Amber's Year in Books 2023

Take a journey back to 1999, when cellphones were a rarity, dial-up internet access was still used, and Amber had her first surgery of the 2-step j-pouch process. Amber’s husband Mike, a writer and communicator, journaled his thoughts on the day of the surgery. This journal was recently uncovered and Amber reads it to Mike and gets his reactions and further recollections of that challenging day. You can find out more about Amber and Mike in Episode 8, where you’ll hear about being told surgery was needed and find out about their fairytale wedding: https://soundcloud.com/amber-j-tresca/michael-tresca Conditions and procedures mentioned in this episode: Before, During, and After J-Pouch Surgery https://www.verywell.com/before-during-and-after-j-pouch-surgery-4137938 Central Lines: Why Is a Central Line Necessary? https://www.verywell.com/central-lines-why-is-a-central-line-necessary-3156818 What Are Precancerous Cells? https://www.verywell.com/what-are-precancerous-cells-2248796 Pseudopolyps in Inflammatory Bowel Disease https://www.verywell.com/pseudopolyps-in-inflammatory-bowel-disease-1942411 Find Michael Tresca at: Twitter: https://twitter.com/worldofwelstar Facebook: https://www.facebook.com/worldofwelstar/ Patreon: https://www.patreon.com/talien Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

3 Apr 201852min

Megan Johnson of The Front Butt YouTuber has presented 5 questions for people with IBD to answer and then tag someone else using #IBDAdvocacyTag. It’s a great way to get to know people in the community better and hear different perspectives. My answer to the form of IBD I have is not going to be what you expect and my socially awkward moment is pretty epic: I remember every detail about it, even though it happened almost two decades ago. And who did I tag? Well, I do that in my own way, too. If you decide to participate, use #IBDAdvocacyTag on social media and answer these questions: What form of IBD do you have? Why is IBD advocacy important? Describe a socially awkward moment with IBD. What is a common stigma you run into? What do you want other people to know about IBD? Related articles: Is Discharge From a Rectal Stump Normal? https://www.verywell.com/discharge-from-a-rectal-stump-1942932 An episode mentioned in this podcast: Episode 17 - When IBD Gets Married With Jaime Weinstein Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

20 Mars 201832min

Pregnancy and birth are different for women with IBD. There are not only challenges that come from the disease itself but the lack of awareness about IBD during pregnancy can lead to less than optimal treatment. Brooke Abbott of The Crazy Creole Mommy Chronicles describes how she coped with ulcerative colitis during her pregnancy and a birth that did not go as she’d hoped or as she’d expected. Learn how everything turned out in the end and find out what Brooke and Amber think pregnant women with IBD should do to prepare for birth and for those first few weeks with a new baby.   Web sites mentioned in this episode: Mother to Baby: https://mothertobaby.org/La Leche League: https://www.llli.org/Kelly Mom: https://kellymom.com/Breastmilk Donations: https://www.hmbana.org/ Find Brooke Abbott, The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBDPinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

6 Mars 201840min

Getting married is a joyful time in one’s life. Until you have to bring your IBD and body image difficulties along when you shop for your wedding dress, that is. Learn how Crohn’s disease affected Jaime’s perceptions about body image throughout her life and how it all culminated in a trip to a bridal shop that left her angry and frustrated. Plus, we share our best tips for making the dress shopping, and eventual wedding day attire wearing, go more smoothly if IBD decides to make make an appearance. Ideas and products mentioned in this podcast: The Bridal Buddy, the slip that saves your dress in the bathroom: https://bridalbuddy.net/products/bridal-buddy Find Jaime Weinstein at: Blog: http://prettyrottenguts.tumblr.com/ Twitter: https://twitter.com/JaimeEditor Instagram: https://www.instagram.com/slightlyjaided/ YouTube: http://po.st/prKAKf Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

19 Feb 201848min

Are you unique? Do you represent most patients with IBD? Christy Stone of Crohnie Bologna tells the story of her disease journey, how she feels that she’s not unique as an inflammatory bowel disease patient, why she chooses kindness, and why these things make her a better advocate. Find Christy Stone, Crohnie Bologna, at: Blog: http://www.crohniebolognaibd.com/ Facebook: https://www.facebook.com/CrohnieBolognaIbd/ Twitter: https://twitter.com/CrohnieBologna Instagram: https://www.instagram.com/crohnie_bologna_ibd/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Find Mac Cooney at: Cooney Studio: http://cooneystudio.com/ Facebook: https://www.facebook.com/michaelandrewcooney/ Twitter: https://twitter.com/maccooney Bandcamp: https://michaelandrewcooney.bandcamp.com/ Soundcloud: https://soundcloud.com/maccooney "About IBD with Amber Tresca" © Cooney Studio Additional audio engineering courtesy Mac Cooney

