Ep 20 David Wainwright

Ep 20 David Wainwright

This week our guest is one of the busiest dads on the planet, my friend, David Wainwright.

David lives in Loughborough with wife, Louise and their three children. His eldest, Georgia has Rett Syndrome and his other daughter, Phoebe has a rare brain condition called Pachygyria & LIS1, coincidently they are both under Professor Santosh at the CIPP Rett Centre and CIPPRD. Their son, Liam also keeps them on their toes. I see his Facebook posts and wonder how they remain so positive and happy in the face of the issues they deal with on a daily basis, they really are an inspiration to me.

It was a pleasure to talk to David about his family, his relentless fundraising for Rett Syndrome, his journey into sports journalism and the people he's met who have also become huge supporters of Reverse Rett.

David is a larger than life character with a big heart and inspires support wherever he goes. I've had the privilege of doing the half marathon at the Great Manchester Run when we pushed our girls 13.1 miles on the hottest May day since records began. I saw first hand how determined the big fella and his running mate, Trevor Jones are that day and also what a lovely, smiley girl Georgia is.

Huge thanks to David for taking the time to talk to me, as always, it was emotional. We would love to know your thoughts on our conversation and the Reverse Rett podcast so leave a review on whatever platform you listen on. Or @reverserett on any of the socials.

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Avsnitt(27)

Ep 27 Mark "Mavis" Reilly

Ep 27 Mark "Mavis" Reilly

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13 Juli 202349min

Ep 26 Ross McKinney and Duncan Hughes

Ep 26 Ross McKinney and Duncan Hughes

The whole Rett Syndrome community were enthralled as the Five in a Row team set off from the Canary Islands last December in the Talisker Whisky Challenge.   Rowing the Atlantic is on the bucket list ...

25 Juli 202240min

Ep 25 Gareth Warne - Pink Elephant Challenge 3

Ep 25 Gareth Warne - Pink Elephant Challenge 3

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22 Juni 202232min

Ep 24 - Mathilde Mastroianni

Ep 24 - Mathilde Mastroianni

The Reverse Rett podcast is back and in this episode, I'm speaking with Mathilde Mastroianni, Assistant Psychologist at the CIPP Rett Centre, South London and Maudsley NHS Foundation Trust and King's ...

1 Okt 202149min

Ep 23 Victoria Scott

Ep 23 Victoria Scott

If you were offered a chance to cure your child's disease, would you take it? Not a question we have to think very hard about at Reverse Rett, but this is the fundamental question that underpins Victo...

5 Aug 202151min

Ep 22 Cameron Ross

Ep 22 Cameron Ross

In this episode of the podcast, I sit down with Cam Ross, older brother to Frankie, and son of Reverse Rett co-founder and Trustee, Rita Ross. We'd never had a conversation before recording this episo...

24 Juli 202140min

Ep 21 Helen Simmonds

Ep 21 Helen Simmonds

In today's podcast episode, I'm speaking to Helen Simmonds, Vice Chair of Reverse Rett and mother to Lauren who is 14 and her younger brother William. I met Helen all the way back in 2011 when Lauren ...

16 Juli 202152min

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