Growing Up IBD with Brian Greenberg
Being diagnosed with IBD as a child presents special challenges for kids and for parents. Learn how Brian Greenberg of Intense Intestines Foundation dealt with a Crohn’s disease diagnosis at a young age and transitioned from being a child reliant on parents to help manage his IBD to learning how to manage it all himself. 2:15: Brian spent a lot of time in detention as a kid! 3:15: The hardest part of going to school with IBD. 5:00: Brian's first resection: at 21. 7:00: Deciding to get an ostomy and what that meant for the future. 9:00: How an ostomy and a Ken butt made life better. 11:00: The misunderstandings that can happen when your peers don’t understand about IBD. 14:00: Why do people not just ask about why a person may appear sick? 16:00: How Brian manages to stay active with Crohn’s disease. 16:30: How being active can help with the mental aspects of coping with IBD. 17:34: Why distractions can actually be beneficial at times. 19:00: One of the things Brian has done that maybe is a little risky. But super fun. 19:40: How Brian managed an aggressive medication schedule in the 90s. 20:20: Brian’s experience in transitioning from parents managing everything IBD to him managing it himself. Find Brian Greenberg at: Twitter: https://twitter.com/BrianG_CBY https://twitter.com/ChronicBetterU Instagram: https://www.instagram.com/BrianG_CBY/ https://www.instagram.com/ChronicallyBetterYou/ Facebook: https://www.facebook.com/ChronicallyBetterYou/ Find Intense Intestines Foundation at: We Will Beat IBD Podcast: https://itunes.apple.com/us/podcast/we-will-beat-ibd-podcast/id1065350104?mt=2 Web: http://www.intenseintestines.org/ Facebook: https://www.facebook.com/IntenseIntestines/ Twitter: https://twitter.com/NtenseNtestines Instagram: https://www.instagram.com/intense_intestines/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Intro Music: Badass - Bensound.com - www.bensound.com/royalty-free-music Outro Music: The Lounge - Bensound.com - www.bensound.com/royalty-free-music
2 Nov 201731min
Don't Let IBD Ruin Your Day
Did you know that more than 70% of people with IBD have reported bathroom accidents (fecal incontinence)? Did you also know that only around 20% ask for help from their physicians? It’s a sensitive topic, to be sure, which is why I offer advice on how to cope with this problem and how to avoid it in the first place. If you’re struggling with this issue I have tips that you can use today but the best advice is to talk to your doctor about it (and I discuss that also!). 2:53: IBD is not a pooping disease! 3:34: 8AM classes — everyone else hates them ‘cause they’re hung over. You hate them because IBD. 4:28: Contact the student services office at your university about getting accommodations. 5:19: IBD is covered under the Americans With Disabilities Act, which means that you can ask for reasonable accommodations. 6:23: Yeah, I’m gonna come down on coffee and how it affects your digestive tract. 8:18: Not eating/drinking in the morning: how that can be good or bad depending on circumstances. 10:13: Why a lack of appetite can work against you during an IBD flare-up. 12:00: What should come with you when you leave the house? 16:32: Making your IBD emergency kit. 22:40: Vegan Ostomy coping with a leaking appliance in his car at Canada’s Wonderland (I thought he did a full change but actually he was able to change the bag) https://www.youtube.com/watch?v=55jpoNZCryw 23:19: The mental aspect of dealing with bathroom accidents is probably the most difficult one to overcome. Resources: #AboutIBDPodcast on stress relief with Dr Tiffany Taft: https://soundcloud.com/amber-j-tresca/episode-11-final-mixed What To Do In Case Of Bathroom Accidents: https://www.verywell.com/what-to-do-in-case-of-bathroom-accidents-1942902 Fecal Incontinence And IBD: https://www.verywell.com/fecal-incontinence-and-ibd-1943008 The Restroom Access Act: https://www.verywell.com/the-restroom-access-act-1942432 IBD Worst-Case Scenario Handbook: https://www.verywell.com/ibd-worst-case-scenario-handbook-1942892 Is Caffeine Bad For Your IBD? https://www.verywell.com/is-caffeine-bad-for-your-ibd-1942678 Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Intro Music: Acoustic Breeze - Bensound.com - www.bensound.com/royalty-free-music Outro Music: Sweet - Bensound.com - www.bensound.com/royalty-free-music
17 Okt 20170s
Getting Stress Relief With Dr Tiffany Taft
