Positivity Beats IBD With Josef Miller
About IBD28 Nov 2023

Positivity Beats IBD With Josef Miller

What is it like to be a teen living with Crohn’s disease? If you’re like Josef Miller, you channel the challenges of the diagnosis and management of IBD into action. Josef has written a book about his experiences, entitled "The Purple Rose," and created an initiative called "Positivity Beats IBD," which creates inspirational cards for people living with IBD and other conditions. Learn about Josef's journey with Crohn's, his multicultural background, and how and why he decided to write a book.

Find Josef Miller at:

Find Amber J Tresca at:

Find Mac Cooney (mix, sound design, and theme music) at:

Episode transcript and more information at: https://bit.ly/AIBD143

These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

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We Are Only 1% Human With Dr Sarina Pasricha

We Are Only 1% Human With Dr Sarina Pasricha

What is the microbiome, how might it be connected to IBD and other conditions, and how can it affect health when it's pushed out of balance? Dr Sarina Pasricha of the Christiana Care Health System gives me the scoop on how the microbiome is created when we are young and how it changes with our activities and diet, as well as why we should not try fecal transplants at home, and how a little bit of dirt is good for our kids.   Concepts and ideas discussed in this episode: Christiana Care Health System 2nd Annual GI Symposium: https://events.christianacare.org/event/gi-symposium-2018/ The American Gut Project: http://americangut.org/ Fecal Bacteriotherapy (FB): https://www.verywellhealth.com/fecal-bacteriotherapy-fb-1942426 DINE-CD research study: http://dinecd.web.unc.edu/   Find Sarina Pasricha, MD, MSCR at: Facebook: https://www.facebook.com/DocSarina/ Instagram: https://www.instagram.com/docsarina/   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/   After completing her undergraduate training in biological anthropology and nutrition from Harvard University, Dr. Pasricha attended Northwestern Feinberg School of Medicine for medical school. She subsequently completed her residency and fellowship at the University of North Carolina where she also received a Masters of Science in Clinical Research. She has published extensively in the most respected gastroenterology journals and has given more than 30 national presentations. In addition to receiving numerous teaching awards, she has received prestigious awards from the Howard Hughes Medical Institute and the National Institutes of Health. Dr. Pasricha’s research background will allow her to best use evidence-based medicine to individually treat her patients.   Dr. Pasricha’s clinical interests include, but are not limited to, prevention of colon cancer, evaluation and treatment of gastroesophageal reflux disease and esophageal cancer, and women’s wellness and health with a focus on integrative gastroenterology. She has completed additional subspecialty training in motility disorders with a focus on esophageal motility, constipation, fecal incontinence, and prevention and non-surgical treatment of hemorrhoids.   Dr. Pasricha is a native of Delaware and is an alumnus of Sanford School. She resides in Delaware with her husband and two daughters.

12 Feb 201934min

It’s a Pain I Invite Into My Life

It’s a Pain I Invite Into My Life

A diagnosis of IBD can take away the thing that you feel defines you as a person. This is how it felt for Megan Starshak of The Great Bowel Movement, who describes how her ulcerative colitis diagnosis at age 18 stole her passion for running. The process of losing and then regaining her identity as a runner fueled her desire to help people live well with a diagnosis of IBD. Her foundation seeks to educate those outside the IBD community through the use of a simple conversation prompt: Ask Me About My IBD. Find The Great Bowel Movement at: Web site: https://thegreatbowelmovement.org/ Facebook: https://www.facebook.com/TheGreatBM/ Twitter: https://twitter.com/TheGreatBM Instagram: https://www.instagram.com/TheGreatBM/   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

