234: An Interview WIth Diane Zapursky Quale of the Bladder Cancer Advocacy Network

234: An Interview WIth Diane Zapursky Quale of the Bladder Cancer Advocacy Network

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Diane Zapursky Quale, who founded the Bladder Cancer Advocacy Network 20 years ago with her late husband after he developed bladder cancer.

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Avsnitt(259)

248: An Interview WIth Hilary DuBrock, MD, of the Mayo Clinic on Using AI to Diagnose Pulmonary Arterial Hypertension

248: An Interview WIth Hilary DuBrock, MD, of the Mayo Clinic on Using AI to Diagnose Pulmonary Arterial Hypertension

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Hilary DuBrock, MD, of the Mayo Clinic in Rochester, Minnesota, on the use of artificial intelligence to diagnose pulmonary arte...

9 Nov 8min

247: An Interview With Theresa Strong, PhD, Director of Research Programs at the Foundation for Prader-Willi Research

247: An Interview With Theresa Strong, PhD, Director of Research Programs at the Foundation for Prader-Willi Research

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Theresa Strong, PhD, of the Foundation for Prader-Willi Research—which is the recipient of NORD's 2026 Abbey S. Meyers Leadershi...

2 Nov 11min

246: An Interview With Rebecca Aune, Director of Education Programs at NORD

246: An Interview With Rebecca Aune, Director of Education Programs at NORD

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rebecca Aune, director of education programs at the National Organization for Rare Disorders (NORD), about Rare Research Launchp...

26 Okt 10min

245: An Interview With High-School Senior Aarush Shah, Cofounder of the Rare Disease Platform OAI Nexus

245: An Interview With High-School Senior Aarush Shah, Cofounder of the Rare Disease Platform OAI Nexus

Larry Luxner, senior correspoondent for Rare Disease Advisor, interviews Aarush Shah, a high-school senior who, along with classmate Veer Chandwani, recently established OAI Nexus, the first public AI...

5 Okt 12min

244: An Interview With Dr. Doug Flora on How AI Can Help Diagnose and Treat Cancer

244: An Interview With Dr. Doug Flora on How AI Can Help Diagnose and Treat Cancer

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Doug Flora, MD, about his new book, "Rebooting Cancer Care: Can AI Make Care More Human Again?"

28 Sep 13min

243: An Interview With Donna Appell, Founder of the Hermansky-Pudlak Syndrome Network

243: An Interview With Donna Appell, Founder of the Hermansky-Pudlak Syndrome Network

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Donna Appell, founder and executive director of the Hermansky-Pudlak Syndrome Network. Patients with the most common type of thi...

21 Sep 9min

242: An Interview With Rich Savino, Grandfather of a Boy With Duchenne

242: An Interview With Rich Savino, Grandfather of a Boy With Duchenne

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rich Savino, a New Jersey grandfather of a boy with Duchenne muscular dystrophy. Savino, 71, is among a growing number of grandp...

14 Sep 14min

241: An Interview With Oncologist and Podcaster Kimberly Ku, MD, on 'Empathetic Communications'

241: An Interview With Oncologist and Podcaster Kimberly Ku, MD, on 'Empathetic Communications'

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kimberly Ku, MD, an oncologist with Illinois Cancer Center and host of the podcast "Val-You Based Care,"

9 Sep 14min

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