RealTalk MS10 Dec 2019

Episode 119: Gaining Access to MS Medications with Lisa Aquillano, PharmD, BCPS, MSCS

What can you do when the MS medication you need can cost $80,000, $90,000 or even $100,000 a year, and you don't have health insurance? Or you have health insurance, but your insurance company won't approve the specific disease-modifying therapy that your neurologist thinks will be best for you?

My guest is Lisa Aquillano, a Clinical Pharmacy Specialist in Multiple Sclerosis at Emory University Hospital in Atlanta, Georgia. And we're talking about specific steps that you can take to overcome the obstacles standing in the way of gaining access to your MS disease-modifying therapy.

We're also talking about a remarkable program for people living with MS and their care partners. But the window to register for this program is just 24 hours long! And it's coming up in 2 days! We'll tell you all about the program and let you know exactly how to register. We'll tell you about what may be an important new discovery of a molecule that completely resolves MS in mice. We'll also tell you about a study that shows that people living with MS who are also dealing with depression are much more likely to develop debilitating disability sooner. And we'll tell you how and why Google is cracking down on shady stem cell clinic ads. We have a lot to talk about! Are you ready for RealTalk MS??! ___________ CAN-DO Program: 24-Hour Registration Opens Dec. 12 2:15

MicroRNA Resolves Mouse Model of MS 5:39

FDA Approves 3 Generics for Gilenya 8:06

Depressed MS Patients Suffer More Serious Physical Disability Earlier 9:39

Google Cracks Down on Stem Cell Clinic Ads 12:25

My Interview with Lisa Aquillano 14:48

Share This Episode 32:19

How to Subscribe to RealTalk MS, Download the RealTalk MS App, and Listen with Alexa 32:43

___________

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: http://realtalkms.com/119

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review

The Can-Do Program

STUDY: Oral Administration of miR-30d from Feces of MS Patients Suppresses MS-Like Symptoms in Mice By Expanding Akkermansia Muciniphila

STUDY: Diability Worsening Among Persons with Multiple Sclerosis and Depression: A Swedish Cohort Study

Give RealTalk MS a Rating & Review

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 119
Hosted By: Jon Strum
Guests: Lisa Aquillano, PharmD, BCPS, MSCS

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, CanDoMS, Gilenya, Depression, Stemcells, RealTalkMS

Privacy Policy

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(519)

Episode 465: On Being an MS Specialist In A Country That Believed MS Was Non-Existent with Dr. Avinash Chandra

During his fellowship in the United States, Dr. Avinash Chandra trained to become an MS specialist at a world-class MS center. Then he returned home to Nepal and discovered that MS was largely conside...

27 Juli 37min

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

If you've spent any time at all living with or caring for someone with multiple sclerosis, you know that medical textbooks and information-filled websites can give us facts, figures, and symptoms, but...

20 Juli 32min

Episode 463: A Novel Approach to Treating MS-Related Depression with Dr. Robert Motl and Kelly

Living with depression has been described as "like living under a wet, heavy blanket". It can stop someone from showing up at work, meeting up with friends, and even connecting with their family. One...

13 Juli 37min

Episode 462: Taking Your MS to College? Understand Your Right to Accommodation with Britt Neff

The Americans with Disabilities Act ensures that people living with disabilities receive reasonable accommodations at work. That law also applies to students attending most colleges and universities. ...

6 Juli 30min

Episode 461: A New Disease-Modifying Therapy Has Been Submitted for FDA Approval with Dr. Jiwon Oh

A short while ago, we shared very positive results from the Phase 3 clinical trials for fenebrutinib in both relapsing-remitting and primary progressive MS. Those results have been submitted to the FD...

29 Juni 34min

Episode 460: Running Ireland with MS with Matt Knaggs and Colin Goodman

Next week, Matt Knaggs and Colin Goodman will attempt to set a Guinness World Record for running the 350-mile length of Ireland with MS. This week, you'll meet Matt and Colin and learn why this undert...

22 Juni 33min

Episode 459: This Is Not Your Father's MS Rehabilitation with Dr. Brian Sandroff, Dr. Brad Willingham, and Dr. Laura Rice

For years, the standard medical advice for someone diagnosed with multiple sclerosis was simple, cautious, and as we now know, incredibly limiting: "Take it easy. Don't overexert yourself. And get ple...

15 Juni 47min

Episode 458 -- From the 2026 CMSC Annual Meeting: Part Two with Dr. Stephen Krieger

This week, our coverage of the Consortium of MS Centers annual meeting continues with my guest, Dr. Stephen Krieger. In a wide-ranging conversation, Dr. Krieger offers a very encouraging clinical tria...

8 Juni 31min