobility, building the right healthcare team, advocating for yourself, and why validation matters when living with a complex chronic illness.

Whether you're a patient, parent, or healthcare provider, this episode offers practical insights and hope for navigating the journey.

Follow Dr. Solomon: @thebendypediatrician

Learn More: https://thebendypediatrician.com/


Connect with Us:

⁠⁠⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠⁠⁠

Facebook: The POTS Life

Instagram: @thepotslife_

Tik Tok: thepotslife


Timestamps

  • 00:00 Introduction
  • 03:16 Living with hEDS & Dysautonomia
  • 05:43 Early Signs of Hypermobility in Children
  • 10:36 Understanding EDS & Hypermobility
  • 12:14 Pain, Fatigue & Invisible Illness
  • 22:32 The Connection Between POTS & EDS
  • 23:22 Why Patients Need a Healthcare "Quarterback"
  • 28:58 GI Symptoms, Dysmotility & EDS
  • 31:51 The Importance of Validation
  • 33:51 Building the Right Care Team
  • 36:33 Tips for Advocating for Yourself
  • 41:40 The UVA EDS & Hypermobility Clinic
  • 46:05 Advice for Newly Diagnosed Patients
  • 47:20 Finding Hope

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(55)

POTS, Advocacy, and The Dysautonomia Workbook with Joanna Behm

POTS, Advocacy, and The Dysautonomia Workbook with Joanna Behm

In this episode of Let’s Talk About The POTS Life, we sit down with Joanna Behm, occupational therapist, dysautonomia advocate, and co-author of The Dysautonomia Workbook. Joanna shares her personal j...

19 Maj 26min

What to Do After a POTS Diagnosis (Electrolytes, Exercise, and Common Mistakes)

What to Do After a POTS Diagnosis (Electrolytes, Exercise, and Common Mistakes)

If you’ve recently been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome), it can feel overwhelming figuring out what actually helps.In this episode, we break down what to focus on early...

5 Maj 21min

Pelvic Floor Dysfunction and POTS

Pelvic Floor Dysfunction and POTS

GI symptoms, pain clues, and why a consult mattersIn this episode of Let’s Talk About the POTS Life, we break down the connection between POTS and pelvic floor dysfunction and why it’s often overlooke...

23 Apr 15min

From Surviving to Living Again: A POTS Life Graduate’s Journey

From Surviving to Living Again: A POTS Life Graduate’s Journey

In this episode of Let’s Talk About the POTS Life, we sit down with Veronica, a POTS Life graduate now in our graduate program, to talk about her journey from simply surviving to truly living again.Ve...

31 Mars 35min

What Makes The POTS Life Treatment Program Different

What Makes The POTS Life Treatment Program Different

In this episode of Let’s Talk About The POTS Life, we walk through the philosophy behind the POTS Life treatment program and why it’s structured the way it is.We talk about the importance of a lower-a...

17 Mars 18min

Is The POTS Life Program Safe for CFS, EDS & Severe Fatigue?

Is The POTS Life Program Safe for CFS, EDS & Severe Fatigue?

In this Q&A episode of Let’s Talk About The POTS Life, we’re answering one of the biggest questions we get:Is The POTS Life Program safe if I have chronic fatigue syndrome, fibromyalgia, EDS, or sever...

3 Mars 13min

Living with POTS: What It’s Like for a Spouse | Dysautonomia & Chronic Illness Support

Living with POTS: What It’s Like for a Spouse | Dysautonomia & Chronic Illness Support

What is it really like to love someone living with POTS and dysautonomia?In this episode of Let’s Talk About The POTS Life, my husband Cale shares what it was like watching me navigate years of undiag...

27 Feb 37min

Populärt inom Hälsa

somna-med-henrik
rss-bara-en-till-om-missbruk-medberoende-2
rss-vuxna-pa-latsas
inga-beiga-morsor
not-fanny-anymore
sexnoveller-deluxe
johannes-hansen-podcast
angestpodden
rss-viktmedicinpodden
sa-in-i-sjalen
brottarbroder
sova-med-dan-horning
medicinvetarna
sex-pa-riktigt-med-marika-smith
tyngre-traningssnack
rss-activation-podcast
rss-jossan-nina
rss-paus-guidade-meditationer
prestera-mera-by-umara
rss-fet-fakta-podcast