Positivity Beats IBD With Josef Miller

Ulcerative colitis and Crohn’s disease are complicated. There are choices to make along the treatment journey, which means that patients and their healthcare providers need to work together to find the right path. That’s where shared decision-making comes into play. Healthcare providers can help patients learn about their options but patients need to speak up and help their doctors understand what they want from their treatment options, because it's not always obvious. To better understand shared decision-making in IBD, I speak to Dr Rajeev Jain, a gastroenterologist in private practice in Dallas, Texas and Caitlyn Smith, ulcerative colitis patient and editor at The Mighty. Concepts discussed on this episode include: IBD Parenthood Project Shared Decision-making in IBD IBD Surgery Shared Decision-Making Toolkit Shared Decision-Making: Benefits to Care Shared Decision-Making: Being Prepared American Gastroenterological Association GI Patient Center Find Rajeev Jain, MD on Twitter, Texas Digestive Disease Consultants. Find Caitlyn Smith at The Mighty, Facebook, Twitter, LinkedIn, and Instagram. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio. Episode transcript and more information at https:/bit.ly/AIBD111

7 Mars 202237min

After being diagnosed with a form of IBD, it can be a real challenge to understand that treatment is ongoing. Which might mean taking medications for long periods of time. It also means adding in lifestyle changes such as focusing on nutrition and diet, sleep, exercise, stress reduction, and learning about complimentary treatments that might be helpful. There are a lot of barriers to getting treatment, though, including cost and access. Some people might not realize that not only can their healthcare team can help with accessing and understanding treatment choices, but that complimentary therapies have a valid place in the management of Crohn’s disease and ulcerative colitis. Dr Badr Al-Bawardy, a gastroenterologist specializing in IBD and Assistant Professor of Medicine at Yale University School of Medicine and Tina Haupert, an ulcerative colitis patient, Certified Nutrition Coach, Functional Diagnostic Nutrition Practitioner, and founder of Carrots ‘N’ Cake uncover the ways medication and lifestyle changes can meet in the middle to help people with IBD live a better quality of life. Concepts discussed on this episode include: How the Fecal Calprotectin Test Is Used in IBD Complementary Medicine with Dr. Badr Al Bawardy (YouTube) Causes and Risk Factors of Colon Cancer Why IBD Affects Your Sleep Yoga for Inflammatory Bowel Disease Acupuncture for Ulcerative Colitis (UC) Should You Exercise If You Have IBD? The IBD Anti-Inflammatory Diet Find Badr Al-Bawardy, MD on Twitter, Yale Medicine, and LinkedIn. Find Tina Haupert, FDN-P at Carrots ’N’ Cake, Instagram, Facebook, and the Carrots ’N’ Cake Podcast. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio. Episode transcript and more information at https:/bit.ly/AIBD110

21 Feb 202234min

Setting goals is an important part of managing IBD. But after controlling symptoms: what other goals do patients have? They can be anything from being able to go up and down the stairs, to cooking a meal, to going back to an exercise program. Treating to target is a concept that helps in goal-setting. But patients might not be using this method with their clinicians. Dr Neilanjan Nandi, Associate Professor of Clinical Medicine and IBD specialist at the University of Pennsylvania, Perelman School of Medicine and Jacklyn Green, ulcerative colitis patient, writer, and IBDMom, dig deeper into the idea of treat to target from both sides of the equation. Concepts discussed on this episode include: How the Fecal Calprotectin Test Is Used in IBD What Is a C-Reactive Protein (CRP) Test? Erythrocyte Sedimentation Rate (Sed Rate) Overview The Effect of Nicotine on IBD A Gutsy Feeling Find Neilanjan Nandi, MD at FITWITMD.com, Facebook, Instagram, and Twitter. Find Jacklyn Green at www.jacklynhopes.com, Instagram, and Twitter. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio. Episode transcript and more information at https://bit.ly/AIBD109

7 Feb 202244min

Inflammatory bowel disease (IBD) affects our quality of life. What that means, however, is going to be different for each person. It may depend on many factors including disease severity, access to care, and support structure. The symptoms of ulcerative colitis such as diarrhea can prevent people from taking part in activities that aren’t near a bathroom. Bleeding can cause anemia, leaving people feeling tired and unable to go about regular activities. Not to mention the effects on mental health, relationships, and finances. Danielle Gulden, ulcerative patient, ileostomate, and co-founder of Double Baggin’ It and Dr Nana Bernasko, IBD Nurse Practitioner and Assistant Professor of Medicine in the Division of Gastroenterology and Hepatology at Penn State Health, discuss how to manage the effects of IBD on everyday life. Concepts discussed on this episode include: Rectal Bleeding and Inflammatory Bowel Disease The Impact of UC: Quality of Life The Impact of UC: Complications Types of Ulcerative Colitis (UC) What Inflammatory Bowel Disease Pain Feels Like Can a Gastropsychologist Help With Inflammatory Bowel Disease? Find Dr Nana Bernasko on Instagram, LinkedIn, and Facebook. Find Danielle Gulden of Double Baggin' It on Instagram, Twitter, and Facebook, and Tik Tok. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio. Transcript available at: https://bit.ly/AIBD108

