Maternal anxiety, when the burden becomes the blame, and holding the biological frame. My speech at the PANS PANDAS UK conference

I had 10 minutes to speak about how to support parents at the PANS PANDAS UK Conference in October. In reality I could have spoken for hours on this subject. I think supporting parents is such a big part of the work so they can support their children, feel safe and navigate this complex illness.

In this talk, I follow a fictional family through three stages: before, during and after diagnosis. I look at what parents actually need.

I cover:

Why parents are the frontline historians of their child’s illness, and why believing them is clinical information
The “inversion,” where a parent’s response to illness becomes the explanation for it, and how this can escalate to FII allegations
Lessons from medicine’s history of mother-blame
“Holding the frame,” which means keeping biology, psychology and family circumstances in mind together

Why referrals need to be joined up, and how therapy, including ERP, needs adapting

Because you can’t CBT your way out of inflammation! We need to work together, as while we debate diagnosis, a childhood is slipping away - for both child and parent.

I am Lucy McDonald, a child and adolescent psychotherapist. I have a special interest in PANS PANDAS, and support families and children with the illness. I have an online course for parents sharing what I know.

More information on lucy-mcdonald.com

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Avsnitt(28)

Expert: Paediatric PANS & OCD specialist Barb Shephard talks ERP

** NOTE - IN THIS EPISODE I say that inference-based CBT is not evidence-based. This is wrong. I meant it is not evidence-based in children yet (although that work is underway) but it is evidence-info...

23 Sep 52min

OCD Special: I-CBT - Suicidal Intrusive Thoughts with Therapist Angela Henry

OCD and PANS PANDAS specialist Angela Henry talks about treating OCD using I-CBT. This is a different approach that focuses on doubt – particularly how OCD can make us distrust what we know through ou...

10 Sep 1h

The Day Our Children Changed Overnight: Two Mothers on PANS/PANDAS

A whopping episode-in more ways than one. In this podcast I speak to PANS/PANDAS parent and advocate Lindsey Forsyth and her friend and fellow PANS/PANDAS mother, Kate Rooney. Longer than normal, as t...

6 Juli 1h 14min

IVIG, Rage, and how music heals. Dr Patrick Whelan shares insights PANS PANDAS

Dr Whelan is a rheumatologist from UCLA in California. He describes his discipline as almost the last port of call for many suffering from PANS/PANDAS but describes how his specialist understanding of...

18 Maj 56min

Treating the Whole Child: PANS/PANDAS, Neuroinflammation & Hope with Dr. Leila Mason

((Before I talk about this episode, I have a favour! Please scroll down - there is a survey link below - 20 minutes of your time could shape the future of therapy for this illness 💛 Thanks))This week...

4 Maj 56min

Evie Meg talks about PANS/PANDAS, encephalitis, dystonia, OCD, Bartonella and Lyme Disease

Evie Meg is the most well known advocate for immune mediated neuropsychiatric disorders with more than 15 million followers on TikTok (which I worked out is twice as many as Coldplay, people!) and 1m ...

12 Apr 56min

OCD, PANS & Dr Zoe Gillispie: What Parents and Therapists Need to Know

Dr Zoe Gillispie is one of the world's leading neuroimmune-psychiatric psychologists, working with children and families with PANS/PANDAS from her Californian practice. Here she shares insights and ex...

18 Mars 54min