Remember Me7 Juni 2022

FTD Research Mini-Series: Day 1

It's finally here! Our FTD Research Mini Series.

We participated in the ALLFTD Study -- Rachael as the participant, and Maria as the study partner... and today's episode recaps our Day 1. It was filled with Consent Forms, Blood Work and Neuropsych Testing... and also a recap of our little adventures.

Want to learn more about ALLFTD? Visit allftd.org

Be sure to connect with us on instagram @remembermepodcast to let us know what you think of today's episode!

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Special Thanks To Our Sponsor: The Bluefield Project

The Bluefield Project to Cure FTD is on a mission to support research to improve our understanding of a genetic form of Frontotemporal Dementia, and to help find a cure for this devastating disease.

To achieve our mission, we have supported over 40 researchers at Universities across the world, to understand the science behind FTD caused by mutations in progranulin.

We, along with NIH and others, help fund studies of families affected by FTD. These studies are called Natural History Studies and follow participants over time, to better understand how FTD may develop, and to identify clues that may help us treat it.

Based in part on our research findings, a number of companies are developing therapeutics that target progranulin FTD. There are now four investigational therapies in clinical trials for progranulin-FTD.

So how can you help? If FTD runs in your family, participating in a Natural History Study, or in a therapeutic clinical trial, makes an enormous contribution. To learn more, please go to ftdregistry.org

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To learn more about Remember Me, visit remembermeftd.com

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

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