How Morgan Meaut decided to TFMR for brain anomalies & worst case scenario rare genetic condition in her baby Collins (part 1 of 2)

How Morgan Meaut decided to TFMR for brain anomalies & worst case scenario rare genetic condition in her baby Collins (part 1 of 2)

Morgan Meaut shares her story of needing to terminate her wanted pregnancy for a rare genetic condition: 8p inverted duplication deletion syndrome, on the 23rd chromosome. Needing to make this decision for her baby girl Collins was one of the worst things she has ever been through.

At the 20-week anatomy scan Morgan and her husband received the devastating news. The ultrasound showed severe swelling, ventriculomegaly and single cord. A follow up MRI of the brain showed missing corpus collosum in Collins’ brain

This devastating diagnosis in pregnancy sent the couple on a four-week journey meeting with MFMs, genetic counselors, pediatric cardiologists, neurologists, and other specialists. Ultimately, through a genetic microarray they learned that Collins was worst case scenario. She had an extremely rare genetic condition: 8p inverted & duplication & deletion all on the 23rd chromosome. A very rare and large triple condition.

Morgan was told that if Collins survived birth and infancy, she would be profoundly disabled — likely nonverbal, unable to live independently, and requiring lifelong full-time care.

Morgan knew that was not the life they wanted for their baby.

She was living in the state of Georgia at the time of her TFMR and had to pass a state board to approve the abortion.

This is part 1 of 2 of Morgan's story where she shares how they made their decision to end their much wanted pregnancy.

Morgan's Instagram: www.instagram.com/morgan_love_11

Morgan's email: bmorganlove@yahoo.com

....

To meet with Sabrina schedule your Connect Chat and find * your * way through with groups/1on1: http://www.thetfmrdoula.com/schedule-call


And in this episode we invite you to join us in this space, just for TFMR parents:

THE TFMR SUPPORT SANCTUARY

If you're carrying the weight of your TFMR alone... you don't have to anymore.

The TFMR Support Sanctuary: a monthly community for parents who want ways to release the shame, guilt, and despair of this loss and feel sure and seen in their motherhood, their parenthood, and the love they have for their baby.

💜 A safe place to feel whole again and honor your baby & feel the strength to get through another day

💬 Live circles every couple of weeks, replays always available and JUST as powerful

💜 Month-to-month, as you need support

🌸 $55/month

Join us: https://www.thetfmrdoula.com/join


FREE FACEBOOK GROUP:

Join other TFMR parents who just GET it and are here to listen and hold you.

PLUS you'll get early access to new podcast episodes and a chance to ask questions live. All in our private Facebook group, the TFMR Support Circle. You'll get to witness the raw, unedited version of my solo episodes before anyone else. You can also join in live and share your comments and get your questions answered to shape the episodes.

Application only, free membership:

http://www.theTFMRdoula.com/facebookgroup


🎙 Want to share your story?

Email Sabrina to be featured on the podcast: sabrina [at] theTFMRdoula [dot] com

Music credit:

"Pamgaea" Kevin MacLeod (https://incompetech.com/music/royalty-free/index.html?isrc=USUAN1300036&Search=Search

)

Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/


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Avsnitt(81)

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