TSC Talks! "10 and Ace Despite It All" On TBI, with Nikki Lawley, Former Pediatric Nurse, TBI survivor, Cannabis Patient

Nikki Lawley is a former pediatric nurse, former blackjack dealer and much more, who went from a full active life to chronic daily pain and other debilitating symptoms after suffering a traumatic brain injury on the job in 2016. This is the story of how it happened, what happened and how she's been able to move from existing in survival mode to having a life filled with hope despite ongoing challenges. In her own words; "since my (TBI) injury, one of the things that I've learned more than anything is about living in the moment. my life changed a second and I can't go back and write a new ending, but I sure can start now and I just have really become more human with this injury. "

Nikki states: "I suffered both a traumatic brain (TBI) and whiplash injury to my neck. Due to this, I have been unable to work as a nurse ever since. My injury also comes with some debilitating symptoms, which include cognitive issues, chronic headaches, and severe neck pain. Cannabis helps alleviate my pain, bringing it from a 7/10 daily pain and down to a more tolerable 2 and 3. Other symptoms of my injury include impacted balance/coordination, visual impairment, and depression/anxiety."

She details what was an active, chock full life, growing up in Buffalo, NY, relocating to Fort Myers, FLA and then returning to the Buffalo area, having to change careers moving from nursing to HVC sales, working at a local Planned Parenthood and back to nursing, as well as taking on a second job as a blackjack dealer at a local casino. After listening to Nikki talk about how she was able to roll with life's challenges repeatedly and reinvent herself time after time, one can see how life as she knew it coming to a screeching halt after her TBI, was a brutal blow. It was in part, the perseverance and tenacity from years of walking through changes and challenges that gave her the ability to push to find answers and not give up after her injury.

Regarding the aftermath of the TBI, she states, "And I expected to be out a day, maybe two, definitely not three-plus years. And when I say, I could not cognitively function, I could not stop the head pain. I literally cried for the first year after my injury so often, because I just, I had so many different medications and yeah, so many treatments failed and people were like, "Well, it can't be from the concussion." She goes on to further explain, "So two of my ligaments are completely level three in the front and they really caused a huge amount of issues as far as, I get no cerebral spinal fluid CSF flow to my frontal parts of my brain because of the way the bones are and again, it causes complete compression and occlusion of the CSF flow. The neurosurgeon said, Oh, you don't need surgery will wire back to work and, and I constantly felt like I had to tell people my side of the story like I'm not crazy people, there's something really wrong. It is not normal to never not have a headache. So one of the biggest things that devastated me and probably the most of my cognitive challenges was I can't count anymore. When I worked at the casino, I emptied a deck of cards. So fast in blackjack, and I could count like backward. Just never a challenge. I cannot count higher (now) consistently than five."

So after years of seeking treatments, paying out of her own pocket repeatedly, traveling around the country and doing everything and anything she could to lessen the daily nightmare she was living in, on a trip to Vegas, she saw a "sign from God" in the form of a billboard advertising,

“So I'm standing outside looking and it's hot, and it's like, the sun's on my face. So, I should be feeling happy because I came out of Buffalo in January. I wonder though. They have these driving billboards on the Vegas Strip, and I see this “get your medical cannabis card today. ..call one 800 get your weed card” and I’m like, I doubt that'll help. And then it comes back by again. What the hell? So, my husband came back from a walk because he said I literally can't stand to be around you. I have to get out of the room. Yeah. So I mentioned to him when he gets back, I'm like, there's this billboard, “get your weed card”, you know and he said do it. He said, “Do it like just do it now. Let's do it.”

Nikki was finally able to find some relief with some guidance and using particular strains of cannabis that she has only been able to find in Nevada and Canada. The cannabis took her pain from a daily level 7/10 to a 2/3 on the pain scale. However, it has been incredibly frustrating not to have access to the strains of cannabis that actually work in her home state of NY due to restrictive regulations. Nikki often travels to Nevada and Canada to find the right strains that give her the relief that allows her to function.

Throughout this journey, despite hitting some true "window ledges" where she didn't know how she was going to go on, she's come back to being a passionate and eloquent advocate for TBI survivors, sharing her story of hope and the amazing potential of the cannabis plant every chance she gets.

"What I do now is I just started sharing my story. I sent it to Mike (Mike Robinson, Cannabis Advocate/Activist) and I have a very good friend Rachelle Gordon, who is a writer for financial cannabis news. And she kind of helped me lose some of the rambles and make my story more concise. And then I said to Mike, "I don't know do you think this is worth having more exposure? Do you think people want to hear about this?" You know, I'm not trying to be famous in any way shape or form. I'm just trying to promote awareness."

For Nikki, while cannabis has provided relief, she still struggles with misunderstanding and judgment because injuries related to TBI are invisible. Sharing this final quote here;

"But you know, if nothing else, since this injury, I've learned so many things about chronic illness, and how, how much is misunderstood about it. And just because somebody doesn't have a broken leg or isn't in a wheelchair doesn't mean they're not disabled, it doesn't mean that they're not challenged in some way. If I use my parking sticker, it's usually when it's icy out, and I met a huge risk fall risk. So I still suffer with dizziness and balance issues and depth perception issues. I feel guilty that as the person using that sometimes, and I shouldn't."

There's a lot more in this episode you don't want to miss! Thank you Nikki Lawley for the inspiration and education on TBI, cannabis and dealing with life!

Nikki's links:
LinkedIn: https://www.linkedin.com/in/nikki-lawley-aa281517/
Facebook: https://www.facebook.com/nikki.lawley
Instagram: https://www.instagram.com/lawleynikki/?hl=en
Recent podcast: https://player.fm/series/coffee-party-usa-radio/i-want-access-4-all-nurse-nikki-lawley-stops-by-for-a-cup-of-joe
Blog article: https://www.mikesmedicines.com/medical-marijuana/cannabis-shopping-with-nikki-lawley-everyone-is-unique/
Nikki's book suggestion: https://www.amazon.com/Medical-Cannabis-Primer-Ushering-Marijuana/dp/1885176023

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