Growing Up with Toby in Australia: Extra X and Intersex (2/2)

Growing Up with Toby in Australia: Extra X and Intersex (2/2)

🟢 "We're not a disorder. We're not a syndrome. We're people." [Warning: this episode contains explicit language]. Toby Whittington is a successful social entrepreneur from Australia who found out he has an Extra X chromosome at the age of 32 - a discovery that changed almost everything in his life.

In this second of two episodes, he explains why he believes it is important not to become the victim of diagnosis, rejects considering Klinefelter’s as a "syndrome", and identifies as a part of the wider Intersex community - on the premise that diversity in humans is the norm not the exception.

This straight talking conversation covers a wide variety of topics including

  • the rise of the Intersex movement
  • what it's like to live with synaesthesia that turns touch into 3-D images
  • how he believes it in our power to turn our lives into "heaven" or "hell".

🎁 Your weekly podcast Chromodiversity™ will be back Tuesday January 3 2023 with fresh content featuring world leading researchers, authors and advocates. Thank you for your interest and support in 2022 and Happy Holidays to all!

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Avsnitt(40)

How to Predict Autism in Extra X & Y Children (2/2)

How to Predict Autism in Extra X & Y Children (2/2)

🔴 "Early symptoms of autism spectrum disorder (ASD) in 1-8 year old children with sex chromosome trisomies (XXX, XXY, XYY), and the predictive value of joint attention*" PART 2.Research over the past...

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Last Words With Gary Glissman

Last Words With Gary Glissman

🟢 "I'm a thunderstorm kind of guy" - Gary Glissman, 1950 - 2023.In this podcast you’ll hear two back-to-back episodes with Gary Glissman, recorded October 2022 and re-edited into a single full 45 min...

27 Feb 202343min

How to Predict Autism in Extra X & Y Children (1/2)

How to Predict Autism in Extra X & Y Children (1/2)

🔴 "Early symptoms of autism spectrum disorder (ASD) in 1-8 year old children with sex chromosome trisomies (XXX, XXY, XYY), and the predictive value of joint attention.*" Although not many medical pr...

21 Feb 202327min

"Dazzling Zebras" with Professor Lara Bloom, Pres. & CEO of The Ehlers-Danlos Society

"Dazzling Zebras" with Professor Lara Bloom, Pres. & CEO of The Ehlers-Danlos Society

🟢 "Don't ever underestimate what even 5 minutes of just listening and validating someone's experience can lead to (...). It is the best gift (a doctor) can give any patient."Historically seen as a ra...

13 Feb 202331min

Extra X & Y: Exciting Future Trajectories*

Extra X & Y: Exciting Future Trajectories*

🟢 "Great genetic progress", "exciting early neurocognitive interventions", but "grave deficiency in current testing and care models" around the world. Listen to an easy to understand 25 minute summar...

30 Jan 202326min

 Peter’s XXY Journey Part 2:  A Lifetime of Lessons

 Peter’s XXY Journey Part 2:  A Lifetime of Lessons

🟢 “Had I been diagnosed earlier, how much more could I have accomplished?”In our previous episode “Peter’s XXY Journey Part 1: a 63-Year Diagnostic Odyssey”, Peter Street from Australia compares his ...

24 Jan 202318min

 Peter’s XXY Journey Part 1: A 63-Year Diagnostic Odyssey

 Peter’s XXY Journey Part 1: A 63-Year Diagnostic Odyssey

🟢 “95% of my life has been spent not knowing of my 47,XXY. It was like getting into a boxing ring with as your opponent the invisible man. You never saw where the punches were coming from.”In this ex...

17 Jan 202330min

"Radical Inclusion," Featuring Author Jodi Samuels* (2/2)

"Radical Inclusion," Featuring Author Jodi Samuels* (2/2)

🟢 "Kindness Kills..." Despite all the talk about diversity and inclusion, why are children with genetic differences and disabilities still socially excluded? And what do we plan to do about it?In thi...

10 Jan 202329min

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