Co-Creating Research with Patients with John Reites and João Bocas

João Bocas - The #Wearables Expert ™ Interviews John Reites. CEO at Thread Research The Topic is: Co-Creating Research with Patients We've discussed and touched upon the following : - How is the industry co-creating research with Patients? - What are the most important aspects to consider? - What are the most common challenges in Decentralized Trials? How can we make Healthcare Uncomplicated? Share this episode with your networks: https://youtu.be/cROvYegYGNs Connect with John Reites : Twitter - https://twitter.com/JohnReites LinkedIn - https://www.linkedin.com/in/johnreites/ Feel free to 📣 CONNECT WITH ME 🟢: LinkedIn: https://www.linkedin.com/in/joaobocas/ Twitter: https://twitter.com/WearablesExpert If you have not subscribed, do it now - https://bit.ly/3iQ6EXP The co-creation of research with patients has become an increasingly important trend in the healthcare industry. This approach involves collaborating with patients and their caregivers to ensure that research is patient-centered, addresses patient priorities and concerns, and produces outcomes that are relevant to patients. There are several ways in which the industry is co-creating research with patients, including: Patient engagement in research design: Patients and caregivers are involved in the design of research studies, including defining research questions, selecting outcome measures, and developing study protocols. Patient involvement in research recruitment: Patients are involved in the recruitment of other patients to participate in research studies, often through patient advocacy groups. Patient participation in research conduct: Patients and caregivers participate in the conduct of research studies, including data collection, analysis, and interpretation. Patient involvement in dissemination of research findings: Patients and caregivers are involved in the dissemination of research findings to other patients and the broader community, often through patient advocacy groups and social media. Overall, the co-creation of research with patients is seen as a way to improve the relevance, quality, and impact of research on patient outcomes. By involving patients in all aspects of research, the industry can ensure that research is patient-centered and addresses the real-world concerns of patients and their caregivers. Decentralized clinical trials (DCTs) are becoming increasingly popular in the healthcare industry due to their ability to improve patient participation and engagement, reduce costs, and increase trial efficiency. However, there are also several challenges associated with DCTs, including: Technology and infrastructure: DCTs rely heavily on technology and infrastructure to facilitate remote data collection and communication between patients and researchers. Ensuring that patients have access to reliable technology and infrastructure can be a challenge, especially for patients in rural or low-income areas. Patient recruitment and retention: DCTs often require patients to be more involved in their own care and to take on more responsibility for data collection and reporting. This can lead to recruitment and retention challenges, as some patients may find the additional responsibility overwhelming or difficult to manage. Regulatory compliance: Regulatory requirements for DCTs can vary by country and region, and ensuring compliance with local regulations can be a challenge for multi-national studies. Data quality and integrity: Ensuring the quality and integrity of data collected remotely can be challenging, as there is often less direct oversight and monitoring of patients and study sites. Patient safety: Ensuring patient safety in DCTs can be challenging, as patients may not have the same level of in-person monitoring and support as in traditional clinical trials. #medtech #clinicaltrials #pharma #decentralizedtrials #digitalhealth