2.2 Year in Review 2023 - Hypermobility Edition

2.2 Year in Review 2023 - Hypermobility Edition

The Bendy Mommas continue the second season with a review of Zebra news from 2023. Luna and Shelli’s wrap-up has all the news you missed pertinent to Hypermobility and the Ehlers-Danlos Syndromes.

If you have any questions, comments, or suggestions for future episode topics, please send us a message (voice, audio, or video) to tiffany@hackinghypermobility.com or info@hackinghypermobility.com

Be sure to give us permission to use your likeness and if you want us to use your name, photo, or voice.

References

Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes - ScienceDirect

Multiple Sustainable Benefits of a Rehabilitation Program in Therapeutic Management of Hypermobile Ehlers-Danlos Syndrome: A Prospective and Controlled Study at Short- and Medium-Term - ScienceDirect

Full article: Pilot study of an online-delivered mindfulness meditation in Ehlers-Danlos syndrome (hEDS): effect on quality-of-life and participant lived experience

Research article Folate-dependent hypermobility syndrome: A proposed mechanism and diagnosis

A novel mutation in collagen transport protein, MIA3 gene, detected in a patient with clinical symptoms of Ehlers–Danlos hypermobile syndrome

Ehlers-Danlos Syndrome is Associated with Increased Rates of Adjacent Segment Disease Following TLIF: A Propensity Matched Study - ScienceDirect

Sacroiliac joint fusion in patients with Ehlers Danlos Syndrome: A case series - ScienceDirect

Outcomes Following Anterior Cervical Discectomy and Fusion in Patients With Ehlers-Danlos Syndrome - Jialun Chi, Jon Raso, Vaibhav Tadepalli, Lawal Labaran, Eunha Oh, Jesse Wang, Francis H. Shen, Xudong Li, 2023

Mike and Sofia Segal Family Foundation pledge $6.7 million to advance research - The Ehlers Danlos Society

$2.375 million pledge from InVitro Cell Research, LLC (ICR) for research in hypermobile Ehlers-Danlos syndrome (hEDS)

EDS Maternity Co-created Tools | hEDS Together

2023 Diagnostic Framework for Pediatric Joint Hypermobility - The Ehlers Danlos Society

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1.11 The One With The Crossover

1.11 The One With The Crossover

***A Very Special Episode*** Enjoy this little treat while the Two Bendy Mommas work on their plan for Season Two! Have an idea? Send us an email - info@hackinghypermobility.com Many thanks to Dr. ...

17 Maj 202350min

1.10 Year in Review 2022 - Zebra Edition

1.10 Year in Review 2022 - Zebra Edition

NOTE: Hacking Hypermobility UNMASKED - We opted to leave all of our stumbling, umms, and off-topic squirrelling in this episode. As a result, the episode is 3 hours long! This episode is also the sea...

2 Feb 20233h 3min

1.09 Let's have a little fun

1.09 Let's have a little fun

Join the Two Bendy Mommas as they answer some fun questions. Shelli's daughter joins in the fun to play MC.

29 Jan 202328min

1.08 A Conversation with a Late Diagnosed Woman, Interview 2

1.08 A Conversation with a Late Diagnosed Woman, Interview 2

The Bendy Mommas continue their conversation on late diagnosis. Resources and References: “Neurodivergent: What is It?” Cleveland Clinic Health Library https://my.clevelandclinic.org/health/symptoms...

23 Jan 20231h 7min

1.07 A Conversation with a Late Diagnosed Woman, Interview 1

1.07 A Conversation with a Late Diagnosed Woman, Interview 1

A Conversation with a Late Diagnosed Woman, Interview 1 Summary: Join us for a more casual conversation to get to know your hosts of the Hacking Hypermobility Podcast. Luna and Shelli sit down to talk...

2 Jan 20231h 16min

1.06 Hypermobility Assessment - Diagnostic Checklist Criterion 3

1.06 Hypermobility Assessment - Diagnostic Checklist Criterion 3

In this episode, the Bendy Mommas discuss the 3rd and final criterion on the hEDS diagnostic checklist which includes 3 key points that exclude other diagnoses.

16 Dec 202228min

1.05 Hypermobility Assessment: Criterion 2 of the 2017 Diagnostic Checklist

1.05 Hypermobility Assessment: Criterion 2 of the 2017 Diagnostic Checklist

Show Notes Episode 1.05 Diagnosis of Hypermobility / Ehlers-Danlos Syndromes: Criterion 2-3 Resources mentioned in this episode are listed and linked here.

30 Nov 20221h 19min

1.04 Hypermobility Assessment: All About Beighton

1.04 Hypermobility Assessment: All About Beighton

Show Notes Episode 1.04 Diagnosis of Hypermobility / Ehlers-Danlos Syndromes: Criterion 1: The Beighton Score Resources mentioned in this episode are listed and linked here: https://www.hackinghyperm...

10 Okt 20221h 20min

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