Episode #042: Jackie Ceonzo: A Hero Serving Severe Autism in NYC

Episode #042: Jackie Ceonzo: A Hero Serving Severe Autism in NYC

If Jill were to create a pantheon of Autism Gods, Jackie Ceonzo would be right there in the center. She is the rare autism mom who struck out to create recreational and enrichment classes and activities for children and adults with severe forms of autisms. Including "the biters," as Jackie puts it. The kids who routinely get rejected from other special needs programs because of their behaviors. The kids who cost the most money. Jackie is a force of nature who founded SNACK*, a program located in midtown Manhattan, where clients can access a wide variety of options and "Snacktivities," including swim, art, music, yoga, soccer and cooking lessons. The ratio is typically 1:1 depending on client needs. It's a rare gem that should be available, well, everywhere, but she faces many obstacles, including discriminatory policies that penalize programs for those with severe autism, and the need to raise a lot of money to cover the considerable costs.This is a can't-miss episode!Links:SNACK* NYC: https://www.snacknyc.com
Shop Cup of Joe Coffee and other items: https://shop.snacknyc.com

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Episode #058 - Crisis Care for Severe and Profound Autism

Episode #058 - Crisis Care for Severe and Profound Autism

Arzu Forough, President and CEO of Washington Autism Alliance, is our guest discussing crisis care for severe/profound autism. She discusses medical necessity, governing policies such as Medicaid, men...

3 Juni 20241h 18min

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

National Council on Severe Autism Webinar, May 15, 2024 We feature Eileen Lamb, one of the most visible and prolific social media personalities in the autism world. Eileen is an author, blogger, photo...

3 Juni 20241h 13min

Episode #056 - Sounding Off About Autism Month

Episode #056 - Sounding Off About Autism Month

Autism Confidential returns to its usual podcast format for a discussion about April, Autism Month featuring host Jill Escher and guest Thomas McKean, a pioneering autism self-advocate. Jill and Tom d...

22 Apr 202459min

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Karen Fessel, executive director of the Mental Health and Autism Insurance Project, returns to our National Council on Severe Autism webinar series to explain how insurance coverage works for children...

22 Apr 20241h 17min

Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Featuring: Ashley Kim, Together for Choice Jackie Ceonzo, SNACK* NYC Note: For a video recording with slides, please see NCSAutism.org/webinars. There is a nationwide shortage of long term supports ...

4 Mars 20241h 23min

Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

This episode features Stephanie M. Morris , MD, is Medical Director, Center for Autism Services, Science and Innovation (CASSI) At Kennedy Krieger Institute, Baltimore. She is a neurologist with speci...

1 Mars 20241h 22min

Episode #052 - National Council on Severe Autism Webinar, February 15, 2024

Episode #052 - National Council on Severe Autism Webinar, February 15, 2024

National Council on Severe Autism Webinar, February 15, 2024, featuring: Jill Escher, Escher Fund for Autism Walter Zahorodny, PhD, Rutgers University This webinar examines the most important and poor...

19 Feb 20241h 41min

Episode #051 - The Reauthorization of the Autism CARES Act

Episode #051 - The Reauthorization of the Autism CARES Act

This episode features Alison Singer, president of Autism Science Foundation, and Craig Snyder of IKON Consulting, discussing why the Autism CARES Act should be reformed before it is re-authorized. Thi...

12 Feb 20241h 18min

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