Episode #045 - How to Be an Autism Advocate in Your State

Episode #045 - How to Be an Autism Advocate in Your State

State policy is hugely consequential for autism families — from state Medicaid programs, to support worker wages, to health care, to guardianship, to recreation and respite. This week we bring you the audio of an NCSA webinar held on September 13, 2023 focusing on advocacy at the state level. If you'd like to see the video or slides, please see our website NCSAutism.org.
We start with an intro to federal policy, with Gayle Gerdes, Health Policy Source, who is helping NCSA on voicing our positions on federal policy matters. Then our main speaker is Susan Goldstein, a dynamo mother of a young woman with severe autism who parlayed her passion for autism programs into creating Florida legislation that expanded autism services in the state, and was later elected a state representative. Today she serves as a lobbyist for the Legis Group in Florida. Susan was featured in a prior Autism Confidential podcast, and this episode greatly expands on the concepts she discussed there — with a huge abundance of advice and inspiration. Hosted by Jill Escher and Leanne Morphet, NCSA Policy Chair.

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Avsnitt(60)

Special: Mothers Day 2026 - Amplifying Mothers

Special: Mothers Day 2026 - Amplifying Mothers

Across seventeen separate kitchens and living rooms, the same patterns surface. Children who cannot describe their own symptoms have aggressive behaviors read as "just autism" instead of as pain, neur...

11 Maj 58min

Autism Wars - After Action Review with Jonathan Machnee

Autism Wars - After Action Review with Jonathan Machnee

Jonathan Machnee did close to a decade inside the neurodiversity movement as a true believer. Then his military intelligence training kicked in. He started analyzing the battlefield, mapping the facti...

21 Apr 1h 50min

Episode #058 - Crisis Care for Severe and Profound Autism

Episode #058 - Crisis Care for Severe and Profound Autism

Arzu Forough, President and CEO of Washington Autism Alliance, is our guest discussing crisis care for severe/profound autism. She discusses medical necessity, governing policies such as Medicaid, men...

3 Juni 20241h 18min

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

National Council on Severe Autism Webinar, May 15, 2024 We feature Eileen Lamb, one of the most visible and prolific social media personalities in the autism world. Eileen is an author, blogger, photo...

3 Juni 20241h 13min

Episode #056 - Sounding Off About Autism Month

Episode #056 - Sounding Off About Autism Month

Autism Confidential returns to its usual podcast format for a discussion about April, Autism Month featuring host Jill Escher and guest Thomas McKean, a pioneering autism self-advocate. Jill and Tom d...

22 Apr 202459min

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Karen Fessel, executive director of the Mental Health and Autism Insurance Project, returns to our National Council on Severe Autism webinar series to explain how insurance coverage works for children...

22 Apr 20241h 17min

Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Featuring: Ashley Kim, Together for Choice Jackie Ceonzo, SNACK* NYC Note: For a video recording with slides, please see NCSAutism.org/webinars. There is a nationwide shortage of long term supports ...

4 Mars 20241h 23min

Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

This episode features Stephanie M. Morris , MD, is Medical Director, Center for Autism Services, Science and Innovation (CASSI) At Kennedy Krieger Institute, Baltimore. She is a neurologist with speci...

1 Mars 20241h 22min

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