How does stress affect IBD? We know that stress does not cause IBD, but it does affect the disease. How does IBD actually cause stress, and what can we do to balance our lives in such a way that it does not affect us in a negative way? I talk with my guest, Dr Taft, about how she advises patients with chronic diseases on relieving stress and the tips and tools that have worked for her and her patients in integrating a comprehensive stress relief program into daily life. :28 The role of stress as it applies to IBD. (No, it’s not “all in your head!”) 1:40: Easy ways to get started on stress relief, even for people who aren’t interested in it, and a reality check on how effective it is. 4:15: Some of the free apps that Dr Taft recommends for mindfulness and insomnia. 5:30: What is mindfulness? 7:45: How do I make mindfulness a habit? 11:22: But what does the research show about what stress relief techniques actually work for IBD? 13:52: Are there risks involved with trying stress relief techniques? 16:23: Stress doesn’t cause IBD so why should stress relief factor into my treatment plan? 21:53: When do you need to look for more help when it comes to stress relief for IBD? 25:06: How treatment doesn’t have to be long-term to be effective but could be more focused and short-term. 31:03: How do you find a therapist? How do you "try one out” to see if you are a fit? What should you look for in a therapist? 34:00: How do you know if you’ve found “Dr Right” or “Dr Wrong”? Resources: Does Stress Cause Inflammatory Bowel Disease? https://www.verywell.com/does-stress-cause-inflammatory-bowel-disease-1942856 Do Most People With IBD Have A Mental Disorder? https://www.verywell.com/do-people-with-ibd-have-mental-disorders-1943050 Is IBD Associated With Depression? https://www.verywell.com/is-ibd-associated-with-depression-1942855 Featured Guest: Dr Tiffany Taft, PsyD, licensed clinical psychologist, Oak Park Behavioral Medicine Blog: http://opbmed.blogspot.com/2017/08/breaking-100-chance-were-all-going-to.html Facebook: https://www.facebook.com/opbmed/ Twitter: https://twitter.com/OPBMed Oak Park Behavioral Medicine: http://www.opbmed.com/ Dr Taft’s Research: https://www.ncbi.nlm.nih.gov/pubmed/?term=taft+th Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/
26 Sep 201742min
Health Advocacy With Brooke Abbott
Are you ready to tell your story? Your legislators in Washington D.C., in your state, and your home town want to hear from you about how IBD has affected your life and the legislation you care about. Brooke Abbott of The Crazy Creole Mommy Chronicles and Amber tell you how to get started in health activism and how to make your voice heard in our government! 6:00: What’s an IBD Elevator Speech? Hear Brooke’s and then use the create your own. 7:15: Find out what happens when you meet with the staff in your representatives’ office. 12:27: What should you know—and do—before you meet with someone at your representative’s office? 12:53: What you do say when you call your representative’s office to set up a meeting? 15:34: Do this if your representative will not meet with you. 22:07: What to write on a postcard you send to your representative. 28:50: Do our representatives pay attention to Twitter hashtags? 29:48: How https://www.govtrack.us/ and https://www.congress.gov/ can help you advocate! 35:30: Brooke always does this one thing before she goes into a meeting. 39:70: Learn which senator is also a gastroenterologist. 44:04: We talk about one of my Senators who I coincidentally met with about a week after we recorded this episode! (See my Facebook or Twitter feed for the photos!) 52:35: New segment on the show: Amber’s Unsolicited Parenting Advice! 59:23: Listen to About IBD Episode 5 to learn why Brooke is Amber’s "Alec Baldwin." Want to do more? *Brooke and Amber attended the Digestive Disease National Coalition Public Policy Forum in 2017. You can find out more about their events and legislative events on their site: http://www.ddnc.org/ *Sign up for the Crohn’s and Colitis Foundation Advocacy Network to get informed about advocacy goals: http://www.crohnscolitisfoundation.org/get-involved/be-an-advocate/ *See if your legislator is on the Crohn’s and Colitis Caucus. If not, write them and ask them to join! http://www.crohnscolitisfoundation.org/assets/pdfs/advocacy/2017-caucus-handout-1.pdf *Don’t know where to start? Get in touch with us—we’re friendly! Featured Guest: Brooke Abbott, The Crazy Creole Mommy Chronicles Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Intro Music: Retro Soul - Bensound.com - www.bensound.com/royalty-free-music Outro Music: Jazzy Frenchy - Bensound.com - www.bensound.com/royalty-free-music
30 Aug 20171h 6min
Why Are You Grateful for Your IBD?
