Episode 10 - Unseen: Jess Ronne and a New Documentary about Extreme Caregiving

Episode 10 - Unseen: Jess Ronne and a New Documentary about Extreme Caregiving

Jess Ronne, mother of 8, including a teen son with autism and other neurodevelopmental disorders, is the main protagonist of a new documentary film, Unseen: How We're Failing Parent Caregivers. Jill Escher talks with her about the genesis of the film, its goals and reaching new audiences with her important message. Highlights:

• As the title suggests, these stories of extreme caregiving tend to be hidden from the public eye. The film gives these families a voice and tells their stories.

• While the film reveals a certain amount about their son Lucas, it does not portray the most harrowing aspects of his disability.

• Jess wants community members and churches to become more supportive of families living with children and adults with extreme special needs.

• Caregivers are in desperate need for more support at home and also day and residential programs.

• It’s okay for caregivers to say, “I don’t want to do this for the rest of my life.”

Links:

Home of Unseen: Caregiverdoc.com

Unseen trailer here

The Lucas Project here

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(60)

Special: Mothers Day 2026 - Amplifying Mothers

Special: Mothers Day 2026 - Amplifying Mothers

Across seventeen separate kitchens and living rooms, the same patterns surface. Children who cannot describe their own symptoms have aggressive behaviors read as "just autism" instead of as pain, neur...

11 Maj 58min

Autism Wars - After Action Review with Jonathan Machnee

Autism Wars - After Action Review with Jonathan Machnee

Jonathan Machnee did close to a decade inside the neurodiversity movement as a true believer. Then his military intelligence training kicked in. He started analyzing the battlefield, mapping the facti...

21 Apr 1h 50min

Episode #058 - Crisis Care for Severe and Profound Autism

Episode #058 - Crisis Care for Severe and Profound Autism

Arzu Forough, President and CEO of Washington Autism Alliance, is our guest discussing crisis care for severe/profound autism. She discusses medical necessity, governing policies such as Medicaid, men...

3 Juni 20241h 18min

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

National Council on Severe Autism Webinar, May 15, 2024 We feature Eileen Lamb, one of the most visible and prolific social media personalities in the autism world. Eileen is an author, blogger, photo...

3 Juni 20241h 13min

Episode #056 - Sounding Off About Autism Month

Episode #056 - Sounding Off About Autism Month

Autism Confidential returns to its usual podcast format for a discussion about April, Autism Month featuring host Jill Escher and guest Thomas McKean, a pioneering autism self-advocate. Jill and Tom d...

22 Apr 202459min

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Karen Fessel, executive director of the Mental Health and Autism Insurance Project, returns to our National Council on Severe Autism webinar series to explain how insurance coverage works for children...

22 Apr 20241h 17min

Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Featuring: Ashley Kim, Together for Choice Jackie Ceonzo, SNACK* NYC Note: For a video recording with slides, please see NCSAutism.org/webinars. There is a nationwide shortage of long term supports ...

4 Mars 20241h 23min

Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

This episode features Stephanie M. Morris , MD, is Medical Director, Center for Autism Services, Science and Innovation (CASSI) At Kennedy Krieger Institute, Baltimore. She is a neurologist with speci...

1 Mars 20241h 22min

Populärt inom Business & ekonomi

badfluence
framgangspodden
varvet
rss-borsens-finest
svd-tech-brief
uppgang-och-fall
avanzapodden
rss-svart-marknad
rss-dagen-med-di
24fragor
lastbilspodden
fill-or-kill
bathina-en-podcast
rss-inga-dumma-fragor-om-pengar
borsmorgon
kapitalet-en-podd-om-ekonomi
rikatillsammans-om-privatekonomi-rikedom-i-livet
dynastin
tabberaset
rss-den-nya-ekonomin