Who Decides What a Medical Breakthrough Is Actually Worth?

Who Decides What a Medical Breakthrough Is Actually Worth?

Leave a review! What is the exact dollar value of staying awake? In this special episode, we dig into a real independent evidence report on Orzeyful (oporexin), a newly FDA-approved drug for narcolepsy type 1 that works completely differently from anything currently on the market — it doesn't just manage symptoms, it replaces the missing brain chemical behind the disease itself. We break down what the science actually means, why a "C++" grade from independent researchers is secretly a huge w...

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Avsnitt(63)

Advocacy Series: S1E6 Meet the Woman Who Created the World's First IH Nonprofit

Advocacy Series: S1E6 Meet the Woman Who Created the World's First IH Nonprofit

Leave a review! It took Michelle Chadwick 20 years to get diagnosed with idiopathic hypersomnia (IH) and when she finally did, she found almost nothing online to help her make sense of it. So she bui...

10 Aug 50min

YouTube Hates Us and That's Exactly the Point

YouTube Hates Us and That's Exactly the Point

Leave a review! What happens when you crack open the backend analytics of a podcast built for one of the rarest, most invisible patient communities on earth? In this special episode, we dig into the d...

23 Juli 18min

S5E1: The Night I Carried My Sleeping Son to the ER

S5E1: The Night I Carried My Sleeping Son to the ER

Leave a review! What happens when your teenage son stops closing doors, watches the same movie three times in one day without remembering, and disappears from his own life for weeks at a time? In this...

23 Juli 1h 17min

S4E12: The Teacher Who Was Sent to Rehab for Being Sick

S4E12: The Teacher Who Was Sent to Rehab for Being Sick

Leave a review! Imagine falling asleep for two months straight — losing your memory, your personality, even your sense of time. That's life with Kleine-Levin Syndrome (KLS), one of the rarest sleep di...

14 Juli 52min

S1E5 - Advocacy Series: 27 Years of Narcolepsy: From Rock Bottom to Elite Trainer

S1E5 - Advocacy Series: 27 Years of Narcolepsy: From Rock Bottom to Elite Trainer

Leave a review! What does it look like to build an extraordinary life with narcolepsy — without medication? Welcome to the Narcolepsy Navigators Advocacy Series, where lived experience meets powerfu...

30 Juni 55min

S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser

S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser

Leave a review! Narcolepsy Navigators launches its Medical Series focused on the medical side of narcolepsy and common comorbidities. Host Fred (currently undiagnosed sleep disorder) and co-host Berna...

9 Juni 52min

S4E11: Blood Is Not Thicker: Boundaries, Trauma, and Narcolepsy

S4E11: Blood Is Not Thicker: Boundaries, Trauma, and Narcolepsy

Leave a review! ⚠️ Content note: This episode includes discussion of childhood sexual abuse, suicidal ideation, and mental health crisis. Please take care of yourself first. 🎙️ EPISODE GUEST: Alejand...

14 Maj 1h 2min

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