The Pros and Cons of DBS Surgery, with DBS Patient Amybel Taylor
In this episode, we sit down with DBS patient Amybel Taylor as she shares her journey of being diagnosed with dystonia at a very young age. After years of living with the condition, Amybel, with the s...
20 Feb 20251h 16min
Mikko Juutinen on Pivoting Your Career and Hobbies With Dystonia
In this episode we meet Dr Mikko Juutinen, a former practicing dentist who has been diagnosed with dystonia in his hands, legs, calves and back. His diagnosis has led to pivoting in his career as well...
23 Jan 202526min
Dr. Michael Zech on Dystonia Research and Receiving the David Marsden Award 2023
In this episode we meet Dr Michel Zech from the Institute of Human Genetics, Technical University of Munich and the Institute of Neurogenomics, Helmholtz Zentrum München, in Munich, Germany. Dr Zech ...
21 Nov 202428min
Jenny Sixt Shares All About Alexander Technique - A Fascinating Alternative Therapy for Dystonia
In this episode of The Positive Twist Podcast Jenny Sixt joins us to share about a fascinating therapy called Alexander Technique. "The Alexander Technique is a skill for self-development teaching you...
17 Okt 202424min
DBS Treatment and The Importance of Team Effort with Prof. Alfonso Fasano
In this episode of The Positive Twist Podcast we have an informative and fascinating conversation about dystonia and DBS with Professor Alfonso Fasano from the University of Toronto. We walk through ...
19 Sep 20241h 1min
Beyond the Diagnosis: Living Day-to-Day with Dystonia, Featuring Adam Kalinowski
This episode is in remembrance of Adam Kalinowski, who passed away just over a year ago. Dystonia Europe honors his profound impact and enduring legacy serving as our President and serving the Dystoni...
29 Jan 202455min
Finding Answers in the Patient Community With Merete Avery
In this episode Merete Avery, a board member from Dystonia Europe shares her dystonia story from first symptoms to diagnosis and finding the right treatment thanks to getting involved in the local pat...
8 Nov 202328min
Jan's Journey With DBS, Featuring DBS Nurse Russell
In this episode we meet dystonia patient Jan Farnworth and DBS nurse Russell Mills. Jan shares her story of living with dystonia and Russell about serving dystonia patients in supporting their journey...
25 Sep 202338min
