Episode 19: Your Story Matters

Cameron Nix joined the podcast for Episode 21 and talked about navigating the first year of his daughter's diagnosis.

20 Okt 202324min

Madelynn Joan passed away on August 30, 2023. Many of you reached out to us to convey that you would like to be there but could not make the prayer service or funeral. This was Adam's eulogy that he r...

15 Sep 202312min

Maddie went through her first IEP meeting. Since Maddie has Angelman Syndrome, these Individualized Education Plans will be updated year after year. Hear how our first one went.

19 Maj 202314min

A quick preview of episode 18 will be all about Maddie's first IEP meeting. I'll go over how it went, how I prepared, and what I wish I would have done differently.

12 Maj 202342s

Having a child with multiple specialists is hard. It's even harder when you have to adapt to a new provider who doesn't know all of the ins and outs of Angelman Syndrome or your child.

5 Maj 202315min

In episode 16 of Maddie's Joy: An Angelman Journey, I discuss how a new phrase caused me to look inward. Being a parent to an Angelman Syndrome child can be hard. I discuss some of my shortcomings as ...

28 Apr 202319min

Aaron Ferguson was kind enough to share his experience as a sibling of an Angelman individual. We discuss how he maintains a strong relationship with his brother as well as some of his experiences alo...

21 Apr 202325min