Episode 199: MS and the LGBTQ+ Community with Matoaka Kipp
RealTalk MS21 Juni 2021

Episode 199: MS and the LGBTQ+ Community with Matoaka Kipp

Receiving an MS diagnosis can be frightening. And receiving that diagnosis as a young adult can feel like your whole world just got flipped upside down. When Matoaka Kipp (she/her/hers) received her MS diagnosis at the age of 21, she not only had to come to terms with how that diagnosis would change her life but as a member of the LGBTQ+ community, Matoaka also had to confront some of the systemic inequities of our healthcare system.

Matoaka joins me this week to share her MS journey.

We're also talking about why the U.S. Supreme Court tossed out a lawsuit that threatened access to healthcare for every person living with MS in the United States.

We'll tell you who was just named this year's recipient of the prestigious Charcot Award and you'll learn how this person's work has directly affected your MS diagnosis.

We're sharing the surprising results of a study of cannabis use and cognition among people with MS.

And we'll tell you about a $1 million dollar award that will fund no-cost outdoor adventures (think adaptive skiing, kayaking, etc!) for young adults who are living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

National MS Society's statement in support of the LGBTQ+ community :22

U.S. Supreme Court Tosses Out ACA Lawsuit (and why that matters to everyone living with MS) 3:26

Winner of the Charcot Award is announced 7:14

Surprising results from a study on cannabis and cognition among people with MS 10:07

If you're living in the U.K. and you use a wheelchair for mobility, here's your chance to be a part of MS research 14:07

First Descents receives $1 million dollars to support no-cost outdoor adventures for young adults living with MS 15:04

Matoaka Kipp shares her MS journey 17:30

Share this episode 40:41

Please join me next week for our 200th episode! 41:03

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/199

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society LGBTQ+ Needs Survey
https://ntlms.org/LGBTQSurvey

Matoaka's Greeting Cards
https://www.instagram.com/habibimail

STUDY: Impaired Awareness: Why People with Multiple Sclerosis Continue Using Cannabis Despite Evidence to the Contrary
https://onlinelibrary.wiley.com/doi/10.1002/brb3.2220

University of Birmingham Study Participant Information
https://drive.google.com/file/d/10CW_slePiO4n7HjVeimSuCGgfdEX1y-m/view

First Descents Outdoor Adventures for Young Adults Impacted by MS
https://firstdescents.org/programs/ms-programs/

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 199
Guests: Matoaka Kipp

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(519)

Episode 465: On Being an MS Specialist In A Country That Believed MS Was Non-Existent with Dr. Avinash Chandra

Episode 465: On Being an MS Specialist In A Country That Believed MS Was Non-Existent with Dr. Avinash Chandra

During his fellowship in the United States, Dr. Avinash Chandra trained to become an MS specialist at a world-class MS center. Then he returned home to Nepal and discovered that MS was largely conside...

27 Juli 37min

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

Episode 464: Sharing Her MS Journey Graphically with Liat Shalom

If you've spent any time at all living with or caring for someone with multiple sclerosis, you know that medical textbooks and information-filled websites can give us facts, figures, and symptoms, but...

20 Juli 32min

Episode 463: A Novel Approach to Treating MS-Related Depression with Dr. Robert Motl and Kelly

Episode 463: A Novel Approach to Treating MS-Related Depression with Dr. Robert Motl and Kelly

Living with depression has been described as "like living under a wet, heavy blanket". It can stop someone from showing up at work, meeting up with friends, and even connecting with their family.  One...

13 Juli 37min

Episode 462: Taking Your MS to College? Understand Your Right to Accommodation with Britt Neff

Episode 462: Taking Your MS to College? Understand Your Right to Accommodation with Britt Neff

The Americans with Disabilities Act ensures that people living with disabilities receive reasonable accommodations at work. That law also applies to students attending most colleges and universities. ...

6 Juli 30min

Episode 461: A New Disease-Modifying Therapy Has Been Submitted for FDA Approval with Dr. Jiwon Oh

Episode 461: A New Disease-Modifying Therapy Has Been Submitted for FDA Approval with Dr. Jiwon Oh

A short while ago, we shared very positive results from the Phase 3 clinical trials for fenebrutinib in both relapsing-remitting and primary progressive MS. Those results have been submitted to the FD...

29 Juni 34min

Episode 460: Running Ireland with MS with Matt Knaggs and Colin Goodman

Episode 460: Running Ireland with MS with Matt Knaggs and Colin Goodman

Next week, Matt Knaggs and Colin Goodman will attempt to set a Guinness World Record for running the 350-mile length of Ireland with MS. This week, you'll meet Matt and Colin and learn why this undert...

22 Juni 33min

Episode 459: This Is Not Your Father's MS Rehabilitation with Dr. Brian Sandroff, Dr. Brad Willingham, and Dr. Laura Rice

Episode 459: This Is Not Your Father's MS Rehabilitation with Dr. Brian Sandroff, Dr. Brad Willingham, and Dr. Laura Rice

For years, the standard medical advice for someone diagnosed with multiple sclerosis was simple, cautious, and as we now know, incredibly limiting: "Take it easy. Don't overexert yourself. And get ple...

15 Juni 47min

Episode 458 -- From the 2026 CMSC Annual Meeting: Part Two with Dr. Stephen Krieger

Episode 458 -- From the 2026 CMSC Annual Meeting: Part Two with Dr. Stephen Krieger

This week, our coverage of the Consortium of MS Centers annual meeting continues with my guest, Dr. Stephen Krieger. In a wide-ranging conversation, Dr. Krieger offers a very encouraging clinical tria...

8 Juni 31min

Populärt inom Hälsa

somna-med-henrik
rss-bara-en-till-om-missbruk-medberoende-2
inga-beiga-morsor
rss-vuxna-pa-latsas
bullfika
not-fanny-anymore
rss-viktmedicinpodden
sexnoveller-deluxe
johannes-hansen-podcast
sova-med-dan-horning
angestpodden
sa-in-i-sjalen
hacka-livet
rss-traningsklubben
halsoveckan-by-tyngre
rss-hos-psykologen
rss-basta-livet
rss-pappahjartat
dodsdomar
gentlemanualen