RealTalk MS6 Dec 2021

Episode 223: Assistive Technology for People with MS with Alex Burnham and Bill Binko

If you're living with MS, you know by now that quitting smoking, getting exercise, and making smart food choices have all been shown to improve your physical health and your quality of life. There's one more tool that, when necessary, can be a game-changer.

Joining me to talk about how assistive technology can help people living with MS maintain their independence and improve their quality of life are assistive technology experts Alex Burnham and Bill Binko.

We'll also share one more reason why your most important preparation for the holiday season this year is making sure you're fully vaccinated.

We'll tell you about the International Progressive MS Alliance's proposal for coordinating global progressive MS research.

We'll share the results of a study that shows a significant percentage of older people living with MS who discontinue their DMT experience disease worsening and progression.

We'll tell you about a new grant that's been awarded to study adherence to MS oral disease-modifying therapies.

And you'll hear about the results of a study that shows an association between low levels of vitamin D and cognitive dysfunction at the onset of MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

There's a new reason to be vaccinated! 3:43

International Progressie MS Alliance's proposal for a global progressive MS research agenda 6:57

My goodbye to the Progressive MS Alliance Scientific Steering Committee 8:16

A study shows that older people who discontinue DMTs suffer disease worsening and progression 9:56

Researcher receives $100,000 to study MS oral DMT adherence 12:39

A study shows low levels of Vitamin D are associated with cognitive dysfunction at the onset of MS 15:22

Alex Burnham and Bill Binko discuss how assistive technology can be a difference-maker for people living with MS 18:51

Share this episode 37:47

Have you downloaded the free RealTalk MS app??? 38:08

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS
https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

Charting a Global Research Strategy for Progressive MS -- An International Progressive MS Alliance Proposal
https://journals.sagepub.com/doi/10.1177/13524585211059766

STUDY: Discontinuation of Disease-Modifying Therapies is Associated with Disability Progression Regardless of Prior Stable Disease and Age
https://www.msard-journal.com/article/S2211-0348(21)00673-8/fulltext

STUDY: Real World Adherence To, and Persistence With, Once- and Twice-Daily Oral Disease Modifying Drugs in Patients with Multiple Sclerosis: A Systematic Review and Meta-Analysis
https://bmcneurol.biomedcentral.com/articles/10.1186/s12883-020-01830-0

STUDY: Serum Vitamin D as a Marker of Impaired Information Processing Speed and Early Disability in Multiple Sclerosis Patients
https://www.mdpi.com/2076-3425/11/11/1521/htm

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RealTalk MS Episode 223
Guests: Alex Burnham and Bill Binko

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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