Episode 3 - Autism and I/DD Housing, with Scott Mendel and Ashley Kim Weiss of Together for Choice

Episode 3 - Autism and I/DD Housing, with Scott Mendel and Ashley Kim Weiss of Together for Choice

What are the different types of housing for autistic and I/DD adults? What's an ICF? What are Home and Community-Based Services? Why are waitlists so long? Why do some disability rights advocates attack freedom of choice in housing? Scott Mendel and Ashley Kim of Together for Choice put it in perspective, hosted by Jill Escher.

Highlights:

• What are ICFs? Is there really an entitlement? Sort of, but it may be far away and of low quality. What different kinds of ICFs are out there? The real reason that state-run ICFs are more expensive than private ICFs.

• What is HCBS? Why are there such long waitlists in most states? The problem of the lack of political will.

• Why we need a person-centered full continuum of care rather than arbitrary rules about housing settings.

• Absurd state rules that place autistic clients in more costly and inappropriate settings.

• How severely autistic clients with HCBS can become isolated and disconnected from the community.

• The severe staffing crisis seen across the country.

• The need for families to meet with legislators and share their stories. Advocacy matters.

Links:

Together for Choice: http://togetherforchoice.org

NCSA National Grassroots Network: https://www.ncsautism.org/nationalnetwork

About

Autism Confidential (AutismConfidential.org) is a production of the National Council on Severe Autism. NCSAutism.org.

All views expressed on Autism Confidential are those of the individual speakers, and do not necessarily reflect the views of NCSA or its board of directors. The podcast is for informational purposes only and does not offer any medical or legal advice.

Produced by Lee Syatt. Do you want to start a podcast? Go to www.leesyattconsulting.com

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Episode #034 - Medicaid Funding for Autism Services, Part 1 with Melissa Harris, CMS

Episode #034 - Medicaid Funding for Autism Services, Part 1 with Melissa Harris, CMS

We are happy to present a two-part series with Melissa Harris, Deputy Director, Disabled and Elderly Health Programs Group, Centers for Medicare and Medicaid Services (CMS). Her role is to develop and...

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Episode #033 - Bridging the Divide

Episode #033 - Bridging the Divide

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Episode #032 - The Case for Profound Autism, with Dr. Lee Wachtel

This is an audio recording of the NCSA March 14, 2023 webinar featuring Dr. Lee Elizabeth Wachtel, one of the world's foremost clinicians serving patients with severe and profound autism. She is Medic...

27 Mars 20231h 16min

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Episode #031 - A Rare Gem: Paul Aronsohn, New Jersey's Ombudsman for I/DD

We are very fortunate to host Paul Aronsohn, New Jersey Ombudsman for Individuals with Intellectual or Developmental Disabilities and Their Families. Paul serves a unique role not seen in any other st...

20 Mars 202356min

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Episode #029 - Just Say No to the Bullying of Autism Parents

Pioneering autism advocate Thomas McKean joins us again (he first appeared in Ep 13) to discuss the bizarre online phenomenon of anti-parent bullying by militant autism self-advocates. Like witch hunt...

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Episode #028 - Finding the Fun: Skiing and Sports with Severe Autism

Episode #028 - Finding the Fun: Skiing and Sports with Severe Autism

Outdoor activities bring joy to countless people with autism, all across the spectrum. We are incredibly honored to have two of the nation's top leaders in the field of sports and outdoor recreation f...

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Episode 027 - Thriving with Severe Autism at Bittersweet Farms

Episode 027 - Thriving with Severe Autism at Bittersweet Farms

Bittersweet Farms, established in the mid-1980s in Ohio, is a pioneering model of a farmstead-based residential and day program serving adults with autism complex behavioral needs. In a world where se...

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