Lisa Duerre on Workplace Advocacy, and Navigating Lipedema Care

Lisa Duerre on Workplace Advocacy, and Navigating Lipedema Care

Hosts Cindy and Kristy, welcome guest Lisa Duerre, a CEO of RLD Group a leadership alignment consulting firm, and lipedema advocate.

Lisa shares being late-diagnosed in 2022 after losing mobility and using a scooter, learning about lipedema from her stepmom’s research, and rebuilding her health through conservative therapies, including swimming and wheelchair assistance during airport travel.

She discusses advocating through storytelling rather than directly labeling others, the benefits and risks of social media, and frustrations with limited access to CLT/CDT/MLD care, long waitlists, and out-of-pocket costs.

Lisa recounts a planned Germany surgery canceled due to anesthesia safety concerns tied to BMI and cardio capacity, prompting weight loss and a reassessment of surgery. She emphasizes small actions, community support, requesting help, workplace accommodations, anti-fat bias resources (NAAFA, Aubrey Gordon), and notes research citing a high correlation between lipedema and ADHD.00:00 Welcome to the Show01:39 Meet Lisa Duerre03:09 Late Diagnosis and Mobility05:00 Stepmom Sparks Discovery06:40 How to Tell Others10:57 Social Media and Scams14:02 Surgery Plans Canceled17:34 Getting Diagnosed Locally20:43 Finding MLD and CDT Care24:43 Small Steps and Resilience27:57 Asking Family for Help32:04 Knee Pain Misdiagnosis33:24 Caregiver Perspective Shift34:58 Advocating Travel Needs37:24 Accessibility In Seating41:14 Airline Policies And Bias43:09 Anti Fat Bias Resources45:34 Community And Burnout47:39 Finding Gifts In Diagnosis50:51 ADHD Link And Superpower54:36 Closing And Where To Find Lisa56:18 Episode Wrap Up

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Kristy's Contact information:

IG⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠https://www.instagram.com/dellalunawellness/⁠⁠⁠

FB Group⁠⁠⁠⁠ ⁠⁠https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr⁠⁠⁠⁠⁠⁠

Website Kristy Dellacroce, MS,OTR/L, MLD-C

⁠⁠ ⁠⁠Dellalunawellness.com⁠⁠

⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Lipedema Advocate 856-297-7437

Cindy contact information

⁠FB:⁠⁠⁠ ⁠https://www.facebook.com/withcindyhowell⁠⁠⁠⁠⁠

Private FB Group:⁠⁠⁠⁠⁠https://www.facebook.com/groups/7021999704562921⁠⁠⁠⁠⁠⁠

IG:⁠⁠⁠⁠⁠ https://www.instagram.com/lipedema_withcindyhowell/⁠⁠⁠

Cindy Howell RN, CLT, MPHC

Website:⁠ ⁠⁠⁠⁠⁠www.withcindyhowell.com⁠⁠⁠⁠⁠⁠

Lipedema advocate: 860-550-1161

Top 5 Foods to Avoid for Managing Lipedema! Link:⁠⁠⁠ https://withcindyhowell.com/checklist/⁠⁠⁠

Free surgery course:⁠⁠ ⁠⁠⁠⁠⁠⁠https://l.bttr.to/6cATB⁠⁠⁠

https://www.instagram.com/stronger_than_lipedema_podcast/

This episode is proudly sponsored by Lipoelastic
Compression

Don’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.

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