My J-Pouch Is My BFF
About IBD26 Apr 2017

My J-Pouch Is My BFF

On this episode of the About IBD Podcast, I discuss j-pouches and bust some of the misconceptions that surround them. I also give my firsthand experience as a j-poucher who gave birth twice and let you in on what it's like for me to have a midline scar from open surgery.

Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.

Credits:

About IBD" ©Cooney Studio.

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Yoga for IBD With Desiree Schmidt

Yoga for IBD With Desiree Schmidt

Desiree Schmidt, a 500-hour yoga instructor and owner of a personal training business, shares her passion for helping people with chronic illnesses, which is inspired by her own experience with Crohn's disease. She discusses how yoga has been key in her journey, both physically and mentally. Amber and Desiree discuss the benefits of different yoga forms and how to choose the right practice based on whether one is in a flare-up or in remission. Desiree points out how it is important to modify poses when living with a health condition, including IBD, to ensure comfort and safety during classes. She offers insights into providing options for different needs, making the yoga accessible for everyone. Gain valuable insights into the world of yoga, its benefits for chronic illness, and how to embark on your own yoga practice with confidence and guidance. Find Desiree (Schmidt) VanDaalwyk, NASM-CPT, FNS at: Facebook: @desiree.schmidt.566 LinkedIn: @Desiree VanDaalwyk Instagram: @desireevandaalwyk Radect Health: Desiree Schmidt   Find Dutchmen Kettlebells at: Facebook: @Dutchmenkettlebells Instagram: @dutchmenkettlebells Web: https://www.dutchmenkettlebells.com/   Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD   Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.   Episode transcript and more information at: https://bit.ly/AIBD135 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

23 Maj 202338min

An Ostomy Is a Beginning With Brad Watson-Davelaar

An Ostomy Is a Beginning With Brad Watson-Davelaar

Brad Watson-Davelaar, founder of Gaming for Guts, shares his experiences in living with Crohn’s disease and how he found support and community through his IBD journey. He talks about his ostomy surgery and how for him, it is a beginning rather than an end. Brad describes the upcoming fundraising event sponsored by Gaming for Guts to celebrate World IBD Day on May 19th. It will feature Canadian-themed activities in support of Crohn's and Colitis Canada. The IBD and gaming communities are encouraged to get involved with the fun. Brad also shares his thoughts on how the gaming community helps people with IBD connect to form meaningful relationships. Find Brad Watson-Davelaar at: Facebook: @bwdphoto Facebook: @crohnsawarenessproject Twitter: @bwdphotocanada Instagram: @bwdphoto Find Gaming4Guts at: Facebook: @gaming4guts Twitter: @gaming4guts Instagram: @gaming4guts Web: www.gaming4guts.com Discord: https://discord.gg/BpXcmz7 About IBD Episode 83: The Streamers from Gaming4Guts Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD134 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

9 Maj 202343min

I Pooped My Pants With April Michelle Harris

I Pooped My Pants With April Michelle Harris

When is the last time you pooped your pants? Amber speaks with April Michelle Harris, who lives with ulcerative colitis, a type of inflammatory bowel disease (IBD), for over 13 years. April shares her journey, from her initial diagnosis to her struggles with depression and anxiety, and how she has managed to build a fulfilling life despite the many challenges that come with living with a chronic illness. We also dive into April's new book "I Pooped My Pants", where she shares her story and those of 20 other IBD warriors who have bravely shared their experiences with living with the disease. April's book provides a refreshing and honest perspective on what it's like to live with IBD, and it's a must-read for anyone who wants to learn more about the disease and how it affects people on a daily basis. Tune in to hear April's inspiring story and learn more about living with a chronic illness, and how you can build a fulfilling life despite the challenges that may come your way. Find April Michelle Harris at: Web: "I Pooped My Pants" Web: VirtuallyAprilMichelle Instagram: @VirtuallyAprilMichelle Instagram: @IPoopedMyPantsBook Facebook: Virtually April Michelle Book: "I Pooped My Pants" at Amazon Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD133 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