If I asked you what about your IBD you were grateful for, what would you say? This is exactly what I asked IBD Advocates, and their answers are as complex, rich, and varied as they are. As you listen to their responses, you will undoubtedly find yourself nodding in agreement with some ideas and seeing your life from a different perspective with others. I hope this episode is as fulfilling for you to listen to as it was for me to produce. 4:45: Hear why Alison Rothbaum of Empowering Patients wouldn't give back these 2 things. 6:25: Brooke Abbott of The Crazy Creole Mommy Chronicles explains why IBD turned her life upside down in a positive way. 8:55: Christy Stone of Crohnie Bologna gives you the four-letter word that has defined her journey with IBD. 11:17: Megan Johnson of The Front Butt YouTuber explains why her IBD goes hand-in-hand with her accomplishments. 13:00: Ryan Stevens of Crohn’s Guy tells us what IBD has helped him cut out of his life. 14:00: What’s Your Trust Setting? http://aboutibd.com/2016/04/04/whats-your-trust-setting/ Featured Guests: Alison Rothbaum, Empowering Patients: https://twitter.com/Empoweringpts9 Brooke Abbott, The Crazy Creole Mommy Chronicles: https://crazycreolemommy.com/ Christy Stone, Crohnie Bologna: http://www.crohniebolognaibd.com/ Megan Johnson, The Front Butt YouTuber: https://www.youtube.com/user/TheFrontButttuber Ryan Stevens, Crohn’s Guy: http://www.crohnsguy.com/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Intro Music: New Dawn - Bensound.com - www.bensound.com/royalty-free-music Outro Music: Slow Motion - Bensound.com - www.bensound.com/royalty-free-music
5 Aug 201718min
Michael Tresca, Well Spouse and Amber's Husband
What's it like to watch your partner's ulcerative colitis become life-threatening and not be able to do anything about it? My husband, Mike, tells my story from his perspective, including how we met, what it was like to watch my health degrade, and all about our fairy tale wedding. Featured Guest: Michael Tresca Twitter: https://twitter.com/worldofwelstar Facebook: https://www.facebook.com/worldofwelstar/ Patreon: https://www.patreon.com/talien Want to become a Lady or Lord of Glencoe, like Amber? Buy your plot of land here: https://www.highlandtitles.com No, there are no utensils at Medieval Times. But you can get married there, like we did, or have your 15th anniversary party there, which we also did: http://www.medievaltimes.com In loving memory of Anastasia, also known as Mary Queen of Scots and the Quiet Scottish Tailor. Intro Music: Sunny - Bensound.com - www.bensound.com/royalty-free-music Outro Music: Tenderness - Bensound.com - www.bensound.com/royalty-free-music
21 Juli 20171h 1min
Clinical Trials With Michael Osso of the Crohns & Colitis Foundation
On this episode of About IBD, I talk with Michael Osso of Crohn's & Colitis Foundation and learn how important clinical trials are to patients with Crohn's disease and ulcerative colitis, including how we can do better to ensure trials are completed. This podcast will answer many of your questions about clinical trials, plus we discuss the brand new resource the Foundation has launching later this month! Featured Guest: Michael Osso, President and CEO Crohn's & Colitis Foundation http://www.crohnscolitisfoundation.org/about/staff/ Website: http://www.crohnscolitisfoundation.org/ Facebook: https://www.facebook.com/ccfafb/ Twitter: https://twitter.com/CrohnsColitisFn Need Help With Your IBD? Call Crohn's & Colitis Foundation's Help Line at 888-694-8872 or email info@crohnscolitisfoundation.org Music: A New Beginning - Bensound.com - www.bensound.com/royalty-free-music Acoustic Breeze - Bensound.com - www.bensound.com/royalty-free-music
6 Juli 201729min
Traveling With Crohn's disease and Ulcerative Colitis With Jaime Weinstein
When you fly, do you board early? Once you get on the plane, what's the first thing you do? What's the second? Veteran traveler Jaime Weinstein, who lives with Crohn's disease, answers these questions and more based on her personal experiences when flying the friendly skies. Featured Guest: Jaime Weinstein Twitter: @JaimeEditor Instagram: @slightlyjaided Web Site: http://prettyrottenguts.tumblr.com/ Facebook Groups: https://www.facebook.com/groups/ibdjourney/ https://www.facebook.com/SupportIBD/ Music: Buddy - Bensound.com - www.bensound.com/royalty-free-music Memories - Bensound.com - www.bensound.com/royalty-free-music
21 Juni 20171h