28 Jan 201924min

How to Apply Critical Thinking to IBD Research

How to Apply Critical Thinking to IBD Research

The internet runs on advertising, which means that editors and writers are often tasked with getting the most possible eyeballs on their story. That can mean that there’s pressure to write a controversial or sensational headline to get those clicks. In this episode, I invite experienced medical writer and university instructor, Shereen Lehman, to weigh in and tell you how to figure out if a story about IBD is good reporting — or if it’s crap.     Articles on critical thinking and research: Should IBD Patients Look To Mouse Studies For Hope?: http://aboutibd.com/2015/02/27/should-ibd-patients-look-to-mouse-studies-for-hope/ 5 Keys to Uncovering Poor IBD Information Online: http://aboutibd.com/2018/03/26/5-keys-to-uncovering-poor-ibd-information-online/ Why You Can’t Trust “Dr Google”: http://aboutibd.com/2016/08/08/why-you-cant-trust-dr-google/ Why Not Every Study on IBD Is a Breakthrough: https://www.verywellhealth.com/why-not-every-study-on-ibd-is-a-breakthrough-4099015   Find Introvert’s Retreat at: Web: https://introvertsretreatbox.com/ Facebook: https://www.facebook.com/introvertsretreatbox/ Instagram: https://www.instagram.com/introvertsretreatbox/   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/     Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

15 Jan 201930min

Wrapping Up About IBD for 2018

Wrapping Up About IBD for 2018

I wanted to let you know what’s happening in the About IBD world and how you can stay in touch and keep up with all the great progress that’s happening!   Find IBD Moms at: Facebook: https://www.facebook.com/IBDMoms/ Twitter: https://twitter.com/ibdmoms Instagram: https://www.instagram.com/ibdmoms/   Find National Ulcerative Colitis Alliance (NUCA) at: Take the survey! https://nuca.life/about-nuca/nuca-survey/ Blog: https://nuca.life/did-uc-blog/ Facebook: https://www.facebook.com/NUCALife/ Twitter: https://twitter.com/nuca_life Instagram: https://www.instagram.com/about_IBD/ LinkedIn: https://twitter.com/NUCALife   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

4 Dec 20185min

It's Important to Share Your Stories

It's Important to Share Your Stories

Why is it important to tell our stories? Every person who has IBD is unique and so is their disease journey. You might not think your experience is relevant to others living with IBD or another chronic condition, but it is, in many ways. A story can provide validation and hope while helping put the reality of life with IBD in perspective. Brooke Abbott of The Crazy Creole Mommy Chronicles and IBD Moms and I continue our discussion of how we can support others with IBD through telling our stories and listening to yours.   Find Brooke Abbott, The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/   Find IBD Moms at: Facebook: https://www.facebook.com/IBDMoms/ Twitter: https://twitter.com/ibdmoms Instagram: https://www.instagram.com/ibdmoms/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

