#29 - Mother of Boy with XXY - Chelsea Castonguay
Livingwithxxy26 Apr 2021

#29 - Mother of Boy with XXY - Chelsea Castonguay

Chelsea Castonguay is a mother with a 3-year-old son who has Klinefelter syndrome. Noah was diagnosed in utero after Chelsea felt like something was off around 13 weeks and requested Noninvasive Prenatal Testing. Chelsea talks about how she was devastated learning her son would have Klinefelter syndrome 47 XXY. After Noah was born she talks about how they were fearful about telling family. At a visit with a specialist, they were told to "never tell their son he had XXY". Confused about what they were told Chelsea talks about how this consultation leads to their decision to overcome fear and open up about Noah's diagnosis. Opening up created a network of support they never had. Chelsea said she doesn't want anyone to feel alone and wants to support others just like those who supported her. Her Instagram: @easterneden


Avsnitt(108)

#52 - Adult with XXY - Ryan Bregante Talks Testosterone (TRT)

#52 - Adult with XXY - Ryan Bregante Talks Testosterone (TRT)

Have you ever wondered what someone's life might be like being on Testosterone Replacement Therapy for the past 23 years and counting? Ryan shares all of his experiences with you from tips about trav...

17 Feb 202256min

#51 - Adult with XXY - Ryan Bregante Talks Hygiene

#51 - Adult with XXY - Ryan Bregante Talks Hygiene

In this episode, Ryan talks about his life battling the ups and downs with personal hygiene. Ryan goes far back to his early years in grade school when his parents used a star chart to build a routine...

7 Feb 202254min

#50 - Adult with XXY - Ryan Bregante Talks Executive Functions

#50 - Adult with XXY - Ryan Bregante Talks Executive Functions

Hello everyone, welcome to 2022 where anything is possible. This is a solo podcast talking about how I've come to learn about what executive functions are and how they have impacted my life. I only l...

2 Feb 202258min

#49 - Hunter College - Ryan Bregante and Chelsea Castonguay:

#49 - Hunter College - Ryan Bregante and Chelsea Castonguay:

We had another incredible opportunity to speak to a college class at Hunter College University NYC. The focus of this interview was about self-acceptance with Klinefelter syndrome and engaging with th...

15 Okt 20211h 3min

#48 - New York University - Ryan Bregante and Chelsea Castonguay

#48 - New York University - Ryan Bregante and Chelsea Castonguay

We had the wonderful opportunity to speak to a college class at New York University this last week. The focus of this interview was about self-acceptance with Klinefelter syndrome. Chelsea is a mother...

1 Okt 20211h 13min

#47 - Wife of Adult with XXY - Anna McLeod (Ireland)

#47 - Wife of Adult with XXY - Anna McLeod (Ireland)

Anna McLeod is the wife of Gareth Landy who was diagnosed with Klinefelter syndrome while trying to have kids. Anna talks about what it was like to learn about her husband's diagnosis, her own struggl...

28 Sep 20211h 1min

#46 - Mother of XXY Boy - Angela Fuller Heyde

#46 - Mother of XXY Boy - Angela Fuller Heyde

Angela Fuller Heyde is the mother of Adam, who was diagnosed with Klinefelter syndrome. She talks about what it is like to go from being secret about her son's diagnosis to open and sharing informatio...

1 Sep 202141min

#45 - Mother of XXY Boy - Jacqueline Lightcap

#45 - Mother of XXY Boy - Jacqueline Lightcap

Jacqueline Lightcap is the mother of a 17-year-old boy diagnosed with Klinefelter syndrome at 14. After a routine physical their family physician thought their son might have Klinefelter syndrome and ...

23 Aug 20211h 4min

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