25 Apr 202341min

RunPee: The App That Tells You the Best Time to Use the Bathroom During a Movie

RunPee: The App That Tells You the Best Time to Use the Bathroom During a Movie

Going to a movie can be a frustrating experience for anyone with a digestive or urinary condition. Not only are the bathrooms sometimes far from the theaters, it’s difficult to know when to duck out if nature calls. Enter RunPee. The RunPee app is designed to help moviegoers know when the best time is to use the restroom (a peetime) during a movie without missing any important scenes. The creator, Dan Gardner, discusses how he and his team choose the best times to use the restroom while still ensuring that users do not miss any critical moments in the film. Additionally, Gardner talks about the other features of the app, such as movie ratings and reviews, and the importance of understanding the needs of different demographic groups. Find RunPee at: Web: RunPee.com Twitter: @RunPee LinkedIn: @runpee RunPee Android: Android App Store RunPee iPhone: iPhone App Store Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD131 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

18 Apr 202337min

Accommodations for IBD in College With Sari Grossman

Accommodations for IBD in College With Sari Grossman

What happens when your professional life and your IBD overlap? Sari Grossman is a research scientist, Crohn's disease patient, and advocate for patients with chronic illnesses. She shares her experience with Crohn's disease, including her family history of IBD, diagnosis at a young age, her unusual symptoms, and the impact it had on her life. She speaks candidly about the physical and emotional challenges of living with a chronic illness, and how she has learned to cope with the ups and downs of her condition. Find Sari Grossman at: Twitter: @saribari99 Instagram: @saribari99 LinkedIn: @Sari Grossman Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD131 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

28 Mars 202344min

Up and Adam: A Patient's Experience on Winning with IBD

Up and Adam: A Patient's Experience on Winning with IBD

Is it possible for kids to look at their touchpoints with medical care as empowering experiences? Adam Finkelstein, a medical student and author, shared his experiences of living with IBD from a young age, and how he coped with surgeries and doctor's appointments as a child. Adam provides tips for helping kids develop positive associations with going to the doctor, which include building trust with healthcare professionals, being honest about what to expect during appointments, and creating a comfortable environment for kids. Adam's book, "Up and Adam," is a resource for children with IBD and their families. Contact Adam Finkelstein at adamibdstory@gmail.com. Get "Up and Adam: A Patient's Experience on Winning with IBD" at Barnes and Noble. Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD130 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

14 Mars 202329min

Living with IBD: How Caitlin McGinnis, LCSW Supports Mental Health

Living with IBD: How Caitlin McGinnis, LCSW Supports Mental Health

Caitlin McGinnis, LCSW was diagnosed with ulcerative colitis at the age of 22 and had her entire colon removed. This experience prompted her to become a social worker and specialize in providing mental health support for patients with various digestive health issues. Through her own experiences and connecting with support groups, Caitlin has learned the importance of creating communities, bringing awareness, and being a source of support for those going through similar struggles. She strives to provide her patients with the support she did not have when she was diagnosed. Find Caitlin McGinnis, LCSW on: Psychology Today Alma Concepts discussed on this episode: United Ostomy Associations of America Support Group Finder Crohn’s and Colitis Foundation Support Groups Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD129 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

28 Feb 202328min

CDPATH: A Prognostic Tool for Crohn's Disease

CDPATH: A Prognostic Tool for Crohn's Disease

Are we getting close to predicting how Crohn's disease might change over time? Dr. Corey Siegel, co-director of the Inflammatory Bowel Disease Center at the Dartmouth Hitchcock Medical Center in Lebanon, New Hampshire, and Jessica Caron, a patient key opinion leader who lives with Crohn's, discuss a prognostic tool called CDPATH. This tool may help patient and healthcare providers understand how the disease may change over the next few years, and better inform a discussion of treatment options. Find Corey Siegel, MD on: Twitter: @DrCoreySiegel Find Jessica Caron at: Instagram: @chronicallyjess_ Twitter: @ChronicallyJess Facebook: @ChronicallyJess Web: Chronically Jess LinkedIn: @jessica-caron Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD128 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

14 Feb 202326min

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