6 Feb 201838min

Welcome to the year-end wrap up show! I put together clips from my first 14 shows that drop the heaviest knowledge bombs about how life with IBD affects us, our careers, our relationships, and our stress levels. Do you have an IBD Elevator Speech? I got you, here’s where you can learn to create yours after you listen to Brooke Abbott give hers: https://www.verywell.com/how-to-create-your-ibd-elevator-speech-1942452 Find Christy Stone, Crohnie Bologna, at: Blog: http://www.crohniebolognaibd.com/ Facebook: https://www.facebook.com/CrohnieBolognaIbd/ Twitter: https://twitter.com/CrohnieBologna Instagram: https://www.instagram.com/crohnie_bologna_ibd/ Find Ryan Stevens, IBD Swimming & Me, at: Blog: http://www.crohnsguy.com/ Facebook: https://www.facebook.com/IBDSwimmer/ Instagram: https://www.instagram.com/rp_stevens/ Find Jaime Weinstein at: Blog: http://prettyrottenguts.tumblr.com/ Twitter: https://twitter.com/JaimeEditor Instagram: https://www.instagram.com/slightlyjaided/ Find Brooke Abbott, The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/ Find Michael Tresca at: Twitter: https://twitter.com/worldofwelstar Facebook: https://www.facebook.com/worldofwelstar/ Patreon: https://www.patreon.com/talien Find Dr Tiffany Taft, PsyD, licensed clinical psychologist, Oak Park Behavioral Medicine at: Blog: http://opbmed.blogspot.com/2017/08/breaking-100-chance-were-all-going-to.html Facebook: https://www.facebook.com/opbmed/ Twitter: https://twitter.com/OPBMed Oak Park Behavioral Medicine: http://www.opbmed.com/ Dr Taft’s Research: https://www.ncbi.nlm.nih.gov/pubmed/?term=taft+th Find Brian Greenberg at: Twitter: https://twitter.com/BrianG_CBY https://twitter.com/ChronicBetterU Instagram: https://www.instagram.com/BrianG_CBY/ https://www.instagram.com/ChronicallyBetterYou/ Facebook: https://www.facebook.com/ChronicallyBetterYou/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Intro Music: Rumble - Bensound.com - www.bensound.com/royalty-free-music Interludes: Love - Bensound.com - www.bensound.com/royalty-free-music Outro Music: Summer - Bensound.com - www.bensound.com/royalty-free-music

4 Jan 201833min

What are your goals? Are you taking steps each day to move towards those goals? Brian Greenberg, endurance athlete and president of Chronically Better You tells us how he moved from goals after surgery—getting out of bed and making his own lunch—to training for an Ironman in 2018. People with IBD know the value of structure and Brian explains how he has learned to manage his life with Crohn’s disease and an ostomy through careful planning and setting goals.   2:35: Why sitting still actually makes Brian feel worse. 3:18: Why a routine is important 4:33: What’s a Half Ironman? 6:41: How to set goals, no matter if they’re big or small 10:20: Why a schedule is important  13:05: On being a model patient 13:57: What happens when you miss a training day? 18:30: What Brian thinks when he looks at his training schedule or during a race 20:02: A nightly routine that helps reduce stress 24:19: The biggest motivating factor in Brian’s life 27:19: Shout out to our partners for the help 29:49: Why it’s best to do you and to not compare to others   Find Brian Greenberg at: Twitter: https://twitter.com/BrianG_CBY https://twitter.com/ChronicBetterU Instagram: https://www.instagram.com/BrianG_CBY/ https://www.instagram.com/ChronicallyBetterYou/ Facebook: https://www.facebook.com/ChronicallyBetterYou/ Find Intense Intestines Foundation at: We Will Beat IBD Podcast: https://itunes.apple.com/us/podcast/we-will-beat-ibd-podcast/id1065350104?mt=2 Web: http://www.intenseintestines.org/ Facebook: https://www.facebook.com/IntenseIntestines/ Twitter: https://twitter.com/NtenseNtestines Instagram: https://www.instagram.com/intense_intestines/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Intro Music: The Jazz Piano - Bensound.com - www.bensound.com/royalty-free-music Outro Music: Soul Food - Purple Planet Music - http://www.purple-planet.com

3 Dec 201742min

Being diagnosed with IBD as a child presents special challenges for kids and for parents. Learn how Brian Greenberg of Intense Intestines Foundation dealt with a Crohn’s disease diagnosis at a young age and transitioned from being a child reliant on parents to help manage his IBD to learning how to manage it all himself. 2:15: Brian spent a lot of time in detention as a kid! 3:15: The hardest part of going to school with IBD. 5:00: Brian's first resection: at 21. 7:00: Deciding to get an ostomy and what that meant for the future. 9:00: How an ostomy and a Ken butt made life better. 11:00: The misunderstandings that can happen when your peers don’t understand about IBD. 14:00: Why do people not just ask about why a person may appear sick? 16:00: How Brian manages to stay active with Crohn’s disease. 16:30: How being active can help with the mental aspects of coping with IBD. 17:34: Why distractions can actually be beneficial at times. 19:00: One of the things Brian has done that maybe is a little risky. But super fun. 19:40: How Brian managed an aggressive medication schedule in the 90s. 20:20: Brian’s experience in transitioning from parents managing everything IBD to him managing it himself. Find Brian Greenberg at: Twitter: https://twitter.com/BrianG_CBY https://twitter.com/ChronicBetterU Instagram: https://www.instagram.com/BrianG_CBY/  https://www.instagram.com/ChronicallyBetterYou/ Facebook: https://www.facebook.com/ChronicallyBetterYou/ Find Intense Intestines Foundation at: We Will Beat IBD Podcast: https://itunes.apple.com/us/podcast/we-will-beat-ibd-podcast/id1065350104?mt=2 Web: http://www.intenseintestines.org/ Facebook: https://www.facebook.com/IntenseIntestines/ Twitter: https://twitter.com/NtenseNtestines Instagram: https://www.instagram.com/intense_intestines/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Intro Music: Badass - Bensound.com - www.bensound.com/royalty-free-music Outro Music: The Lounge - Bensound.com - www.bensound.com/royalty-free-music

2 Nov 201731min