24 Jan 202245min

Once people understand that symptoms like ongoing diarrhea and bloody stools are not normal, they need a way to overcome embarrassment and talk their symptoms over with a health care provider. Having an open and honest conversation will help ensure a quicker diagnosis of ulcerative colitis and getting the right treatment. On this episode, Rasheed Clarke, ulcerative colitis and j-pouch patient and author of Three Tablets Twice Daily and Dr Christina Ha, an IBDologist at the IBD Center at Cedars Sinai, provide support and guidance to patients with IBD symptoms, newly diagnosed patients, and anyone who is looking for a new way to speak with their health care providers about IBD treatments. Concepts discussed on this episode include: Jimmy Kimmel Gets a Colonoscopy with Katie Couric (and Dr Ha) The Impact of UC: Quality of Life How to Find the Best Doctor for Ulcerative Colitis Types of Ulcerative Colitis (UC) Signs and Symptoms of Ulcerative Colitis Comparing 6 Biologic Drugs Used to Treat IBD Find Dr Christina Ha at Cedars-Sinai, LinkedIn, and Twitter. Find Rasheed Clarke at RasheedClarke.com, LinkedIn, and read Three Tablets Twice Daily. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio. Transcript available: https://bit.ly/AIBD107

10 Jan 202244min

How is IBD different in kids than it is in adults? When should kids be transitioned from pediatric to adult care? What’s next for IBD treatments? My guest is Dr Jeffrey Hyams, the head of the Division of Digestive Diseases, Hepatology and Nutrition at Connecticut Children's, and a Professor of Pediatrics at the University of Connecticut School of Medicine. He provides a historical perspective on the treatment of IBD and is able to highlight how therapies have advanced over the last 30 years. He also gives some ideas about what’s on the horizon for IBD treatments and what gives him hope for the future. Concepts discussed on this episode include: How IBD Affects Growth in Kids and Teens Managing Ulcerative Colitis in Children Bradley S. Jerson, PhD, Pediatric Psychologist, who appeared on Episode 77, Episode 78, and Episode 99 Comparing 6 Biologic Drugs Used to Treat IBD Find a transcript and more at: https://bit.ly/AIBD106 Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.

6 Dec 202118min

Inflammatory bowel disease (IBD, Crohn’s disease, ulcerative colitis, and indeterminate colitis) is being diagnosed in young people with greater frequency. Research on how to treat pediatric patients, and indeed how to prevent IBD in the first place, is still lacking. What’s not in short supply is the strength and resilience shown by pediatric IBD patients and their families. Meet Brooke, a pediatric patient at Connecticut Children’s Hospital who credits her dedicated IBD team with her ability to live a life filled with summer camp, dance, and tennis lessons, without the symptoms of ulcerative colitis. Concepts discussed on this episode include: Camp Oasis Bradley S. Jerson, PhD, Pediatric Psychologist, who appeared on Episode 77, Episode 78, and Episode 99 About IBD Podcast Episode 27 – Welcome to Camp Oasis Why Clinical Remission Is Not the Goal in IBD Avoiding Dehydration Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio. Transcript and more information available at: https://bit.ly/AIBD105

21 Nov 202126min

Did you know that being diagnosed with ulcerative colitis or Crohn’s disease is a disqualifying condition to serve in the United States military? However, it seems that it’s not always an automatic reason for discharge. Lt Colonel Joshua Nelson was diagnosed with ulcerative colitis and needed to have ileostomy surgery. It cast into question his future as a pilot in the Air Force Reserve. Learn his story of how he worked with his medical team in order to keep doing the job he loves, his advice for others like him, and tips on flying that any ostomate can use. Concepts discussed on this episode include: Types of Ulcerative Colitis (UC) Pseudopolyps in IBD Cryptosporidium Infection How to Prepare Yourself for Ileostomy Surgery Ulcerative Colitis Surgery Do Men Become Impotent After Ostomy Surgery? Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio. Read the Transcript [PDF]

7 Nov 202128min