TWiPO #95: Patient Advocates’ Views in Neuroblastoma with Nick Bird & Donna Ludwinski

TWiPO #95: Patient Advocates’ Views in Neuroblastoma with Nick Bird & Donna Ludwinski

WATCH THE VIDEO WEBCAST HERE: https://youtu.be/rFd4Fwa_XVg

Hosts, Dr. Timothy Cripe and Dr. Brenda Weigel, are joined Solving Kids’ Cancer’s patient advocates, Nick Bird & Donna Ludwinski. Nick & Donna, along with other patient advocates, recently published a groundbreaking report, “When Innovation and Commercialization Collide: A Patient Advocate View in Neuroblastoma“. Listen in as they discuss the importance of advocacy and being the voice of cancer patients and their families, and how all stakeholders (i.e. academia, advocates, and big pharma) can collaborate and advance treatment options for pediatric cancer patients.

You can read their full paper here: https://ascopubs.org/doi/full/10.1200/JCO.21.01916?bid=123546590&cid=DM9111

Have any thoughts? Questions? Ideas for future topics? Email us at TWIPO@solvingkidscancer.org.

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Avsnitt(113)

DFMO FDA Approval with Dr. Nicole Drezner

DFMO FDA Approval with Dr. Nicole Drezner

In this episode Dr. Timothy Cripe and Dr. Brenda Weigel are joined by FDA's Dr. Nicole Drezner, pediatric oncologist and the Deputy Division Director of the Division of Oncology 2 who led the FDA revi...

14 Jan 202535min

New Focused Ultrasound Study for Progressive Diffuse Midline Glioma

New Focused Ultrasound Study for Progressive Diffuse Midline Glioma

Dr. Luca Szalontay,  Assistant Professor of Pediatrics at Columbia University Medical Center, discusses the work of Columbia's Initiative for Drug Delivery Innovation which is exploring new treatments...

5 Mars 202424min

TWiPO #111: A Discussion on Oncofertility/Fertility Preservation with Dr. Seth Rotz

TWiPO #111: A Discussion on Oncofertility/Fertility Preservation with Dr. Seth Rotz

WATCH THE VIDEO WEBCAST HERE: https://youtu.be/ACFprGG10M0 In this episode, our host, Dr. Timothy Cripe from Nationwide Children’s Hospital, is joined by Dr. Seth Rotz - pediatric hematologist/oncolog...

15 Juni 202326min

TWiPO #110: Discussing the ”Gift from a Child” Program with Al Gustafson & Dr. Angela Waanders

TWiPO #110: Discussing the ”Gift from a Child” Program with Al Gustafson & Dr. Angela Waanders

WATCH THE VIDEO WEBCAST HERE: https://youtu.be/jj3wJU0G7GI Listen in as our hosts, Dr. Tim Cripe & Dr. Brenda Weigel, are joined by Al Gustafson, from The Swifty Foundation, and Dr. Angela Waanders, f...

26 Apr 202333min

TWiPO #109: Discussing the Early Detection of Cancer Using Genomics with Dr. Trevor Pugh

TWiPO #109: Discussing the Early Detection of Cancer Using Genomics with Dr. Trevor Pugh

Listen in & join the TWiPO team in this special live recorded episode. Our host, Dr. Tim Cripe, along with his Nationwide Children’s Hospital colleagues, Dr. Ryan Roberts, Dr. Elaine Mardis & Dr. Kath...

29 Mars 202327min

TWiPO #108: Hepatoblastoma: A Physician & Patient Family’s Story with Dr. Jim Geller & The Woolwines

TWiPO #108: Hepatoblastoma: A Physician & Patient Family’s Story with Dr. Jim Geller & The Woolwines

WATCH THE VIDEO WEBCAST HERE: https://youtu.be/yyQ08ny_hDU Join our host, Dr. Timothy Cripe from Nationwide Children's Hospital, as he’s joined with Dr. Jim Geller from Cincinnati Children’s Hospital ...

27 Feb 202341min

TWiPO #107: Discussing the International rEECur Trial for Ewing Sarcoma with Dr. Martin McCabe

TWiPO #107: Discussing the International rEECur Trial for Ewing Sarcoma with Dr. Martin McCabe

WATCH THE VIDEO WEBCAST HERE: https://youtu.be/Z1D-7i4oy1s   Our host, Dr. Timothy Cripe from Nationwide Children's Hospital, is joined by Dr. Martin McCabe from the University of Manchester to discus...

9 Feb 202332min

TWiPO #106: Genetic Predisposition in Childhood Cancer with Dr. Garrett Brodeur

TWiPO #106: Genetic Predisposition in Childhood Cancer with Dr. Garrett Brodeur

WATCH THE VIDEO WEBCAST HERE: https://youtu.be/oR0KN5VFDVc Tune in as our host, Dr. Brenda Weigel from the University of Minnesota, is joined by Dr. Garrett Brodeur to discuss his expertise in genetic...

18 Jan 202335min

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