How do we maintain hope? (Part 1)

How do we maintain hope? (Part 1)

Maintaining hope in our lives is a daily journey. Whether you're a parent of someone with Fragile X, self-advocate or full-mutation carrier. Often times the amount of hope we have is dependent on how our day is going, how our children are behaving, or discouragement in general. Not to mention our hope in having better treatments for our children affected by Fragile X, or even a cure! On this week's episode of Talk FX, I share from a raw and personal perspective of my own journey of maintaining hope and how it's been going lately. I also share what I've learned from other Fragile X families and experts that has really carried me through the difficult times. Tune in and share!

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Avsnitt(72)

Small Steps, Big Impact!

Small Steps, Big Impact!

It’s the first episode of A Mama’s Xtra Love Podcast! Woohoo! Tune in to hear about the power of early intervention and how it’s impacted our son’s life tremendously.

19 Aug 202524min

Q&A Part 1: Fragile X Treatments, Anxiety and more!

Q&A Part 1: Fragile X Treatments, Anxiety and more!

Tune in for our first ever Q&A episode! We’re excited to answer your questions about all things Fragile X!

8 Maj 202516min

Rare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!

Rare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!

I’m so excited about this collab with Rare Patient Voice! Stacey and her heart for this organization is incredible. Please tune in and hear how you can get involved in rare disease studies, including ...

23 Mars 202521min

The Raw Realities of Grief & More!

The Raw Realities of Grief & More!

Tune into a new episode of Talk Fragile X as we discuss Developmental Disabilities Awareness Month, the raw realities of grief, and so much more!

14 Mars 202519min

A Fragile X Family’s Diagnosis Journey

A Fragile X Family’s Diagnosis Journey

It’s great to be back on the Podcast! I have many updates for you all that I can’t wait for you to hear about. Tune in to this week’s episode of Talk FX to hear more!

25 Nov 202434min

An Update on our Fragile X Journey!

An Update on our Fragile X Journey!

During Fragile X Awareness Month there’s lots in store, including an update on my family and I’s journey with Fragile X!

5 Juli 202421min

An Important Message from Talk Fragile X

An Important Message from Talk Fragile X

It’s Fragile X Awareness Month! As we kick off this important month, Talk Fragile X has an important announcement!

1 Juli 202421min

Talk Fragile X is Back with News!

Talk Fragile X is Back with News!

It’s great to be back on Talk Fragile X Podcast! I share some updates to our Fragile X journey, what you can expect from the podcast this year, and more!

31 Maj 202416min

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