Living With Cystic Fibrosis8 Jan 2024

Queen Kwong, AKA Carre Callaway -rock n roll and CF

Carre Callaway (Queen Kwong) tours in the U.S., U.K. and wherever her music takes her. Carre ended her tour and was in Los Angeles when we talked with her on this podcast. She talks about how music was a coping mechanism for her chaotic life. When Carre was 17 years old, a chance meeting with Trent Reznor of Nine Inch Nails, turned her life around. Carre and I met after she was newly diagnosed with CF when she was 30 years old (being a white American and of Chinese descent her doctors didn't think she could have CF), and amid a messy divorce with a famous musician. She talks about being abandoned by her husband and friends after the diagnosis.This is her first in-depth discussion about life with CF.

Carre talks about how she went into survival mode and being in what felt like a hopeless situation. Carre embraced being an imperfect human and figured out how to thrive inspired by her massive loss.

Carre has released three records, and is in the process of writing a book about life with CF. Life with CF as a punk rock, Indie rock singer with hemoptysis (coughing up blood) happening in between or during gigs.

Carre is in a loving relationship and doing well. Check her out on Instagram!

Follow Queen Kwong: https://www.instagram.com/queenkwong/

The Bonnell Foundation website:https://thebonnellfoundation.org

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