Welcome to Aging with Down Syndrome

Welcome to Aging with Down Syndrome

Join a mother, a sister, and a niece as they share honest and heartfelt conversations about the changing needs of their loved ones over 40 aging with Down syndrome. In today’s episode, Jadene, Molly and Kristin will give some background of their lived experience, and what inspired them to start this podcast. We hope this podcast will be helpful resource for families and caregivers. We want to hear from you! Get in touch at: podcast@agingwithdownsyndrome.com

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Avsnitt(19)

Brain Donation | One Woman's Gift to the Next Generation with Down Syndrome

Brain Donation | One Woman's Gift to the Next Generation with Down Syndrome

In this heartfelt episode, Molly shares her family’s experience with brain donation, and its incredible importance for Alzheimer's and Down syndrome research. She talks about why they decided to do it...

11 Aug 30min

What If a Caregiver Has an Emergency?

What If a Caregiver Has an Emergency?

What happens if a caregiver has a medical emergency while caregiving? And what if the person being cared for doesn’t understand, or can’t call for help? That was the scary situation Jadene’s son was i...

28 Juli 20min

Kristin’s Top Tips

Kristin’s Top Tips

Kristin learned some valuable lessons as her brother Matthew progressed through Alzheimer’s disease. Here, she shares her advice for caregivers who are on the dementia journey. Takeaways include: Tak...

14 Juli 12min

CARE Down Syndrome | A Conversation with Kandi Pickard and Brian Chicoine

CARE Down Syndrome | A Conversation with Kandi Pickard and Brian Chicoine

Have you ever wished you lived closer to a specialized Down syndrome medical clinic? Have you had to rely on healthcare providers who—even if they are well-meaning—lack the expertise or experience to ...

30 Juni 27min

Our Early Signs of Dementia

Our Early Signs of Dementia

Jadene, Kristin, and Molly look back and share what they recall were the earliest signs of dementia in their loved ones. They discuss which symptoms were the same and which were different between the ...

16 Juni 30min

Succession Planning with John Nadworny

Succession Planning with John Nadworny

John Nadworny—a retired Certified Financial Planner with over 30 years of experience working with families of individuals with special needs—reveals how true succession planning goes beyond financial ...

2 Juni 28min

Swallowing Issues & Other Challenges

Swallowing Issues & Other Challenges

In this episode, we talk to Jadene about Matt’s recent onset of swallowing issues and other challenges he’s facing in this new phase of the Alzheimer’s journey. Our conversation touches on adapting ro...

19 Maj 46min

Navigating Grief

Navigating Grief

Sometimes grief shows up in the most unexpected ways, long before our loved ones take their last breath. If you're caring for someone with a terminal diagnosis (like Alzheimer’s), or navigating loss, ...

5 Maj 47min

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