Ports, pressure and panic — Coping with haemophilia treatment challenges
Haemcast25 Juni

Ports, pressure and panic — Coping with haemophilia treatment challenges

In this episode of Haemcast’s special series in collaboration with Local families with bleeding disorders, we look at some of the challenges that can arise when treating a child with haemophilia.

Getting used to administering treatment can be challenging, particularly in the early days. Until recently, most haemophilia treatments have been given intravenously, which is a challenge in itself, but other issues can arise too.

In ‘Ports, pressure and panic’, we speak with three parents of children with haemophilia about treatment-related challenges they’ve experienced. They discuss how they’ve managed and overcome these challenges, and the impact on them as parents.


If you would like to find out more about Local families with bleeding disorders, visit www.bleeding-disorders.co.uk

CREDITS

Participants: Sam Keeley, Nicola East, Andrew East

Interviewer: Kathryn Jenner

Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠⁠⁠⁠⁠bensound.com⁠

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(42)

"I'm the worrier in our relationship" — Being the partner of a person with a bleeding disorder

"I'm the worrier in our relationship" — Being the partner of a person with a bleeding disorder

The next in our special collaboration between Haemcast and Local families with bleeding disorders focuses on the partners of people who live with haemophilia and von Willebrand disease. Anya, Emma and...

27 Maj 29min

"Everything's new with haemophilia" — Treatment choices and changes

"Everything's new with haemophilia" — Treatment choices and changes

When making choices about treatment for a bleeding disorder, for a child or for yourself, what matters most? In this episode of Haemcast’s special series in collaboration with Local families with blee...

30 Apr 29min

Sticky blood, teddies and teens — Talking to children about their bleeding disorder

Sticky blood, teddies and teens — Talking to children about their bleeding disorder

When it comes to managing family life with a child who has a bleeding disorder, parents aren’t just caregivers – they’re organisers, advocates and educators. Alongside managing their child’s condition...

31 Mars 34min

Veins, verse and voices: How poetry helped Local families with bleeding disorders be heard

Veins, verse and voices: How poetry helped Local families with bleeding disorders be heard

The first in a special Haemcast series in collaboration with Local families with bleeding disorders, exploring aspects of family life.In this episode, members of Local families with bleeding disorders...

5 Mars 34min

Banana sap, mangos and factor IX — a Ugandan haemophilia B journey

Banana sap, mangos and factor IX — a Ugandan haemophilia B journey

Morris Okello lives in Northern Uganda. In this episode of Haemcast, he tells Dr Kate about the childhood experiences that eventually led to him being diagnosed with haemophilia B. As well as describi...

9 Okt 202525min

Quality of life in the balance: Helen Tate on living with Factor V deficiency

Quality of life in the balance: Helen Tate on living with Factor V deficiency

Dance teacher and Haemophilia Society trustee Helen Tate talks with Haemnet's Dr Kate Khair about living with Factor V deficiency, a rare bleeding disorder that affects around one in a million people....

21 Aug 202522min

Looking back on Terence's life: Haemophilia then and now, with Kate Khair

Looking back on Terence's life: Haemophilia then and now, with Kate Khair

Following our six-part mini-series 'Reflections on a life with severe haemophilia', with Terence O'Rourke, Haemnet's Dr Kate Khair considers some of the things that have changed in haemophilia care du...

30 Juli 202518min

Populärt inom Hälsa

somna-med-henrik
rss-bara-en-till-om-missbruk-medberoende-2
rss-vuxna-pa-latsas
sova-med-dan-horning
rss-viktmedicinpodden
sexnoveller-deluxe
not-fanny-anymore
angestpodden
johannes-hansen-podcast
inga-beiga-morsor
sa-in-i-sjalen
rss-basta-livet
rss-the-house-podcast-3
rss-traningsklubben
sex-pa-riktigt-med-marika-smith
tyngre-traningssnack
halsoveckan-by-tyngre
rss-the-house-podcast-4
brottarbroder
hacka-livet