Summer of Activism: Connecting the Numbers to a Story
In the final episode of my Summer of Activism Series, I asked Brooke Abbott of The Crazy Creole Mommy Chronicles to help us better understand Congressional Briefings. During Crohn’s and Colitis Awareness Week, she spoke at a briefing about IBD and minority health. It was an opportunity to bring awareness to this little-discussed factor of IBD and it presented some challenges and opportunities. Learn more about Congressional Briefings, how they are an important tool for advocacy groups, and how they have an impact on public policy. See video of the Congressional Briefing on IBD & Population Health: https://www.facebook.com/ccfafb/videos/452493261950841/ Find Brooke Abbott of The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/ Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/
27 Aug 201916min
Summer of Activism: It's Now or Never
If you have the chance to speak on behalf of the inflammatory bowel diseases (IBD) community: would you take it? At first, volunteer and Crohn’s disease advocate Keri Flaccomio wondered if she had a right to attend a day on the hill event with the Crohn’s and Colitis Foundation and lobby in Washington DC on behalf of the IBD community. Her experiences while she was on the hill helped her to understand that not only did she have the right, but she also had a responsibility to tell her story — and the stories of others living with IBD. Learn how Keri made her hill meetings more effective and how they helped her to become empowered as an activist. Find Keri Ann Flaccomio at: Tumblr: https://mygutfeelings.tumblr.com/ Website: http://www.keriannflaccomio.com/ Instagram: https://www.instagram.com/keriannecdotes Twitter: http://www.twitter.com/keriannecdotes LinkedIn: https://www.linkedin.com/in/keriannflaccomio/ Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/
19 Aug 201928min
Summer of Activism: Have Your Voice Heard on the Hill
The inflammatory bowel diseases (IBD) can make people feel powerless and isolated. Participating in day on the Hill events in Washington DC with patient advocacy groups are one way to take back control and have your voice heard by those who can help affect change. Hear from Jaime Holland of Pretty Rotten Guts, who describes her experiences in lobbying on Capital Hill including why it’s important to her, how she navigates the day with mobility issues, and why the experience is empowering. Download your FREE copy of the new single, "IBD Dance Party," by signing up for the About IBD newsletter here: http://aibdnewsletter.aboutibd.com/music Find Jaime Holland of Pretty Rotten Guts at: Blog: http://prettyrottenguts.tumblr.com/ Twitter: https://twitter.com/JaimeEditor Instagram: https://www.instagram.com/slightlyjaided/ YouTube: http://po.st/prKAKf Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/
13 Aug 201917min
Summer of Activism: Attending Day on the Hill
How does an IBD patient attend Day on the Hill events and meet with the offices of congressional representatives in Washington DC? What is it like to go to these events? In this episode I describe how I got involved in hill day meetings, why I do it, and what the process is like to attend. I also offer you my tips on how to make the best of the time spent in the capital in order to make the biggest impact on the people who can affect change in the lives of IBD patients. How to Get Involved: Crohn’s and Colitis Foundation—Be an Advocate: https://www.crohnscolitisfoundation.org/get-involved/be-an-advocate International Foundation for Gastrointestinal Disorders—Advocate for Digestive Health: https://www.iffgd.org/advocate-for-digestive-health.html United Ostomy Associations of America—Advocates for a Positive Change: https://www.ostomy.org/advocacy/ Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/
30 Juli 201916min
Summer of Activism: Getting Kids Involved in Advocacy
How young is "too young" to get kids involved in activism? Gastroenterologist and activist Dr Meenakshi Bewtra started her kids on their activism journey at birth and continues by bringing them to marches, voter registration events, and postcard writing parties. Dr Bewtra shares her tips on how you can involve your kids in activism, why you should, and how it might make your life as a parent — and activist — a bit easier. Find Meenakshi Bewtra, MD, MPH at: Twitter: https://twitter.com/DrsMeena Penn Medicine: https://www.pennmedicine.org/providers/profile/meenakshi-bewtra Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/
23 Juli 201925min
Summer of Activism: Attending a Town Hall
Working with our local elected officials is important to having our voices heard. But attending local town hall meetings held by state or federal congressional representatives is daunting, especially if you’ve never done it before. Shawntel Bethea of Chronically Strong describes her journey from sending an email to asking for support from her Congresswoman at a meeting in her district. She gives her tips on how you can make an impact in your community for people living with IBD. Find Shawntel Bethea of Chronically Strong, at: Blog: https://chronicallystrong.com/ YouTube: https://www.youtube.com/channel/UCrklcLJ7FvGtN-fOvJJM-jQ Facebook: https://www.facebook.com/chronicallystrongblog/ Twitter: https://twitter.com/shawnbethea_ Instagram: https://www.instagram.com/chronicallystrongblog/ Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/
16 Juli 201913min
Summer of Activism: Going to Medical Meetings
For this first episode of my limited series, Summer of Activism, I’m answering a question that I hear regularly: how it is that I go to medical meetings such as Digestive Disease Week, Advances in IBD, or Crohn’s and Colitis Congress. I give you the answer as well as tips on how patients, bloggers, podcasters, and vloggers can work towards attending these, and other, scientific meetings. Here’s a spoiler: it takes dedication to improving the lives of people with IBD, commitment to doing the work consistently, and some professional networking. Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credit: "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/
9 Juli 20199min
Where Do We Go From Here?
What’s new in inflammatory bowel disease (IBD) treatments and what’s next on the horizon? Dr Peter Higgins, a gastroenterologist, IBD specialist, and researcher at the University of Michigan discusses what’s new in IBD from the Crohn’s and Colitis Congress meeting in 2019. We talk fecal transplants, healing strictures in the intestines, and the feasibility of custom ostomy products. It’s a conversation about cutting edge research on Crohn’s disease and ulcerative colitis mixed with the practicality of using these treatments in the real world. Concepts and ideas discussed: Fecal transplants: https://www.verywellhealth.com/fecal-bacteriotherapy-fb-1942426 Stem cells for IBD: https://www.everydayhealth.com/digestive-health/are-stem-cells-the-key-to-fighting-ibd.aspx Precision medicine for pediatric patients: https://www.crohnscolitisfoundation.org/news/Pediatric-RISK Preclinical Human IBD Mechanisms: https://www.crohnscolitisfoundation.org/research/challenges-ibd/preclinical-human-ibd-mechanisms 3-D printing for ostomy: https://healthblog.uofmhealth.org/digestive-health/how-3-d-printing-makes-ostomy-more-personal-and-less-problematic Find Dr Peter Higgins at: Bio: http://www.med.umich.edu/higginslab/pdrhBio.html Twitter: https://twitter.com/ibddoctor U of M IBD School: https://www.youtube.com/user/higgi13425 University of Michigan IBD Team: https://www.facebook.com/UMIBD/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/
24 Juni 201925min