27 Nov 201828min

Community Doesn’t Just Create Itself

Community Doesn’t Just Create Itself

What are your traditions around Thanksgiving? What we eat and how we celebrate Thanksgiving depends on where we live, our ethnicity, and our family traditions. What matters is coming together and remembering to be thankful. Brooke Abbott of The Crazy Creole Mommy Chronicles and IBD Moms tells me about some of her family’s Thanksgiving traditions and how she talks about being grateful with her son. We discuss some of the ways we try to support the IBD community and what we can do better, especially during the hectic and stressful holiday season. Plus, see the end of the show notes for some of Brooke's recipes!   Find Brooke Abbott, The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/   Find IBD Moms at: Facebook: https://www.facebook.com/IBDMoms/ Twitter: https://twitter.com/ibdmoms Instagram: https://www.instagram.com/ibdmoms/   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/   Brooke’s Jambalaya Recipe I cook my rice separately than the meat & broth. Then combine them together. This is the non-spicy version of cajun jambalaya. If you want it spicy you can add crushed red pepper or andouille sausage. Boneless Chicken Breast or Thighs Raw Shrimp w/out the tail Smoke Sausage Ham White Onion Fresh Garlic Bell Pepper Canned Diced Tomatoes Bay Leaf Green Onion Parsley Olive Oil Lemon Pepper Garlic Powder Salt Black Pepper Tony Chachere Creole Seasoning Directions: Use a large stewing pot to cook in and another pot for rice. Season the chicken and shrimp separately with lemon pepper, garlic powder, salt, and Tony’s Chachere Creole Seasoning. Dice onion, garlic, and bell pepper together. Cover the bottom of the pot in a layer of olive oil. Place chicken in and brown on all sides. Remove chicken, dice, and set aside. Add the trifecta of garlic, onions, and peppers to the pot and brown. Add diced ham and sliced smoked sausage. Mix in a can of diced tomatoes and a bay leaf. Add salt and black pepper. Add chicken back in. Simmer. Stir in shrimp. Simmer again for 20 minutes. Add cooked rice and mix together. Garnish with sliced green onion and chopped parsley.   Brooke’s Christmas Spaghetti   You can use any kind of pasta with the sauce.   Ground Turkey or Beef Smoked Sausage Pete’s Hot Sausage or Andouille Sausage Shrimp Ham Canned Peeled Tomato Onion Garlic Bell Pepper Tomato Sauce Salt Pepper Oregano Tony Chachere Creole Seasoning Better than Bouillon Chicken Olive Oil Directions: In a large stew pot brown the ground meat. Once cooked through, add the onions, garlic, and bell pepper. Add ham and smoked sausage. *If adding a spicy sausage like Pete’s Sausage or andouille, brown those in separate pan and then add to the mixture* Add canned peeled tomato and mash into large pieces. Mix in the tomato sauce. Add a teaspoon of Better than Bouillon Chicken. Season with Oregano, salt, and pepper. Mix all together and simmer. Pour over your choice of pasta.

20 Nov 201830min

How Much Information Do You Put Out There?

How Much Information Do You Put Out There?

Dating can be challenging for anyone at any stage in life, but having IBD and/or other chronic conditions adds another level of difficulty that can be disconcerting. Angela Cohen was diagnosed with Crohn’s disease after her intestine perforated. Her long-term relationship ended not long after and she was thrust into the dating world. What she discovered while going on more than a few "first dates” was illuminating not only about how IBD and other autoimmune conditions are perceived by potential partners but also about herself and what she wants to get out of dating, as well as her life goals.   Concepts mentioned in this episode: What Is Postural Orthostatic Tachycardia Syndrome?: https://www.verywellhealth.com/postural-orthostatic-tachycardia-syndrome-pots-1746386 Diagnosing And Treating Dysautonomia: https://www.verywellhealth.com/dysautonomia-diagnosis-and-treatment-1746402   Find Angela Cohen at: Twitter: https://twitter.com/angelee828 Instagram: https://www.instagram.com/ange_lee_me/   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

13 Nov 201841min

I Just Kept Living With Bad Pain

I Just Kept Living With Bad Pain

Even when you’re knowledgeable about IBD, it can still sneak up on you and skew your perception of how much control the disease has over your life. Angelica Catalano, Director of Media Partnerships at The Mighty, describes how ulcerative colitis has affected her since her diagnosis at the age of 6, and how she was living with symptoms on a daily basis. Emergency surgery shook her world, prompting her to make a change in her treatment program to prevent future IBD-related complications. Through her work at The Mighty, Angelica pursues her passion of helping people with chronic illness improve their quality of life by bringing them together with the nonprofits that provide support and resources.    IBD topic areas on The Mighty: Crohn’s disease: https://themighty.com/topic/crohns-disease/ Ulcerative colitis: https://themighty.com/topic/ulcerative-colitis/   Find The Mighty at: Facebook: https://www.facebook.com/TheMightySite/ Twitter: https://twitter.com/TheMightySite Instagram: https://www.instagram.com/themightysite/ Pinterest: https://www.pinterest.com/themightysite/ App Store: https://itunes.apple.com/us/app/the-mighty/id1432324582   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

6 Nov 201841min

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