Episode 164: Understanding Pediatric MS with Hannah Schnitzler, Melissa Fisher, and Dr. Brenda Banwell
RealTalk MS19 Okt 2020

Episode 164: Understanding Pediatric MS with Hannah Schnitzler, Melissa Fisher, and Dr. Brenda Banwell

MS doesn't only affect individuals. It affects families. And that's probably most clear when we're talking about pediatric MS. The National MS Society estimates that there are about 5,000 diagnosed cases of pediatric MS in the United States and less than 10,000 cases worldwide, but those numbers become far less important when your child is one of those diagnosed cases. We're taking a deep dive into pediatric MS with Hannah Schnitzler, who lives with pediatric MS, Hannah's mom, Melissa Fisher, and pediatric MS expert Dr. Brenda Banwell. We're also talking about study results that show a simple sugar that's available over the counter is effective in preventing myelin degeneration in the mouse model of MS. And we'll tell you how a research team at the University of Chicago went about designing a novel MS therapy that's been demonstrated to promote myelin repair and even stop MS from developing in the mouse model of MS. You'll hear about the first oral disease-modifying therapy that's been approved to treat active secondary progressive MS in England, Wales, and Scotland. And we'll tell you how you can be a part of future MS research projects. We have a lot to talk about! Are you ready for RealTalk MS??!

Study shows an over-the-counter simple sugar promotes myelin repair in mouse model of MS 1:31

Researchers design a new MS therapy that reduces MS symptoms and even prevents MS from developing in mouse model of MS 3:15

Mayzent approved for treating secondary progressive MS in England, Wales, and Scotland 5:28

Register to participate in future research at the University of Washington MS Rehabilitation & Wellness Center 6:38

Online survey for parents of a child living with pediatric MS 8:02

My Interview with pediatric MS patient Hannah Schnitzler and her mom 9:22

My Interview with pediatric MS expert Dr. Brenda Banwell 21:57

Share this episode 42:00

Donate to the National MS Society COVID-19 Response Fund 42:21

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/164

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

STUDY: N-acetylglucosamine Drives Myelination By Triggering Oligodendrocyte Precursor Cell Differentiation

STUDY: Prolonged Residence of an Albumin-IL-4 Fusion Protein in Secondary Lymphoid Organs Ameliorates Experimental Autoimmune Encephalomyelitis

SURVEY: University of Washington Multiple Sclerosis Rehabilitation & Wellness Center Research Participant Survey

SURVEY: Parents of a Child with Pediatric MS (English)

SURVEY: Parents of a Child with Pediatric MS (Spanish)

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 164
Guests: Hannah Schnitzler, Melissa Fisher & Dr. Brenda Banwell

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, PediatricMS, RealTalkMS

Privacy Policy

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(519)

Episode 465: On Being an MS Specialist In A Country That Believed MS Was Non-Existent with Dr. Avinash Chandra

Episode 465: On Being an MS Specialist In A Country That Believed MS Was Non-Existent with Dr. Avinash Chandra

During his fellowship in the United States, Dr. Avinash Chandra trained to become an MS specialist at a world-class MS center. Then he returned home to Nepal and discovered that MS was largely conside...

27 Juli 37min

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

If you've spent any time at all living with or caring for someone with multiple sclerosis, you know that medical textbooks and information-filled websites can give us facts, figures, and symptoms, but...

20 Juli 32min

Episode 463: A Novel Approach to Treating MS-Related Depression with Dr. Robert Motl and Kelly

Episode 463: A Novel Approach to Treating MS-Related Depression with Dr. Robert Motl and Kelly

Living with depression has been described as "like living under a wet, heavy blanket". It can stop someone from showing up at work, meeting up with friends, and even connecting with their family.  One...

13 Juli 37min

Episode 462: Taking Your MS to College? Understand Your Right to Accommodation with Britt Neff

Episode 462: Taking Your MS to College? Understand Your Right to Accommodation with Britt Neff

The Americans with Disabilities Act ensures that people living with disabilities receive reasonable accommodations at work. That law also applies to students attending most colleges and universities. ...

6 Juli 30min

Episode 461: A New Disease-Modifying Therapy Has Been Submitted for FDA Approval with Dr. Jiwon Oh

Episode 461: A New Disease-Modifying Therapy Has Been Submitted for FDA Approval with Dr. Jiwon Oh

A short while ago, we shared very positive results from the Phase 3 clinical trials for fenebrutinib in both relapsing-remitting and primary progressive MS. Those results have been submitted to the FD...

29 Juni 34min

Episode 460: Running Ireland with MS with Matt Knaggs and Colin Goodman

Episode 460: Running Ireland with MS with Matt Knaggs and Colin Goodman

Next week, Matt Knaggs and Colin Goodman will attempt to set a Guinness World Record for running the 350-mile length of Ireland with MS. This week, you'll meet Matt and Colin and learn why this undert...

22 Juni 33min

Episode 459: This Is Not Your Father's MS Rehabilitation with Dr. Brian Sandroff, Dr. Brad Willingham, and Dr. Laura Rice

Episode 459: This Is Not Your Father's MS Rehabilitation with Dr. Brian Sandroff, Dr. Brad Willingham, and Dr. Laura Rice

For years, the standard medical advice for someone diagnosed with multiple sclerosis was simple, cautious, and as we now know, incredibly limiting: "Take it easy. Don't overexert yourself. And get ple...

15 Juni 47min

Episode 458 -- From the 2026 CMSC Annual Meeting: Part Two with Dr. Stephen Krieger

Episode 458 -- From the 2026 CMSC Annual Meeting: Part Two with Dr. Stephen Krieger

This week, our coverage of the Consortium of MS Centers annual meeting continues with my guest, Dr. Stephen Krieger. In a wide-ranging conversation, Dr. Krieger offers a very encouraging clinical tria...

8 Juni 31min

Populärt inom Hälsa

somna-med-henrik
rss-bara-en-till-om-missbruk-medberoende-2
inga-beiga-morsor
bullfika
rss-vuxna-pa-latsas
not-fanny-anymore
sexnoveller-deluxe
johannes-hansen-podcast
rss-viktmedicinpodden
angestpodden
sova-med-dan-horning
rss-traningsklubben
hacka-livet
rss-basta-livet
rss-hos-psykologen
sa-in-i-sjalen
halsoveckan-by-tyngre
dodsdomar
tyngre-radio
sex-pa-riktigt-med-marika-smith