Fragile X Author Series: Cindi Rogers

Fragile X Author Series: Cindi Rogers

Cindi Rogers is the mother of two sons with Full-Mutation Fragile X Syndrome, ages 29 and 31. Jake, her oldest son was diagnosed in 1991, just days after her youngest son was born, at which time he was also diagnosed. After some years of grieving, she and her husband, with the help of many experts in the Fragile X field, found ways to create a manageable, productive, and relevant life as a family. It has been her personal mission to share these strategies in hopes of generating ideas that families can implement in their own lives, while living with Fragile X Syndrome. Thus her book Becoming Mrs. Rogers: Learning to Live the Fragile X Way was written! You don’t want to miss the incredible wisdom and encouragement that Cindi Rogers shares with us!

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Avsnitt(72)

Small Steps, Big Impact!

Small Steps, Big Impact!

It’s the first episode of A Mama’s Xtra Love Podcast! Woohoo! Tune in to hear about the power of early intervention and how it’s impacted our son’s life tremendously.

19 Aug 202524min

Q&A Part 1: Fragile X Treatments, Anxiety and more!

Q&A Part 1: Fragile X Treatments, Anxiety and more!

Tune in for our first ever Q&A episode! We’re excited to answer your questions about all things Fragile X!

8 Maj 202516min

Rare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!

Rare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!

I’m so excited about this collab with Rare Patient Voice! Stacey and her heart for this organization is incredible. Please tune in and hear how you can get involved in rare disease studies, including ...

23 Mars 202521min

The Raw Realities of Grief & More!

The Raw Realities of Grief & More!

Tune into a new episode of Talk Fragile X as we discuss Developmental Disabilities Awareness Month, the raw realities of grief, and so much more!

14 Mars 202519min

A Fragile X Family’s Diagnosis Journey

A Fragile X Family’s Diagnosis Journey

It’s great to be back on the Podcast! I have many updates for you all that I can’t wait for you to hear about. Tune in to this week’s episode of Talk FX to hear more!

25 Nov 202434min

An Update on our Fragile X Journey!

An Update on our Fragile X Journey!

During Fragile X Awareness Month there’s lots in store, including an update on my family and I’s journey with Fragile X!

5 Juli 202421min

An Important Message from Talk Fragile X

An Important Message from Talk Fragile X

It’s Fragile X Awareness Month! As we kick off this important month, Talk Fragile X has an important announcement!

1 Juli 202421min

Talk Fragile X is Back with News!

Talk Fragile X is Back with News!

It’s great to be back on Talk Fragile X Podcast! I share some updates to our Fragile X journey, what you can expect from the podcast this year, and more!

31 Maj 202416min

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