Episode 258: Living with the Invisible Symptoms of MS with Kathy Costello
RealTalk MS8 Aug 2022

Episode 258: Living with the Invisible Symptoms of MS with Kathy Costello

One of the realities of living with MS is that you're often dealing with invisible symptoms. And because symptoms like numbness and tingling, fatigue, depression, vision issues, and pain aren't apparent to others, it can be hard for people around you to understand what MS is all about and, specifically, what you might be struggling with.

Kathy Costello returns to the podcast to discuss how to best manage the invisible symptoms of MS and how you can constructively shut down those conversations that begin with, "But you look so healthy!".

We're also sharing the results of a study that focused on the results of 50 different studies about the effects of autologous hematopoietic stem cell therapy (aHSCT) on people with MS.

We'll tell you about the National MS Society's $19 million dollar investment in 40 new MS research projects.

It's August, so we have to talk about Burgers to Beat MS!

And we'll give you the details about how you can participate in testing a new product that combines technology and music to improve gait problems for people living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

Living with the invisible symptoms of MS :22

A study of 50 studies about the effectiveness of aHSCT in treating MS 1:36

National MS Society invests $19 million in 40 new MS research projects 4:45

It's that time of year again...it's Burgers to Beat MS! 7:03

MedRhythms is asking for your help 8:15

Kathy Costello discusses the invisible symptoms of MS 9:57

Share this episode 32:04

Download the RealTalk MS app for your iOS or Android device 32:25

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/258

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Can Do MS
https://cando-ms.org

aHSCT in MS
https://www.nationalmssociety.org/Treating-MS/aHSCT#section-0

Autologous Hematopoietic Stem Cell Transplantation in Multiple Sclerosis: A Systemic Review and Meta-Analysis
https://link.springer.com/article/10.1007/s40120-022-00389-x

National MS Society Invests $19 Million to Launch 40 New MS Research Projects to Drive Pathways to Cures
https://nms2cdn.azureedge.net/cmssite/nationalmssociety/media/msnationalfiles/research/new-research-summer-2022.pdf

Burgers to Beat MS
https://BurgersToBeatMS.ca

For More Information about MedRhythms Volunteer Testing Program
Email: appliedresearch@medrhythms.com

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 258
Guest: Kathy Costello

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

Avsnitt(505)

Episode 443: The 2026 ACTRIMS Forum (Part 3) with Dr. Helen Tremlett, Dr. Ilana Katz Sand, and Kathy Smith

Episode 443: The 2026 ACTRIMS Forum (Part 3) with Dr. Helen Tremlett, Dr. Ilana Katz Sand, and Kathy Smith

Welcome back to the third and final part of our coverage of the 2026 ACTRIMS Forum. This week's episode bridges the gap between groundbreaking clinical research and the nuanced reality of living with ...

23 Feb 35min

Episode 442: The 2026 ACTRIMS Forum (Part 2) with Dr. Jeffrey Cohen, Dr. Daniel Ontaneda, and Kristine Werner Ozug

Episode 442: The 2026 ACTRIMS Forum (Part 2) with Dr. Jeffrey Cohen, Dr. Daniel Ontaneda, and Kristine Werner Ozug

Welcome back to Part Two of our coverage of the 2026 ACTRIMS Forum. This week, we shift our focus to emerging therapies and clinical insights that are re-shaping the future of MS care. From the latest...

16 Feb 44min

Episode 441: The 2026 ACTRIMS Forum with Dr. Manuel Friese, Dr. Amit Bar-Or, and Dr. Haritha Desu

Episode 441: The 2026 ACTRIMS Forum with Dr. Manuel Friese, Dr. Amit Bar-Or, and Dr. Haritha Desu

Last week, over 1,400 scientists and clinicians gathered in San Diego, California, at the 2026 Americas Committee for Treatment and Research in Multiple Sclerosis annual meeting, better known as the A...

9 Feb 33min

Episode 440: An MS Specialist's Response to the FDA with Dr. William Conte

Episode 440: An MS Specialist's Response to the FDA with Dr. William Conte

This past December, the FDA issued a Complete Response Letter to drug manufacturer Sanofi in response to Sanofi's application seeking approval for Tolebrutinib, the first in a new category of investig...

2 Feb 39min

Episode 439: Preventing MS with Dr. Bruce Bebo

Episode 439: Preventing MS with Dr. Bruce Bebo

The first coordinated global research strategy to prevent MS has been announced. This week, Dr. Bruce Bebo, the National MS Society's Executive Vice President and Chief Research & Medical Affairs Offi...

26 Jan 32min

Episode 438: The Discovery of 2 MS Subtypes with Dr. Arman Eshaghi

Episode 438: The Discovery of 2 MS Subtypes with Dr. Arman Eshaghi

One of the more confusing aspects of MS is that it can present differently from one person to the next. A research team at University College London may have uncovered a reason for that when they iden...

19 Jan 29min

Episode 437: Remembering David Mitchell

Episode 437: Remembering David Mitchell

I don't have to remind anyone who listens to this podcast that the cost of MS disease-modifying therapies is obscenely high. And we're not just talking about relatively new medications. Older medicati...

12 Jan 29min

Episode 436: 3 Questions Your Neurologist Should Be Asking Themselves with Dr. Leorah Freeman

Episode 436: 3 Questions Your Neurologist Should Be Asking Themselves with Dr. Leorah Freeman

Scientists are expanding our understanding of MS at an unprecedented pace. This week, Dr. Leorah Freeman discusses why, as new discoveries and medications enter clinical practice, neurologists and MS ...

5 Jan 34min

Populärt inom Hälsa

somna-med-henrik
rss-jossan-nina
inga-beiga-morsor
rss-bara-en-till-om-missbruk-medberoende-2
alska-oss
rss-vuxna-pa-latsas
angestpodden
johannes-hansen-podcast
sexnoveller-deluxe
not-fanny-anymore
rss-viktmedicinpodden
brottarbroder
sa-in-i-sjalen
sova-med-dan-horning
rss-the-house-podcast-3
rss-sjalsligt-avkladd
rss-basta-livet
smartare-fitness-podden
tyngre-traningssnack
rss-psykoterapipodden