2.9 - The Conversation With a Patient Advocate Continues

2.9 - The Conversation With a Patient Advocate Continues

We're back this week with Part 2 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, especially "complex" ones like those of us with EDS, neurodivergence, and other co-morbidities.


Full show notes are available here.

Avsnitt(43)

1.11 The One With The Crossover

1.11 The One With The Crossover

***A Very Special Episode*** Enjoy this little treat while the Two Bendy Mommas work on their plan for Season Two! Have an idea? Send us an email - info@hackinghypermobility.com Many thanks to Dr. ...

17 Maj 202350min

1.10 Year in Review 2022 - Zebra Edition

1.10 Year in Review 2022 - Zebra Edition

NOTE: Hacking Hypermobility UNMASKED - We opted to leave all of our stumbling, umms, and off-topic squirrelling in this episode. As a result, the episode is 3 hours long! This episode is also the sea...

2 Feb 20233h 3min

1.09 Let's have a little fun

1.09 Let's have a little fun

Join the Two Bendy Mommas as they answer some fun questions. Shelli's daughter joins in the fun to play MC.

29 Jan 202328min

1.08 A Conversation with a Late Diagnosed Woman, Interview 2

1.08 A Conversation with a Late Diagnosed Woman, Interview 2

The Bendy Mommas continue their conversation on late diagnosis. Resources and References: “Neurodivergent: What is It?” Cleveland Clinic Health Library https://my.clevelandclinic.org/health/symptoms...

23 Jan 20231h 7min

1.07 A Conversation with a Late Diagnosed Woman, Interview 1

1.07 A Conversation with a Late Diagnosed Woman, Interview 1

A Conversation with a Late Diagnosed Woman, Interview 1 Summary: Join us for a more casual conversation to get to know your hosts of the Hacking Hypermobility Podcast. Luna and Shelli sit down to talk...

2 Jan 20231h 16min

1.06 Hypermobility Assessment - Diagnostic Checklist Criterion 3

1.06 Hypermobility Assessment - Diagnostic Checklist Criterion 3

In this episode, the Bendy Mommas discuss the 3rd and final criterion on the hEDS diagnostic checklist which includes 3 key points that exclude other diagnoses.

16 Dec 202228min

1.05 Hypermobility Assessment: Criterion 2 of the 2017 Diagnostic Checklist

1.05 Hypermobility Assessment: Criterion 2 of the 2017 Diagnostic Checklist

Show Notes Episode 1.05 Diagnosis of Hypermobility / Ehlers-Danlos Syndromes: Criterion 2-3 Resources mentioned in this episode are listed and linked here.

30 Nov 20221h 19min

1.04 Hypermobility Assessment: All About Beighton

1.04 Hypermobility Assessment: All About Beighton

Show Notes Episode 1.04 Diagnosis of Hypermobility / Ehlers-Danlos Syndromes: Criterion 1: The Beighton Score Resources mentioned in this episode are listed and linked here: https://www.hackinghyperm...

10 Okt 20221h 20min

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