The CHC Podcast: Congenital Heart Chronicles28 Maj 2024

Parental Advocacy and Love in the Face of Congenital Heart Defects

Imagine handing over your two-day-old infant for surgery, not knowing what the future holds. Join us in this poignant episode of The CHC Podcast as we share the incredible journeys of Regina Lawrence, Anna Jaworski, and Hava Simkhay, three mothers whose lives were forever changed by their children's congenital heart defects. They recount their experiences of navigating multiple surgeries, the anguish of delayed diagnoses, and the resilience needed to support their children through critical medical interventions.

Hava opens up about the emotional rollercoaster of her son's heart condition, from early diagnoses to a life-saving heart transplant. Her story highlights the indispensable role of medical professionals and the vital support from an online community of transplant patients and families. Discover how shared experiences and encouragement from others who have faced similar battles provided Hava with the strength to persevere during her son's recovery.

Advocacy and love shine brightly in this episode, with insights from Anna, Frank, and Regina on the importance of seeking second opinions and building strong relationships with medical providers. Hear how parental determination and the unwavering support of anesthesia providers have a profound impact on patient care. Stay tuned as we preview next month's topic, World Heart Rhythm Week, and invite you to continue the conversation on social media.

If you enjoyed this episode and would like to support the program, please join our Supporter's Club: https://www.spreaker.com/podcast/the-chc-podcast--5779157/support

If you'd like to be a Patron or join our group of volunteers, check out our website: https://www.heartsunitetheglobe.com

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(43)

Navigating Emotional Transitions with CHD

(00:00:00) Naming the Unspoken (00:00:26) Welcome and Topic Setup (00:01:21) Meet the Panel (00:04:07) Corinne on Life Decades (00:06:55) Insurance and Anxiety Relief (00:09:18) Jen Finds Her Voice (0...

2 Aug 1h 12min

Heart Camps That Change Lives

(00:00:00) Welcome And Why Heart Camps Matter (00:02:50) Beat Retreat Begins For Adults (00:03:52) Camp Life Plus Anonymous Q&A (00:05:53) Camp Meridian For Kids And Teens (00:09:15) Accessibility And...

30 Juni 53min

After the Shock: From Diagnosis to Direction

(00:00:00) Welcome And Meet The Panel (00:03:12) The First Appointment Shock (00:06:39) Dismissed Symptoms And Second Opinions (00:08:16) Fight Or Flight And Family Pressure (00:12:01) How To Prepare ...

16 Juni 47min

Stroke Awareness: Awareness Today, Stronger Tomorrow

(00:00:00) Introductions And Stroke Risk In CHD (00:03:40) What The First Symptoms Felt Like (00:10:09) Stroke Watch Meds And Follow Up (00:12:21) The Surprising Aftereffects Of Stroke (00:17:27) List...

31 Maj 1h 12min

Easing Anxiety Before the Operating Room

(00:00:00) A Lifelong Patient’s Reality (00:01:16) What Triggers Pre-Op Anxiety (00:04:10) Frank’s OR Calm And Clear Words (00:09:05) Hypnotic Rapport And Familiar Voices (00:14:45) Music Therapy Tool...

28 Apr 57min

Tested Love Documentary On Faith And CHD Trauma

(00:00:00) Welcome! (00:02:06) A Heart Dad Chooses Hope (00:04:14) Demi's Miracle Through Music (00:08:23) Coping with Trauma Through Faith (00:11:48) Why Men's Mental Health Matters (00:15:11) CHD Re...

23 Mars 54min

New Year, New Narratives

In the first episode of Season 4, Anna Jaworski announces that The CHC Podcast: Congenital Heart Conversations has been reintroduced as Congenital Heart Chronicles after listener voting. This reflects...

1 Mars 36min

Caring Through Complexity: End-of-Life Care

(00:00:00) Introduction and Episode Overview (00:00:17) Meet the Hosts and Co-Producer (00:01:04) Introducing Today's Guests (00:03:34) Misconceptions About Hospice Care (00:06:14) Psychological Persp...

29 Dec 20251h 3min