RealTalk MS26 Sep 2022

Episode 265: Making MS Research Accessible to People Affected by MS and Why That Matters with Sharon Roman

Living with MS comes with its own set of sometimes significant challenges. But being in the dark, unaware of the noteworthy and remarkable advances being made in MS research is one challenge that we're learning to overcome.

Sharon Roman is a patient-partner and writer for the British Medical Journal Group. Sharon lives with MS and she also writes a blog called Tremlett's MS Research Explained. The blog features plain-English posts detailing the research being done by Professor Helen Tremlett and her team. Professor Tremlett is the Canada Research Chair in Neuroepidemiology and Multiple Sclerosis at the University of British Columbia.

Sharon joins me to talk about Professor Tremlett's pioneering research on the prodromal phase of MS, and to discuss why it's important to make MS research accessible and understandable to everyone in the MS community.

We're also sharing study results that show the key to reducing MS fatigue could be a trip to the gym.

We'll tell you about a study that measured improvements in physical disability, fatigue, and health-related quality of life among people with MS after they received stem cell therapy.

We'll tell you about the significant differences in the gut microbiome of people living with MS and what that might mean for potential new treatments.

We'll tell you about a study that discovered an interesting difference in immune cells among people living with MS. And we'll explain the riddle this poses for scientists.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: The importance of making MS research accessible to people affected by MS :22

A study shows that high-intensity resistance training improves MS fatigue 2:44

A study measures the long-lasting benefits of aHSCT for people living with MS 6:31

A study identifies differences in specific bacteria levels in the gut microbiome of people living with MS 9:59

A study reveals differences in immune cells among people living with MS 13:22

Sharon Roman discusses the importance of making MS research accessible to people affected by MS 18:43

Share this episode 32:04

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Tremlett's MS Research Explained
https://tremlettsmsresearchexplained.wordpress.com

STUDY: High-Intensity Resistance Training in People with Multiple Sclerosis Experiencing Fatigue: A Randomised Controlled Study
https://msard-journal.com/article/S2211-0348(22)00613-7/fulltext

STUDY: Impact of Autologous HSCT on the Quality of Life and Fatigue in Patients with Relapsing Multiple Sclerosis
https://www.nature.com/articles/s41598-022-19748-7

National MS Society: aHSCT and MS
https://nationalmssociety.org/Treating-MS/aHSCT

STUDY: Gut Microbiome of Multiple Sclerosis Patients and Paired Household Controls Reveal Associations with Disease Risk and Course
https://cell.com/cell/fulltext/S0092-8674(22)01115-1

STUDY: Broader Epstein-Barr Virus-Specific T Cell Receptor Repertoire in Patients with Multiple Sclerosis
https://rupress.org/jem/article/219/11/e20220650/231431/Broader-Epstein-Barr-virus-specific-T-cell

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RealTalk MS Episode 265
Guest: Sharon Roman

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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